FIT test results - please help

Hi there 

I am 44 and have just had a FIT test result back, apparently the level is 8, only when it's past 10 it is deemed urgent. The normal is apparently 0-5. My blood tests were fine. I suffer with IBS and have done for years. I also have early stages of divirticulitis too, this was diagnosed 8 years ago. I am so worried I have cancer. I am waiting for a referral to the hospital, I am unsure what their referral is for. Has anyone  else had a FIT test that came back postive? What was your results like and any outcome from a colonoscopy? 

thank you in advance

Sheena 

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  • Hi I'm getting there just worried thank you. And I have been suffering with lower abdominal pain for around 2/3 years and I have been to my gp and a&e countless times they thought it was my appendix then it was ibs they tryed all the ibs medication and diet plans but nothing relieved my symptoms then they jumped back on the appendix saying it's probably a grumbling appendix that went on for a year or so in and out of hospital with the symptoms of appendicitis but no temp or elivated white blood cell count. It was a farse . 
    but about 3/4 months ago I noticed a change in my bowel habits from quite loose to normal and going more frequently I can go 6-7 times a day I noticed a few streaks of blood when I went to the toilet so I saw my doctor they thought it was caused by constipation and they said it's normal when I told them I don't suffer with constipation they said it's ibs I told them that I have been tested for ibs and I don't have it I tryed meds and diet plans but still had the symptoms a couple of days later I started bleeding quite a bit and I went back to my gp a few days later they again said it could be ibs (not looking at my medical records at all) they asked me what I think it is (after I told them it's not ibs again) I mentioned bowel cancer and they shot me down immediately they told me I'm far too young(I'm 27)  to have cancer and if it was cancer I'd be very ill I argued back about all my symptoms (lower abdominal pain, bloating lack of appetite tiredness change of bowel habits blood in stool bleeding with no stool lightheaded and dizziness) and my grandma has terminal cancer and has had it over 2 years now and she look like me and you she didn't say anything she just gave me some painkillers and told me to go to a&e if I'm in lots of pain or bleeding too much or going dizzy and lightheaded  i told her that I was dizzy and lightheaded she told me to go home and if I still feel dizzy to ring 999 or go to hospital I was baffled so I rang again in the morning and I told the doctor how I was made to feel and I felt like I wasn't listened to ect I told him I want a fit test and he told me to pick one up that day and send it off I did after some messing around as the test that my gp gave me was out of date but I got a new one and did it it took about a week to come back and I was told by the receptionist that it was positive I was shocked I saw a doctor again horrible as I said what's the next steps and she said wait for the hospital to ring you and I said what happens now do I have more tests ect she didn't know apparently I said can you tell me who can help me she said google it the next day I went back saw a lovely doctor I was that frustrated and upset I started crying she told me that yes the fit test came back positive but it's not all doom and gloom she told me that the hospital would call me ASAP and arrange a colonoscopy ASAP just to see what's going off she said yes it could well be cancer but it could be other things as well she asked if I had bloods done as I was still loosing blood I hadn't at that point she wasn't happy she told me to go to my local hospital and have them done that day she rang me the next day and said my iron levels were low and needed iron tablets. 
    I had my colonoscopy on the 9th October about a week after I last went to the gp they took 10 biopsy's just waiting for the results now that's the scariest part of this ordeal. 
    I hope that your colonoscopy is all good and they don't find anything nasty. I have to say I have never had a colonoscopy before but I couldn't be more greatful to the staff at the clinic I had sedation but when they started they were pumping air into my bowel I was in a bit of pain and they roped my pain relief up immediately and I was pain free throughout. The stuff that you have to drink is absolutely disgusting I tryed mixing it with orange juice but it didn't make much difference if I'm honest but it worked I used a straw and took mouthfuls every 2-3 mins till it was gone. 
    ps sorry for the long reply good for bedtime reading though  

    as I say I hope everything is ok with you all the best 

    ben

  • Morning, thank you for your reply. Wow do you really went through it and nobody listened? That's the thing with all this it gets put to IBS I'm 37 and told too young for cancer but you are never too young! 
    I hope your not waiting to long for your results. Fingers crossed all is well for you. 
    I have had ibs since I was about 20 I have been sufferering with severe constipation for ages and just put it down to ibs. Iv been anaemic for yrs and the Drs always tell me it's my periods. Iv been having mucus for ages and again I just put it to IBS. I had a fit test by chance because my ovary was enlarged and I was so bloated she asked how my toilet habbits where. If she hadnt I would have probably just carried on thinking it was IBS. It was only the other day it dawned on me how dark my stools had been when not taking iron  (obviously blood) I struggle to break wind and my stomach has been making the loudest noises for months. I'm booked in Saturday though so fingers crossed! Like you the dr said it could be many things.

    sounds like you have dealt with some really rude GPs! It's awful but so glad your sorted and I really hope all is well for you. Good luck x

  • Hi Ben 

    I am so sorry you are going through this too, and at such a young age. Please keep us updated with your results. I hope all is well for you. 
    I have noticed blood on tissue for years and they just put it down to IBS and diverticulitis. Suffered with my tummy problems for 16 years now, when I was 28. I get bloating, gas which i struggle to get out, my stools are all over the place, can be normal one minute and loose 2 mins later. I can spend all day on the loo one day and then nothing the day after, but it's rare I don't go. Others days I can be rushing to the loo. I feel nauseous after I've had a flare up. Dizzy and lightheaded. But lately the pain in my back has been horrendous. I've had back pain for the last few months that never goes away. I've also had like a sharp stabbing pain to the point I fell to the ground and couldn't move. My husband had to carry me to the sofa.

     

    the anxiety of waiting is the worst. So I totally understand what you are going through. I cry most days. Trying to think postive like everyone keeps telling me to, but it's so hard. It's in my mind 24 7. 

    fingers crossed we all get the results soon, and it's good news. 
    Sheena x 

  • Hi stacylou33 

    don't think that you should have gone to your gp sooner as you said you have ibs so that could be normal for you. 
    i hope you get sorted out and everything is ok try not to worry about it I know easier said than done but people here will support you and the Macmillan help line is great too they helped me when I rang. 
    mans yeh horrible gps some of them I have just rang my doctor to pester them again about my results and they said there not back so I asked if I can contact the hospital or clinic where I had it done and she said she had to check the letters and it was there a few days ago but not been looked at by a gp so I have to ring in the morning for the results I'm super nervous now. 
    but hopefully it's nothing nasty. 
    thanks for the support and chats. 
    All the best

    ben x