Hiya, if they suspect aspn they send it to either of the specialist centres in the uk where they will review your biopsy. Once they have confirmed a diagnosis of aspn they will transfer your services to the specialist Centre. I would chase it with your consultant in a week or so to hear if anything has come back

No the diagnosis was the APSN which was found from the biopsy’s in November I found about it in February and that’s all I know upto now was that it was APSN and they hadn’t had a case of it in out hospital in over 20 years and wasn’t sure about what route to take so sent it for a review 

This is the same as me. I’m in South Wales. Had bisopy in November and it came back last month borderline APSN so was send off to the specialist hospital in London. My scans etc have been arranged very quickly and I see the Professor on Monday who specialises in these. I had a call directly from the nurse at the specialist centre in london. So had my gynocologist appointment on 29th Feb, the bisopy taken locally in November was send to london on 14th February. London rang me 28th February to explain the next steps and I have an appointment on 18th March. Locally sent me for pelvic CT scan and I arranged my own MRI locally because londons machine are broken at present so I contacted my local MacMillan nurse who was amazing and she contacted the local cancer consultant who then arranged for MRI and they have now sent the images to London ready for Monday. I do have to have a thorax scan and bloods in London.
Once London contact you I’d imagine you would go down same route as the rest of us. Mine is borderline so not sure if that makes a difference of urgency level though but from conversations depending if you’ve had children then treatment recommends is usually hysterectomy however if you want children or more children there are alternatives depending on the severity of the nodule but I’m no expert so it’s best to see what is best for you when you’ve spoken with the specialist. 

Your hospital will send it too the specialist centres for confirmation of aspn. Once they have they will be in touch to book you in for appointments. If you join the group mentioned before I can give you the direct contact number to call the specialist centre so you can get further clarification 

Yes I’ve had four children and was sterilised at the same time as the hysteroscopy so definitely don’t want anymore 

I don’t have Facebook I will ask my sister to join for me to help get more information thank you very much 

Hi is anyone still active on this thread? Just had a little boy after 6 years of fertility struggles,  miscarriages, ivf etc so it's a really happy time for me right now.  Last year I had a hysteroscopy due to 3 failed embryo transfers and they found APSN. I had no symptoms at all. I put all of this to the back of my head as I got pregnant after they removed the Nodule. But I Got a phone call yesterday saying I need to commence monitoring now. Hcg blood tests every 3 months and MRI Scans twice a year. They've given me no end in site and say the monitoring is forever. Now that I've had my little boy after years of hell I just wanted to close this chapter and live happily ever after. Has anyone else just decided not to give this much energy and get on with their lives and not do the monitoring? I know it's for my own good & my health but the thoughts of this being such an ongoing ordeal is really getting me down. I just want to be happy now and enjoy my life with my newborn son after so many years of misery. 

Thanks for your rely! Hope you are doing ok after the hysterectomy. If I had a hysterectomy would that mean it's over and done with then? as in no more ongoing monitoring for life or risk of it spreading? They haven't mentioned having one to me But if it meant this ordeal would be over then I would consider it as I'm not sure if I want a 2nd child after everything I've been through. I sent a request to join the Facebook group so I hopefully I will be accepted soon! Would be great to have some support. Trying to remain positive now as I just had a baby so it's a really happy time & I don't want this to spoil such a special time 

If you want another child you can be monitored. There is a woman on the Facebook group who has another child and hysteractomy 7 months after birth. The monitoring is to see if the APSN starts turning into cancer, you can have them Years and they stay as they are or they can turn. It’s so rare there’s not alot of information out there. So hysteractomy there’s no more monitoring unless they find cancer. No more periods. No more smears. I did not have cancer elsewhere so no monitoring going forward. I kept ovaries so still have full menopause to look forward to lol.