Great thanks. Once I’m approved will find you both x

Sounds like you have your plan too. It’s been hysterectomy for me since my appt locally on 22nd Feb, I was assigned a MacMillan nurse then and that was before the hospital in London contacted me and I’m now under london not locally in south wales. It’s moved so very quickly for further tests for me so that’s why I am very worried but we will all get there. I hope you have a lovely family holiday in the meantime. 

Mine is from left over placenta too, I had a manual removal of placenta in theatre after my youngest (almost 4) and clearly they didn’t get it all! 
I posted in the aspn group 7th feb, happy to join the chat :) 

I almost feel a small relief to find some with the same issue. I’ve asked to join that group so once approved we can set up a group messenger chat as suggested. We cannot give names on here as they will be removed. 

I had a hysteroscopy and was sterilised back in November 2023 I got my results feb 14th Cole back as apsn my consultants haven’t had a case of this in over 20 years so didn’t get much info they wanted to send it over for review with the MDT before I am seen back in clinic have put me on txa for three cycles before I’m seen again I get severe abdominal pain and back pain severe heavy prolonged bleeding on my cycle and sex is painful I have literally been told nothing other than the name of what the biopsy found and not due back to go to clinic until June/July time… what is next does anybody know I’ve scoured the internet for info cases and there just doesn’t seem to be anything out there 

I was told APSN are extremely rare so there is not a lot of information out there unfortunately.  

For me, I had the biopsy in November 2023, a d and c, coil fitted and was told everything looked ‘fine’ so the biopsy was not marked as urgent. The results came back on 15th February, I seen my gynaecologist on 22nd February and then I’ve pretty much been fast tracked now to see the Professor in the field of APSN in London on Monday. I’ve had CT pelvic scan already and also a MRI. I have to have a thorax scan bloods on Monday together with a consultation with the Professor in this field.  My APSN has come back borderline and was told with this result it does not always act alone so they doing all the checks they need to before booking me in for an hysterectomy as that is the treatment for this type of growth. Have you had a traumatic birth in the past? Mine is as result of a uterus split and placenta rupture March 2019.  If you type in the full name APSN on facebook, there is a support group set up, only a few of us on there but may help to chat on there going forward. We cannot mention our names or hospitals on this site unfortunately.

My last birth I had a low pap- a reading so had growth scan I was induced only a week early went into labour but I didn’t fully dilate and pushed her out at 5 centimetres had to have my cervix pulled about to get her head through I then went on to have a positive smear with high grade dyskaryosis (severe) and had the loop treatment which resulted in just about my entire cervix being burnt away to remove the precancerous cells this left a lot of scar tissue so couldn’t have the hysteroscopy awake was to painful and they couldn’t get through I had that done in November didn’t hear nothing until the hospital rang me to get me in to see my consultant and then was told what they had found and that’s about all I know I’m not back on the clock until June/July time 

Was all cancerous cells burnt away in November? Or has more been found? June seems like a long time to wait unless they don’t have any immediate concerns and are continuing to monitor you at the moment. It’s so overwhelming when you don’t really know what is going on. Can you ring your consultants Secretary for a chat or one if the support team? Do you have an assigned MacMillan nurse? 

I literally got told what the diagnosis was and told they was sending the findings for review and that’s all I was told no checks to see if it’s contained no scans blood ultra sounds nothing I had a negative smear after treatment and was told they needed to review my case so would see me in three months so suppose I’ll get more answers then and start whatever treatment that is needed thanks for listening