HPV with cell changes

I recently had an abnormal smear test result and visited my local women's hospital on Monday.  The doctor said I was borderline at the moment, however, I told her I was worried as I have been in the position before, back in 1993, and that I take immunosuppressants to treat a rare health condition I have.  She confirmed this was a concern for her too, but said she would see me in 12 months and see what was happening.  And that was it, i will never forget her body language, she offered no opportunity to speak further, didn't ask who my rheumatologist was, and basically showed very little interest in me as a woman.

I feel like I am trapped, if I stop my immunosuppressants, then the pain from Relapsing Polychondritis and arthritis is unbearable, and I find the relapsing Polychondritis is made worse by stress.  My face, nose, ears, eyes and neck are so painful I can't concentrate and my eyes become sensitive to light.  But if I stay in them, they wipe out my immune system meaning I struggle to fight diseases and infections.  This could cause the HPV to develop faster which is considered 'high risk' variant.  I have made contact with my rheumatologist and still wait for a response.  I just don't know what to think.  I may never develop cancer, or I could based on the test results and meds. I am really frightened of the future right now.

 

  • Hi Vicky, sorry to hear you're having a tough time. 
     

    I'm in the same situation as you. I had an abnormal smear result last year and went for a colposcopy. Results can back as positive for HPV and changes were CIN1 no treatment needed and a repeat colposcopy in 12 months (in due in August this year not heard anything yet though). 
     

    I also take medication that suppresses my immune system prescribed by my rheumatologist. I was worried about not being able to fight off HPV, the doctor who did my colposcopy was really lovely, I'm sorry yours doesn't sound very supportive, he said that it might take longer than other people but the HPV should resolve on its own which I found really reassuring. I suppose I'll find out in August whether it has gone or not but I'm not as worried as I was. 
     

    I hope your rheumatologist gets back to you soon and can offer some reassurance. Sending lots of love ️

  • Hi, thank you for your words of encouragement, I am sorry to hear you are going through this too. I imagine there must be more of us in this situation.  I hope you get a good test result in August. It is very stressful though isn't it. X

  • It is very stressful, the waiting and the not knowing is so difficult. I'm currently waiting for breast screening as well, it never rains but it pours! 
     

    I hope you hear back soon and get some more info there's nothing worse than feeling like you don't know what's going on x