Hi George

Just wanted to say hello as I'm in a similar situation to you. I think once you know you have one lump you seem to notice other lumps and bumps. I noticed something under my arm and had it checked by my GP but wasn't anything they could find. 

I had a lump in my right upper arm and had ultrasound, biopsy and MRI but results were not conclusive. So I had it removed last week. I am in Cornwall so may be under the same sarcoma team as you. I am now awaiting the results to find out if it is a sarcoma and if so may need further surgery.

If you have the team at Plymouth then I have found them to be very good and they double checked under my arm too when I mentioned a possible other lump.

Hopefully you can get it checked out quickly to save you worrying.

All the best

MrsF

I know this is a really old thread but I'm going through something similar and just wondered what I have to come and what your outcomes were? Thanks. 

Hello, please don’t worry… the results won’t be back yet. The images are always available to view but they have to be reported on (and that report also has to be verified). So the interpretation of your images won’t be available straight away. Mine took 24 hours to be available to my consultant, he met with me before he had the report which wasn’t overly helpful timing as he couldn’t tell me anything! It’s easier said than done, but try and enjoy your bank holiday weekend and focus on your work trip, the results will be the results irrespective of whether you get them tomorrow or in a week’s time! Well done for the scan, not the most relaxing experience is it!!!

Thank you. I was feeling better this afternoon but then I've met up with my friend who's a nurse and she said it doesn't look good. She read my notes on my app and said she was really worried. She thinks il 100% need to have a biopsy and the fact that they have told me they don't think it's worrying isn't true. I honestly nearly fell off my chair. Every time I look at my kids I start crying and have to walk away. I really don't want them to worry. I can't believe they gave you an appointment without having all the information from the scans. What did they say at your appointment? How did you get your mri results, did they ring you? Thank you so much for listening. 

Hello, they couldn’t tell me a lot at my appointment, it was a “wait until we get the MRI report then we’ll make a plan for what’s next.” And I’m still waiting for that plan to be made! I never formally got my MRI results, I just read them in the NHS app and called the consultant’s secretary (they still haven’t returned my call). So just in a state of limbo. How are you feeling today? With respect to your friend, she may be a nurse but that doesn’t seem to be the most supportive conversation! I appreciate that she is wanting to be honest with you, but nobody knows anything until you have your results. Everything at this stage is speculation, so try not to take on board what your friend has said. Enjoy the long weekend with your little ones and just await the results from a medical professional who has actually had sight of your report and the images!

Hiya, 

So sorry its been so long. How are you getting on? Any updates? 

Hello! All is good thank you, I am back again next week for more MRI results but they think that the “tumour” was actually an intramuscular tear from an injury, showing as a vascular mass. So no big C over here. How are you doing??

Hi. I'm so glad you have good news. I bet your so relieved. I wonder what caused that, did you have some sort of injury? Not good news this end unfortunately. I had my follow up mri and the lesion has grown. I've since had a biopsy and am still waiting for the results. It's been weeks and still nothing so I'm guessing it's not good news. The radiologist told me at the biopsy that there are some areas of the lesion that they are concerned about. My anxiety is another level at the moment. 

Sorry to hear this! How’s it going now? 

Hi. I’m really sorry I totally forgot to come on and update. To be honest it was a very long process to get my final results. From initial mri to final results were 6 months, 3 months of that was watching and waiting for a follow up mri to see if it had grown. Mine came back from the biopsy as a type of lipoma. It’s quite rare and deep in the muscle. I have been advised by the sarcoma team to leave it alone. My main concern was what if they haven’t been able to biopsy all of it and if they have missed anything but they have assured me that because it’s small they have checked it thoroughly. It was an incredibly hard time but the team were very supportive and informative. If you have questions or need anything they are there for you to lean on. I’m so sorry you are both going through this and I know how hard it is.

sending hugs!

You have no idea how lovely it is to get a reply- I’ve been sent to the Nightingale in Exeter and waiting for US. My original post said Avon as it spell checked it from the work Devon ! I can’t change the post!

I’m so pleased for you that it wasn’t worse case diagnosis. I think these things are very scary. I’m trying hard not to catastrophise. Are they going to scan you regularly? 

I’m so pleased for you that it wasn’t worse case diagnosis. I think these things are very scary. I’m trying hard not to catastrophise. Are they going to scan you regularly?