Sarcoma

Hi, im George, 34 year male from South West Devon, recently I've been suspected for soft tissue sarcoma on my left upper arm, i have big lump in my muscle, nhs refereee to the sarcoma specialist and they proceed with scan, ct, and biopsy but after all that they are reserved and didn't put a diagnosis, in few days they will proceed to remove the lump and after that they can be more exactly wit diagnosis but on all my letters written sarcoma excision. Today i spotted in my right arm in the exactly position like on left arm another lump but looks more smaller, there is any chance to be something else because I've seen on internet is very rare to have two sarcomas? 

  • Hello, they couldn’t tell me a lot at my appointment, it was a “wait until we get the MRI report then we’ll make a plan for what’s next.” And I’m still waiting for that plan to be made! I never formally got my MRI results, I just read them in the NHS app and called the consultant’s secretary (they still haven’t returned my call). So just in a state of limbo. How are you feeling today? With respect to your friend, she may be a nurse but that doesn’t seem to be the most supportive conversation! I appreciate that she is wanting to be honest with you, but nobody knows anything until you have your results. Everything at this stage is speculation, so try not to take on board what your friend has said. Enjoy the long weekend with your little ones and just await the results from a medical professional who has actually had sight of your report and the images!

  • Hiya, 

    So sorry its been so long. How are you getting on? Any updates? 

  • Hello! All is good thank you, I am back again next week for more MRI results but they think that the “tumour” was actually an intramuscular tear from an injury, showing as a vascular mass. So no big C over here. How are you doing??

  • Hi. I'm so glad you have good news. I bet your so relieved. I wonder what caused that, did you have some sort of injury? Not good news this end unfortunately. I had my follow up mri and the lesion has grown. I've since had a biopsy and am still waiting for the results. It's been weeks and still nothing so I'm guessing it's not good news. The radiologist told me at the biopsy that there are some areas of the lesion that they are concerned about. My anxiety is another level at the moment. 

  • I know this is an old post. But I also live in Devon and they also found a suspected soft tissue sarcoma but for me it’s in my thighs. I had an MRI & have been referred to both 2ww and one stop diagnostic service. The waits killing me. How long did you have to wait for your results?