Hysteroscopy Support

Hi. I'm new here and just wanted to share my story to see if anyone has been through similar. I am 37 years old & 2 years ago they found CGIN following a regular Pap smear. I had never missed a smear check but this time round I had abnormalities. I had a colposcopy & have had routines checks each year. Last year I started getting irregular bleeding with one bleed lasting 3 weeks & black in colour. Following 2 ultrasound scans they found 18mm endiometrial thickness, polyp in my womb & cysts on my ovaries. Last week I went for a hysteroscopy but it had to be abandoned due to my cervix refusing to open due to scar tissue & the consultant finding more growths within my cervix. She managed to cut one away & send for a biopsy but I'm now booked for a hysteroscopy under general anaesthetic (hopefully quickly). I will add that the pain was horrendous with no pain relief & not recommended. 
I am feeling a little apprehensive so would love to hear if anyone has a similar experience they wouldn't mind sharing & what their outcome was. 

  • Welcome to Cancer Chat Dlouise although I'm sorry for the reason you're joining us.

    I've had a quick look through the forum and found that [@Ambrose]‍ and [@jayne2021]‍ have had a hysteroscopy under general anaesthetic so hopefully they won't mind popping by when they can to share their experiences and advice.

    Our team of cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them as well.

    In the meantime, we're all thinking of you and hope all goes well with your hysteroscopy when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph,

    thank you for your reply I appreciate your support. I am reading lots of forums and threads and finding the community really useful. 
     

  • Hi Dlouise11, 

    i had unusual bleeding and was referred for a hysteroscopy and biopsy after an unltrsound revealed ovarian cysts and 18mm endrometrial thickness. 
    I had a local anaesthetic injected into the neck of my womb but found the biopsy super painful so they had gas and air on stand by which I took advantage of! 
    At the same time they fitted the mirena coil to help reduce the thickness. My thickness had lumps and polyps growing on it and must say I was really worried especially as my consultant looked concerned and repeatedly told me my thickness was 'extensive' 

    Results back today, no malignancy or atypical cells found which was such a relief. I was so convinced I had cancer. 
     

    Hope your procedure went well x

  • Hi Racmarfle,

    thank you for your response. I am so pleased your results came back fine. 
    I am feeling okay still waiting for a date for my hysteroscopy but have come to the conclusion what will be will be. Keeping everything crossed for positive news. 
     

    I appreciate you replying to my message. 
    Best wishes. 

  • Hey, I've just seen this post and I was wondering how you're getting on. I am getting a hystercoscopy under a general this Monday. The biopsy from my colposcopy came back with CGIN so more investigations need to be done. Have you had yours now and how did it go? I'm so nervous about mine. 

  • Hi there

    Sorry to hear you are currently undergoing investigations. I had my hysteroscopy where they found some benign polyps and did a biopsy on my womb which also came back clear. I had previously had CGIN too but that had been burned away via a Lletz procedure and fingers crossed all remains well. 
    try not to worry too much as I was so convinced I had the big C especially with my previous history and how thick my womb lining was but all my investigations came back clear and negative if any pre cancerous cells. 
    good luck and keep me posted. 

  • Thank you for replying and I'm so glad you had a positive outcome. Fingers crossed I do too. Can I ask was your hystercoscopy done under a general? I've never had one before. Can I also ask about recovery/pain/symptoms to expect afterwards. Thank you so much. x

  • I had to have mine under general as the first attempt without wasn't successful due to my cervix refusing to open. It was a really simple procedure and I was in and out the same day. I was very lucky not to really suffer with any cramps or pains afterwards. However I did get mouth ulcers for a couple of weeks after but that's what happens to me when I've been a bit run down. 
    I hope it all goes well for you and get a positive outcome. CGIN is easily treatable and it's good they are being thorough and checking everything out. X

  • Thank you. My consultant scared me yesterday but saying he didn't know if it was cancer or not and this is why he was doing the procedure. The delivery was quite blunt but I understand no doctor can give you guarantees. It did frighten me though.