Colposcopy Referral - Stressing so much!

Good evening

I had my smear test just under 4 weeks ago and received a letter today. I'm 37 and my smear tests have always come back clear until this one. It says HPV Positive and high grade (moderate) dyskaryosis and that I should get an appointment in the next 5 working days. 
 

I am a nervous mess already, thinking of the worse and just wanted some advice from anyone that's been through it no matter the outcome. I have read the booklet and probably made the mistake of going onto the nhs site so would really rather hear from anyone that's been through it. Cancer unfortunately runs in my family so that's doesn't help the mind wondering off course. I've had changes to my discharge, more regular need for peeing and even loss of control there too, pain to pelvis and back and also a considerate amount of bleeding in sexual Intercourse. Something that had never happened before. 
 

I would really appreciate anyone that can share their stories just so I know what to expect, whether good or bad please! 
 

x

Parents
  • Currently waiting for my Lletz treatment to remove cin 3 abnormal cells following an abnormal smear that indicated only low grade changes.  So am worried all the time.  I also have odd and worrying symptoms.  Pelvic pain, a couple of bleeds between periods and also lower back pain and uti symptoms (but it's not!). I'm really worried what they'll find after the lletz treatment. I'm 44 and came off mini pill about 9 months ago due to many hormonal issues.  Just can't stop thinking the worst.   Let me know how you get on. X

  • Hi ML2519

    Thanks so much for your reply. I understand that worry completely and feel for you. The waiting for me is the worst part. I'm awful with waiting and just always fear and think of the worst. I'm terribly with pain so dreading my colposcopy on Monday. I have the coil fitted so if they confirm the high grade they'll do the LLETZ procedure there and then which means they'll have to remove it so that's also now playing on my mind. I'm just so angry right now because I've been suffering these symptoms for over a year now and nothing was done. I finally managed to book a gynaecology appointing for next month but that's taken like a year because of covid etc! At the smear test the nurse went and got a doctor which always worries you and then at the end I said to her why did you go and get a doctor and she said the entrance of my cervix was red raw and inflamed. As I said what gets me the most is the waiting. I just wanna know and deal with it ASAP! I am such a wimp I am dreading Monday but it's got to be done. I will be thinking of you. Let me know how you get on x

Reply
  • Hi ML2519

    Thanks so much for your reply. I understand that worry completely and feel for you. The waiting for me is the worst part. I'm awful with waiting and just always fear and think of the worst. I'm terribly with pain so dreading my colposcopy on Monday. I have the coil fitted so if they confirm the high grade they'll do the LLETZ procedure there and then which means they'll have to remove it so that's also now playing on my mind. I'm just so angry right now because I've been suffering these symptoms for over a year now and nothing was done. I finally managed to book a gynaecology appointing for next month but that's taken like a year because of covid etc! At the smear test the nurse went and got a doctor which always worries you and then at the end I said to her why did you go and get a doctor and she said the entrance of my cervix was red raw and inflamed. As I said what gets me the most is the waiting. I just wanna know and deal with it ASAP! I am such a wimp I am dreading Monday but it's got to be done. I will be thinking of you. Let me know how you get on x

Children