Inconclusive thyroid biopsy and 4 month wait

I went to an appointment at the hospital as a different scan had picked up a thyroid nodule. Upon going to the hospital appointment I was scanned and then the radiographer said as it was an inch in size and didn't look great I would need a biopsy. The biopsy came back as inconclusive at the time and the consultant said they needed sending off for testing and I would get the results 4-5 days later.

Day 8 of not knowing if I have cancer or not and I ring the consultants secretary who doesn’t ring me back. 

Day 11 and my  GP is tasked to chase the results... but doesn’t. I rang another (grumpy) secretary who says yes there is a letter on the system I will send it to you. 

Day 12 the letter still isn’t here so I ring the Docs and the receptionist says they have a copy of the letter and ask if I would like to collect it. I do collect it but it was dated 12 days ago (the day of the biopsy) and it’s just to inform the GP I had a biopsy and the results have been sent off, not the results I was promised.

Then after another 5-6 calls I speak to another secretary who says the results are in and the consultant will review. The consultant finally gets back to me... via letter, to say my results are still inconclusive so still unsure if cancer or not but let’s just wait 4 months and do another biopsy.

I am beyond angry for how this has panned out and I'm also nervous about waiting 4 months which is what has been suggested for another scan and another biopsy . Has anyone had a similar experience and what was the outcome?

My thyroid is already dead and I'm on thyroxine so I'd rather it's  just taken out of there is any chance it could be cancerous. 

  • Hi Hayhay and welcome to the forum.

    I'm really sorry to read what has happened and can completely understand your frustration.

    Many of our members know how tough it is to receive numerous inconclusive results and cope with the uncertainty this situation brings so I'm sure some of them will be along soon to share their experiences and advice.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Hayhay,

    I'm so sorry you're going through this. A couple years ago I went through a similar nightmare wait after a lump on my right side of the neck and I basically couldn't get any conclusive results until they did the thyroidectomy. They had that to get that scheduled and so that was months. 

    Everything began in May when I got unwell and ended up in hospital with a fever and really bad swollen lymph nodes. When the swelling went down but they found the lump didn't. They did the scans and biopsy. The results werent clear and the size meant they decided the best to take it out for a proper conclusive examination. 

    I had my surgery end of October that year. The months in between sucked. The thing that bothered me most I did go to my GP before but nothing happened until I ended up in hospital after I got ill with unrelated thing. 

    The thing I regret and hate the most is all that wasted time being afraid and miserable and appointments and scans and waiting. When it all turned out to be okay. I know I'm grateful and I hope yours turns out okay too. But I kept feeling like if it was in fact cancer in the end all that misery and fears would've made more sense. If you know what I mean? 

    But the truth is until they day it's not cancer...you're kinda gonna be living like it is. So it's okay to feel frustrated and worried. 

    *Hugs. 

    Hope things start moving along faster and you get your answers.

    Best wishes,

    Bee