Worried about my dads seizures

I need to first disclose that my dad has not had any diagnosis of any kind..so I hope it is ok to post this..

 

A few months ago he started having what looked like absent seizures every few weeks. These have progressed and he now has full seizures 2-3times a week - he is aware they may be coming on, has involutary movement of his arms and gasping of breath but remains concious/unaware. Afterwards he is dazed - not sure of what day/time it is or what he has been doing for the past few hours or so.. 

 

He has a telephone apt with a neuro triage nurse in a couple of days and hopefully will be referred for an MRI - but has been advised this could take up to 27 weeks (not sure if this will change depending on when he explains his situation). I am keen to send him to a private MRI scan because I can't wait around to see what is going on.Covid at the moment may mean services are more strained than usual. 

 

My reason for posting is because I am going out of my mind thinking the worst and the 'not-knowing' is awful. 

I wondered if anybody has had similar experinces and what the outcome/diagnosis was. I know I can't make any assumptions until he has had the relevant tests but I am just so worried and need to prepare myself for what may be to come. 

 

Aside from the fits he seems fine (he is a typical 'bloke' and refuses to admit that he is unwell) He says he is getting better but the fits are getting worse and I am so worried. I think if he had any other symptoms (headaches etc) he wouldn't admit it anyway.

 

Sorry for the long post. 

Parents
  • Hi louise88f,

    Welcome to Cancer Chat. I'm sorry to hear of the symptoms your dad is experiencing and I can imagine the uncertainty must be really difficult for you, especially if he may not always be admitting how he's feeling.

    Hopefully he'll be having the appointment soon and I hope that is helpful and leads to some answers even if there is a bit of a wait involved.

    If anyone here has any similar experience to share then hopefully they'll be along soon.

    I hope you find out more before too long. Wishing you all the best,

    Ben
    Cancer Chat Moderator

Reply
  • Hi louise88f,

    Welcome to Cancer Chat. I'm sorry to hear of the symptoms your dad is experiencing and I can imagine the uncertainty must be really difficult for you, especially if he may not always be admitting how he's feeling.

    Hopefully he'll be having the appointment soon and I hope that is helpful and leads to some answers even if there is a bit of a wait involved.

    If anyone here has any similar experience to share then hopefully they'll be along soon.

    I hope you find out more before too long. Wishing you all the best,

    Ben
    Cancer Chat Moderator

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