Hi louise88f,

Welcome to Cancer Chat. I'm sorry to hear of the symptoms your dad is experiencing and I can imagine the uncertainty must be really difficult for you, especially if he may not always be admitting how he's feeling.

Hopefully he'll be having the appointment soon and I hope that is helpful and leads to some answers even if there is a bit of a wait involved.

If anyone here has any similar experience to share then hopefully they'll be along soon.

I hope you find out more before too long. Wishing you all the best,

Ben
Cancer Chat Moderator

Hi, im on here because my dad had essential thrombocytosis but I came across your post .

I was diagnosed with epilepsy in 2017 after a tonic clonic seizure in my sleep since then I've had absence seizures and focal seizures ...all tests ive had mri ,ecg, eeg  brain etc have all came back clear "no seizure activity " to catch activity on a scan u need to be having a seizure at the time.  I was started on medication after my first seizure because my friend managed to record some of it .my next one was witnessed by paramedics ... my advice would be wear a fit bit and record anything you see ,the more proof you can provide to neurologist the better and quicker they can treat your dad. Good luck 

Thank you for your reply.. since my original post he has been diagnosed and started medication for epilepsy last week, but we are still waiting for a scan (although they did say this wasn't urgent and from what you said it may not give us anymore information anyway unless it does show a tumour/lesion). Seizures have gotten worse but it's early days on the medication so fingers crossed. Thank you again I appreciate you reaching out. I hope you are keeping well. Best wishes x