FIBROIDS

Since November i have been experiencing severe abdominal pains on the lower right hand side that wake me up suddenly in the night, i go to move my body and is pain is even worse (like someone stabbing me and twisting the knife) this lasts for a few minutes the pain then eases off and i drify back to sleep, i then wake up feeling so heavy in my vagina and my stomach feels lumpy. I suffer really bad with bloating  and can  pass off as 6 months pregnant, im forever wearing baggy tops.

 

i went to see my GP who gave me blood tests, smear & swabs which all came back normal

 

I called the GP back and asked if they could refer me to a gynaecologist as i was still experiencing the stabbing feeling, they suggested i have an ultrasound done first.

I had an ultrasound and she found that i have multiple fibroids, she seemed rather concerned about one on my right hand side, she said it looked infected but also said that a gynaecologist will explain all to me.

I then received a call from my doctor who said he had sent out an urgent referral to see a gynaecologist and its to see if i have cancer, he was very blunt on the phone, i mentioned that the ultrasound lady said she could see an infection and he said that theres nothing on my notes about an infection - just a complex structure?

Im 40 with no kids my cycle is very normal my only symptoms are the bloated stomach and the abdominal pains 

I feel like i cant relax and i am so shocked at how abrupt he was, i kept on asking him questions and all he could say is not to worry. 

 

Has anyone ever experienced anything like this 

 

thanks xx

  • Hi Lisa

    I suffered with painful fibroids for a long time. I was diagnosed via ultrasound and was told one was the size of a 6 months my pregnancy so my stomach reflected that.

    First gynaecologist wanted to do hysterectomy and said that was the only way to get rid of them.  At the time I was looking after my mum who had massive stroke so refused.

    I lived with them and the pain for a while then got second opinion and had zoladex injections for some years which did shrink them. I am now in the menopause and they seem to have permanently shrunk.

    At the time they were really painful on and off and my stomach was really big. 

  • thanks for your reply 

    Did you experience the pain in the middle of the night ? as thats really the only time i have pain 


    Glad to hear that all is okay now. This forum is really putting my mind to rest 

     

  • Hi

    I experienced the pain randomly throughout the day and night. 

    The gynaecologist thought it was the position of the fibroids and them pulling on ligaments. 

    The pain was sort of in my groin but really bad. X 

  • When your doctor referred you, did he metion cancer?
    is it normal for them to say its a refferal for Cancer

    I cant get that bit out of my head, 

  • Hi Lisa

    To be honest no he didn't but I didn't ask either. My stomach was that big he thought I was pregnant and did a pregnancy test.

    This all started about 10 years ago and since then a few of my friends have been diagnosed with fibroids and some have had no symptoms. 

    The gynaecologist was quite shocked about how big mine was. 

  • hi, I have severe endometriosis which took a long long and very excruciating 14 years to get diagnosed. Like you I also currently have fibroids and one is the size of a kiwi! I’m awaiting my second major surgery to cut out endometriosis tissue and hopefully the fibroids too, I completely understand and also think it might be worth you asking to have a diagnostic laparoscopy to check for endometriosis (it can only be clinically diagnosed by a lap). It’s a truly awful horrible disease, I’m in my early thirties with no children. Was waiting to start ivf but lost my partner to covid months after we completed our fertility workup. I do hope you get to the bottom of your fibroids I know how worrying they are! I hope you feel better soon, take care x

  • Hi, I'm not sure what's going on with me gynaecologically so won't comment on that just now. I felt I couldn't read and run. I want to say how sorry I am for what you've been through. I hope you're coping. Stay safe x

  • I'm 28 years old and Mine was the exact same but only because after they found a 7cm fibroid in my womb then I had a smear test which came back positive for HPV and change in cells .. now I have to go for a colcoscopy on Monday to find out wether it's cancerous or not .. it's so hard to stay positive.. everything feels like it's taking forever :( best of luck to you, I hope everything is okay 

  • Thankyou that’s really kind, have a lot going on & will be discussing further with Macmillan this morning (am a bit nervous as it’s the first time!) I hope your gynaecological problems can be treated or managed once you know what’s going on. Sending best wishes to you and positive thoughts x

  • I’m so sorry to hear your going through a worrying & distressing time. I really hope your results come back ok! remember, whatever the outcome....were all here whenever you want/need to discuss or let go of emotions. Take care and I do hope everything goes alright on Monday x