FIBROIDS

Since November i have been experiencing severe abdominal pains on the lower right hand side that wake me up suddenly in the night, i go to move my body and is pain is even worse (like someone stabbing me and twisting the knife) this lasts for a few minutes the pain then eases off and i drify back to sleep, i then wake up feeling so heavy in my vagina and my stomach feels lumpy. I suffer really bad with bloating  and can  pass off as 6 months pregnant, im forever wearing baggy tops.

 

i went to see my GP who gave me blood tests, smear & swabs which all came back normal

 

I called the GP back and asked if they could refer me to a gynaecologist as i was still experiencing the stabbing feeling, they suggested i have an ultrasound done first.

I had an ultrasound and she found that i have multiple fibroids, she seemed rather concerned about one on my right hand side, she said it looked infected but also said that a gynaecologist will explain all to me.

I then received a call from my doctor who said he had sent out an urgent referral to see a gynaecologist and its to see if i have cancer, he was very blunt on the phone, i mentioned that the ultrasound lady said she could see an infection and he said that theres nothing on my notes about an infection - just a complex structure?

Im 40 with no kids my cycle is very normal my only symptoms are the bloated stomach and the abdominal pains 

I feel like i cant relax and i am so shocked at how abrupt he was, i kept on asking him questions and all he could say is not to worry. 

 

Has anyone ever experienced anything like this 

 

thanks xx

Parents
  • Hi...I read ur post and ur symptoms resemble mine.  I was told at 29 I had one fibroid but as it didn't seem to cause me pain it was just left.  Although I suffered with heavy periods, back pain and bad PMT all my life.

    About four years or so ago my bleeding became very bad.  I am a postwoman so this caused me problems.  I had to wear tampons, thick pads and cycling shorts under my trousers as nowhere I could go to use loo.  I ended up getting the coil which was so painful to get inserted.  This worked for about two years.  So they told me the coil may shrink my fibroid.  This did not happen.  Ultra sound revealed I have lots of fubroids but I have a 6x6 one on my right hand side which causes me daily back and groin pain, fatigue, bloating.  It wakes me up as I cant get comfy.  I need to pee all.the time even wen I'm empty.  Not good wen out on delivery.

    Due to Covid I had to wait 18 months from my hospital referral date.  I am due to go in for an abdominal hysterectomy once they finally send me my date.

    It seems that fibroids are an accepted thing for women and we are left to just get on with it even when it causes us pain and can be quite debilitating.

    I have never been in hospital or had an op or any anaesthetic so I'm very nervous to undergo a big op my recovery time in 6-8 weeks.  Sorry for rambling but this is huge for me as I am divorced, 49 years and no kids so it's kinda final.

    *A wee update*  I received a letter from hospital and thought it would be a date for op.  Unfortunately it was a letter informing me my appointment will be scheduled three months after the letter and will be between six months to a year after that so as late as next October.  Seems such a long time after waiting so long already but I understand there are more serious ops than mine.  Fingers crossed I get it sooner rather than later xx

Reply
  • Hi...I read ur post and ur symptoms resemble mine.  I was told at 29 I had one fibroid but as it didn't seem to cause me pain it was just left.  Although I suffered with heavy periods, back pain and bad PMT all my life.

    About four years or so ago my bleeding became very bad.  I am a postwoman so this caused me problems.  I had to wear tampons, thick pads and cycling shorts under my trousers as nowhere I could go to use loo.  I ended up getting the coil which was so painful to get inserted.  This worked for about two years.  So they told me the coil may shrink my fibroid.  This did not happen.  Ultra sound revealed I have lots of fubroids but I have a 6x6 one on my right hand side which causes me daily back and groin pain, fatigue, bloating.  It wakes me up as I cant get comfy.  I need to pee all.the time even wen I'm empty.  Not good wen out on delivery.

    Due to Covid I had to wait 18 months from my hospital referral date.  I am due to go in for an abdominal hysterectomy once they finally send me my date.

    It seems that fibroids are an accepted thing for women and we are left to just get on with it even when it causes us pain and can be quite debilitating.

    I have never been in hospital or had an op or any anaesthetic so I'm very nervous to undergo a big op my recovery time in 6-8 weeks.  Sorry for rambling but this is huge for me as I am divorced, 49 years and no kids so it's kinda final.

    *A wee update*  I received a letter from hospital and thought it would be a date for op.  Unfortunately it was a letter informing me my appointment will be scheduled three months after the letter and will be between six months to a year after that so as late as next October.  Seems such a long time after waiting so long already but I understand there are more serious ops than mine.  Fingers crossed I get it sooner rather than later xx

Children
  • I'm sorry to hear that you're having to deal with all this alone. And you're right.. It seems like many gynaecological conditions such as fibroids are kind of left to linger and for us to deal with for quite some time sadly.

    I hope you managed to get a date for your op. And pray things go smoothly for you.

    Take care

    Myla