Hi

i understand your worry I'm 33 years old, I too have a thickened endometrium lining mine is 12-13mm. I have a TVS and biopsy on 8th December which come back negative. Just yesterday I have D&C with general anaesthetic and hysteoscopy. Now to wait the result......2 weeks no doubt. I would like to hear your results I hope and pray you receive good news. It's an awful worry. 
 

take care 

x

Hey ,

its a worrying time isnt it .  Doesn't help with being lockdown , just gives us more time to worry.

i am trying to stay positive ... please let me know how you get on .  I will let you know how things go tomorrow .

i have to say my treatment so far had been amazing so efficient,

cant praise the NHS enough

Take care

I had a scan on Monday and within less than an hour of leaving I was told that I'm being referred on the urgent pathway for cancer. They said my lining is 21.1mm and I'm really worried as can't find anyone else with such a thick lining? 
 

How did you all find the hysteroscopy? I had a call today to try and get me in tomorrow morning but they never called back to confirm as I have requested GA due to an issue with the process in the past, so now awaiting another call in the morning and told likely Friday. 
 

I'm thinking I will just have to grin and bear the pain and have it without GA due to the urgency. It's all I can think about and feeling so stressed by it all. I'm 36 and a mum to three young girls, worst thoughts driving me crazy. 
 

Hey there

I had original TVs and biopsy done just in the office, booked for hysterosopy last Thursday, I couldnt deal with it so I went in on Monday for GA. best option by far. 
 

it's a very worrying time xx

Thanks so much for the reply, I'm feeling so anxious. 
 

Can I ask what TVS is? Maybe I should go Friday and have the biopsies etc done but continue to request GA for hysteroscopy. 
 

It's really helpful to read your experience x 
 

Tvs is just short for transvaginal scan. 
 

same. My anxiety is through the roof with it all. It's the not knowing and waiting that's the worst. I go through spells if feeling really positive and then down times of what if this or what if that etc I'm putting my own head away but only human at end of the day. 
 

if they give you an appointment on Friday just go and see what you can get from that appointment. 
 

in respect of your lining measurements, at what part of your cycle was this measurement done? hope you don't mind me asking that xx
 

Oh I see, thank you so much for clarifying. Yes my scan on Monday was TVS. 
 

I think I will go on Friday regardless of whether they accept my request for hysteroscopy via GA, as it's all I can think about at the min and like you say, may be able to get a biopsy at least. I'm now just wishing I'd just said yes to going tomorrow morning so I can just move on to the next stage of this process 

I don't mind the question at all, I'd stopped bleeding the night before the scan. I think that was even more cfc? Do you know anything in relation to lining and stage of periods that would help me? To me it seems scary to be so thick post a heavy period? 
 

Hey I'm not sure about the lining thickness I'm just trying to piece everything together in my head as to why they think mine is cfc ‍♀️. Mine was 13mm around 4th day after period had finished. I know during D&C and hysterosopy dr has said she expected there to be a polyp which she would remove but after she told me no polyps, no fibroids. I don't know if this is a good thing or not
 

hope all goes well for you today ceecee please keep us posted. Sending hugs & prayers xx

MumofKhiana, what will be the next steps for you now? Did the D & C clear the built up lining?
 

My hysteroscopy is now next Wed and looks like I'll be awake so feeling quite anxious about that. :/ 

I've been thinking of you today too ceecee and hope you are ok xx 

Morning Minnie84

It's another waiting game for me now, I just need to await my biopsy results from the D&C. I think around two weeks they said but I'm not sure as was just coming round from anaesthetic. I just want this process behind me now I'm so exhausted with it all. 
 

xx

Morning MumofKhiana,

Waiting is the worst isn't it, I'm kicking myself for not taking the appointment yesterday if I'm going to have to go through the process without GA on Wednesday anyway. So worried I'm not going to cope with it :/ and then more waiting to re-do it with a GA. 

I really hope that you find ways to distract yourself over the next fortnight. At least we have each other on here if we just need a vent! 
 

Hope you have a restful day x 

Hi just came accross this thread, how did your results go? My lining is 17mm and i have a numerous polyps the largest measuring 14mmx10mm

im a mum of 3 kids, am 34 and feel worried sick iv already had a failed hysteroscopy as they could not access into my cirvix, awating another appointment next week to discuss a GA

how has your experiance been?

christina x

Hi just came accross this thread, how did your results go? My lining is 17mm and i have a numerous polyps the largest measuring 14mmx10mm

im a mum of 3 kids, am 34 and feel worried sick iv already had a failed hysteroscopy as they could not access into my cirvix, awating another appointment next week to discuss a GA

how has your experiance been?

christina x

Hi lovely, 

 I just wanted to message becauae I know how you feel. I have had my scan on the 22nd which revealed fibroid, pcos, bulky ovaries, bulky uterus and also a 15mm thickness at the "fundal aspect" I'm still not sure if that means the entire endometrium is thick, or just that bit. 

I'm googling frantic and crying my eyes out while I await the 2 week referal to the gyno. 

I'm not sure what is what, and I wanted another baby. However, I'm 38 now, my son is 15. I am happy to have it all taken away. I am in agony with what feels like stabbing pain in my ovaries. :cry:

How are you?  Did you have your tests done? So far I had a pelvic ultrasound and a vaginal one. 

Let me know how you are, and I am here if you want to talk. xx

 Hiya hun! 
 

Hopefully they will get you seen asap, an at least give you some reassurance. Thats the worst part is not knowing and just waiting isnt it.

i should have been seen last wednesday but on my way there they cancelled the clinic as they realised they had no Dr! I was furrious, the only next appointment i can get is 18th august. So again its just more waiting and worrying.

hopefully you will be in sooner its great they have done yours under 2 week rule, did they mention a hysteroscopy? I had it done as an outpatients but they couldnt get into my cervix.

i hope you are feeling a little bit better, its the waiting and not knowing isnt it . Did you have heavy periods too? Mine was literally due to becoming aneamic an then realising my periods where way heavier than what it should be (i just presumed it was normal) but then bleeding in between periods now. 
 

take care and i hope these threads ease any concerns. Feel free to message me xxx

Hiya lovely, 

I have had to chase the referal because upon ringing the contact centre it had not been sent. :neutral:

It's been done now, marked as urgent. 

I knew instantly something was off. I have always suffered with missing periods, I could go a year at one time without seeing anything at all.  Then they became every 6 month, 4 months and whenever they wanted. I became regulat and had my son who is now 15. However, a year after having him I was irratic with periods again. I was used to this being normal for me. 

In 2018 I saw a gyno due to us wanting another baby. He blamed it on weight and BMI and gave me 12 months of slimming world access free. I had to get 2 stone off in 3 months and he would give me some treatment to make me ovulate. Also at that time he ordered ultrasound and a dye into my ovaries. All of that was clear, and the Trans Vaginal Ultrasound was not needed because I lost 2 stone and began a regular cycle. 

From July 2018 to Nov 2019 I was as regular as clockwork. I missed Jan 2020 and then began to see periods once every so often. In 2020 I had 3 periods in total, with September being so heavy that I was losing clots the size of my fist. And one weird clot after my period had completed that was the shape of the uterus. 

I saw not one, but 2 of my GPs about this. 

One said this is called a uterine cast, and it is often perfectly normal, sse how you go. 

I then missed every month, saw my GP in Feb this year due to breathing issues and mentioned the above and no periods. He blamed my weight gain as I have gained that 2 stone plus some. At the time of that visit I was 15.5 stone, from 12stone. So 3 stone gain, but at my biggest. 

I have underactive thyroid, so I contined to take thyroxine and rejoined SW. 

19th June (I have lost half of a stone) I saw blood in mu underwear and thought "yay, finally!" 3 days that spotting lasted. 

Still I shrugged it off, thinking its just an unusual period. However, the following weekend I had so much pain in my right side, I couldn't stand, it was like a sharp stabbing. That pain persisted for 11 days and I finally gave in and saw my GP as I had began spotting again. 

I then bled for 13 days, some days heavier than others, not any day like my usual periods as I have always had clotd and now not a single clot. I did start and see a couple of tiny clots towards the end. 

I saw the last bleed on the 19/7/21 followed by spotting on the 20/07/21 nothing on the 21/07/21 and all day on the 22/07/21 I saw nothing, so much so that I was tempted to put it down to another odd period and cancel the scan that evening. I'm so glad I didn't.  

I was scannes abdominal and internal at 5pm on Thursday 22/07/21 she would not tell me a damn thing. Which then caused me to fear the worst. 8pm that evening I saw a small bleed on toilet tissue. Nothing at all since. 

My GP called me the morning of the following day with results 23.7.21 

I have a bulky uterus, it is antreverted 

polycystic ovaries that are bulky

a 35mm fibroid 

and a 15mm thickening at the fundal aspect (so at the top)

Sending me to gyne to discuss hysterectomy. 

Guess what I did after that call? 

Googled everything, and what does it say for thickening? 

I have done nothing but think the worst. I'm beside myself. 

Hope you are doing ok,  likewise feel free to message me. It's so good to have someone to speak to. My friends and family don't really know what to say to me. xxx

Hey!!

how have you been? Have you had any appointments yet?

i am still waiting to see the dr (18th august i go) after my last appointment got cancelled so i am very much still in the dark about what they are going to do seeing as they could not do the hysterosocopy. 
 

the worst thing is definatly the waiting and not knowing

hope your well

xxx

Hi hun  

No gyne clinic appt yet, I have my visit on the 19th but I'm wondering what will actually get done on that date due to that I already had the scan. 

On Tuesday I was rushed to hospital with abdominal pain.. I saw 2 gyne one in A&E and one on ward. Both say my pain is unrelated? But the consultant gyne feel my thickening will clear with progestin but still need hysteroscopy and biopsy to tick boxes. 

Been for ultrasound as my liver ALT is high, I have fatty liver and diverticulitus but they didnt say much more only that I can be discharged.

I'm hoping my GP can see scan results because I fear they didnt tell me everything as the woman checking my liver asked when I last ate... 

I'm so sorry that you are in the dark like this too, it just irks me that they don't do much other than put us in clinic appointments. My hospital couldnt decide if I need gyne or surgeons and pass me from one to other. 

Are you in any pain at all? 

My pain is in my bellybutton and then same level right and left but closer to hips. 

xxxxx

Hi! How have you been? Did you get your hysteroscopy?

i ended up having a GA for my hysterosocopy as they failed it in clinic when i was awake, i wasnt in pain they just couldnt get into my cervix.

fast forward to 20th sep... had the procedure was told I would get a letter in a few days after surgery. Its been 2 and half weeks not got any letter, called gynae clinic up for my results from the biospy of my thickened endometrium an polyp ressults.... guess what ... there missing!! Dont think they even went to the lab! Honestly feel so frustrated even more so as its the same hospital that miss diagnoised my dad with a "nasal drip" when he infact has thyroid cancer. Dont really know what that means if they have lost the biopsy samples. Waiting for a call back was meant to be today, never recieved a call. Going to call again tomorrow. Just want peice of mind an reassurance.
 

hope you have been ok xx