Hi Lucy747 I'm so scared because the nipple burning and itch is getting more frequent. At first it came and went but now it's here everyday. I'm also very tired and I'm so worried that the doctors don't know what it is so I'm praying when I see the Breast Clinic in 2 weeks for a second opinion they will find out what it is. I've never had any problems with my breasts so I know there is something wrong. 

Hi both,

Just wanted to leave a quick message to say that I have experienced this before, right breast and nipple were itching like mad for four months. I thought it felt quite warm too, but I think I had googled so much, I was focussed on things I wouldn't have noticed before. 

I went to my GP who reassured me that there was nothing there. A few months after I ended up with a mammogram for a totally unrelated cyst but they didnt find anything relating to the itching either. After a while, it just went away on it's own.

It's always good to be vigilant with your health as you both have been, but sometimes are bodies are just plain weird and there is no reason at all for the things it does :)

Take care and hope everthing goes well x

AJ

I was exactly the same. I was convinced I had IBC. When I said it to my GP, she basically said IBC would present with a very noticeable rash or severe reddening. We are all guilty are visiting Dr Google then diagnosing ourselves! I was so convinced my boob felt a lot warmer than the other (which it probably was because I kept scratching it!), I was also convinced that my nipple was swollen and was bigger than the other. (It wasn't). 

I wont say try not to worry as I know its impossible! One Dr once said to me 'Please try to remember that your 20 minutes on Google does not compare to my 20 years of medical knowledge and experience!'. Its good advice :laugh:

AJ x

Many thanks. My itch is inside so i can't scratch it. I was very upset when I went to the first breast clinic because the consultant was really uncaring and said the tests have come back clear so you are discharged back to your GP and I was desperate to know where I should go from there because nothing had changed I still had the burning and I still have the itch that's why I asked my GP for a second opinion because I'm desperately trying to find out what this is. Thank you so much for taking the time to give me hope and advice.x

Hi I hope you are doing better now. I read your post and I could have written it. I have had a slight red itchy left nipple for years now. I had a mammogram and 2 ultrasounds they all came back clear. I was referred to a dermatologist but because I don't have a rash she won't do a biopsy. She prescribed fluconazole she reckons it's a yeast or fungal infection I must say that for about a week my symptoms disappear but it came BACK and I don't know what else I can do. They must think I'm mental and it's all in my head oh but don't I wish that was the case. Just wanted let you know that you aren't alone, take care, and don't stop until you get answers. 

Hi there. I have exactly the same symptoms as you have. It would drive you insane! I have fibrocystic breasts and am menopausal too. Due to see breast specialist in two weeks time (again) regarding the itching and to organise my annual mammogram. Did you ever get any answers/second opinions on your issues. You were so right to go further with it. I hope all is well!

Hi all

I've been on other forums on here but all are about lumps etc which I dont have my only real symptom is itchy nipples. Well at first it was both. I think it started maybe Nov/Dec time and was defintely both nipples. I wasnt at all concerned as I put it down to another result of menopause which I went straight into after the stress of losing my husband to cancer almost 3 years ago at the age of 46. The itching isnt persistent it comes and goes but when it comes it is intense. As I say it wasnt worrying me until on 11 Feb I noticed a tiny spot of discharge on the inside of my bra. Which immediately sent me spiralling and googling!!! . I went to gp who thoroughly examined me and found nothing she wasnt specially concerned but sent me for blood tests and referred me to breast clinic. Bloods (sugar, liver and kidney function and full blood count) have all come back clear which was a relief until I googled and it says they dont pick up breast cancer.!!! She also gave me hydrocortisone cream which did seem to help at first and I'd say now only the left gets itchy it's the left that had discharge and also now the skin of the areola on the left does seem slightly more raised. It's not red or inflamed, theres been a couple of pinhead sized bits of discharge but nothing much they may be from scratching, but google has convinced me I had pagets disease. I then googled again  and although I was relieved I hadnt found any lumps I'm now frantic that its inflammatory breast cancer. I am completely petrified I cant concentrate on anything I feel constantly sick at the thought of IBC. I have 2 kids who have been so brave since losing their dad but they couldnt deal with anything else and I dont know what would happen to them if I wasnt here as I've lost both parents too. .  My clinic appt is at last this Thursday 11th and it cant come quick enough but I'm dreading it at the same time. I so hope its nothing sinister I'm so so scared 

Jx

Hi Jujumama,

I hope everything went OK at the breast clinic for you. Did they figure out what was going on? Hope you've been reassured. 

JF

Hi JuliaF

Thank you so much for thinking of me that was incredibly kind.

I'm delighted to say that I was diagnosed with nothing more than nipple eczema. 

I can't tell you how relieved I am, I was utterly convinced that there was a more sinister cause of my issues.  It's not lost on me how very fortunate I am and I am so very thankful. 

My experience at the clinic was excellent, everyone was so lovely and examinations and tests (mammogram and ultrasound) were thorough so I feel so reassured that there is nothing else to be concerned about. 

If there is ever anything I can do to help or anyone ever wants to ask anything about my experience please get in touch. I wish you health, happiness and love. You are all in my thoughts and prayers.

Much love

Jx 

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Oh that's great news! I'm sure you must be so relieved. I can only imagine how stressful it must have been for you - you've been through a lot and this hideous pandemic doesn't help either. 

Stay well and safe!

JF x

Hello, 

I am reaching out to you as I am worried. I have dry, flaky skin on my right nipple. It was initially quite itchy, especially in bed at night. Then it became red as a result.   I was given a steroid cream, which I felt inflamed it quite a  bit. So I stopped. There was a little spot about 1cm on my aeroela, which was super dry to touch, but didn't always look red/dry. The last few days it's gotten really flaky again. It can be itchy at times - I feel it's connected to the types of food I eat but I don't want to be complacent. The doctor has prescribed me a stronger steroid and has ordered a swab to be taken of the tissue to rule out thrush. I'm honestly at my wits end - so worried. She said the next step is to arrange an app with the breast clinic. I can't cope with this at all. I'm 37, on oral contraceptives and never been pregnant, so I know these all make things trickier for me.

How long did you wait for apps/referrals and results? 

I'm really scared.

N x

Hello, did you ever get seen too about your issues? I'm currently experiencing the same and my anxiety is through the roof x

Hello, did you ever get seen too about your issues? I'm currently experiencing the same and my anxiety is through the roof x