Endometrial thickness 19mm

My story so far

Had scans etc in September 2020 and it showed 19mm thickening. Biopsy was showing no signs of cancer but was showing evidence of polyp. Hysteroscopy couldn't be performed properly due to intensive scar tissue (not sure where from as never had surgery)

October 2020 was phone consultation, choice given to try again as might have been fault with what she called "the telescope" as it was just showing blackness (thus was not the case and I don't know where this info came from), come in and investigate under general anaesthetic (too risky with covid) or another call in 8 weeks to assess bleeding etc. There hadn't been any other bleeding so I went with phone call.

 

December phone call lead to option of trying hysteroscopy again, this time consultant to do rather than hysteroscopy nurse.

 

Had that on Tuesday of this week. It wasn't the consultant but she was "sent for" and came in to look. She went to check notes as she was trying to "understand the delay" in getting me back in

 

2 pots of samples were taken for urgent biopsy and I am now waiting for them to get results as she will then get me back in to discuss the "plan of attack".

 

Absolutely terrified now - am I jumping the gun or does everything I've described mean its bad news?

 

I'm 53 with no family history - only had one bleed and wasn't even going to ring doctors. 

 

Would like to know I'd anyone has any advice or experience to share. 

 

Thank you for reading my very long rant x

 

  • Morning

    Have you had any results yet ??

    i am in a similar situation .

    although i feel everything is happening so quickly.

    i had a post menopausal bleed a christmas, within 2 weeks I had seen the doctor for an internal check up .

    all seemed well but she Sent me for a scan just to double check

    that scared the life out of me. , he was very candid made a few hmmm and arrrs but didn't say much except id like to do wn internal scan if that's ok?  I said if course but why ?? Ohhh just to get a better look around ? He was very vaigue with his answers .except the usual we will be in touch within 2 weeks.

    sooo fast forward 10 days ok later doctor rings..  my endometrial thickness was 14mm and soo she was referring me to hospital for a biopsy ?? 
    got my appointment within another 10 days and off i went when i got th

    here she had the scan pictures and asked could she also do a hysteroscopy . It wasn't that bad just uncomfortable, and they were so lovely.

    sooo another 2 week wait .. but within a few days i had a cooy of a letter from hospital to my doctor saying everything looked healthy aoart from the 14 mm thickening(cervix ect was healthy) but she has found a slight thickening on the posterior uterine wall and had taken a biopsy , she said the endometrium looked proliferative and if the endometrial biopsy was benign she would dudd as charge me from her care ? Guess what 2 weeks wait for results.

    so now im feeling slightly better about things . Until  3 days ago i had 2 letters on the same day telling me that my appointment was being brought forward fom march to feb then second letter another week forward .. what appointment? I hadnt had one .. so I phoned and all they told me was that she wants to discuss my results?

    now I am really worried .. its got to be something ? Or surely they'd just talk over the phone? I mean we are still in a lockdown!

    Sooo im going this Thursday 18th feb? And to be fair excpecting the worst.

    what was your outcome?  Are you ok ?

    C

     

  • Hi

     

    No results yet so I'm hoping no news is good news.

    It's really hard trying to interpret what they're saying and what their faces are saying!

    Thought it was all over when the first biopsy didn't show anything sinister but now I'm back to square 1.

     

    J x

  • Hi

    Had a phone call today after 4 weeks of waiting and me chasing them up. The Doctor wants to set me tomorrow afternoon to "discuss my results".

    Really worried now as I imagined just getting a letter to say it was clear.

    Have you got results now?

    Jx

  • Hey x

    yes i have conplex endometrial hyperplasia with atypia...

    ive been sent for Mri scans and. Xrays of my chest and I have an appointment for a Thursday 11th for follow up and to discuss the scans .  Consultant has recommended a full hysterectomy which ive agreed  to .

    just need to see what's said on Thursday now . I can' fault the NHS  they've been thorough and really efficient. Ive been seen within 2 weeks each time .

    i hope its good news tomorrow please let me know x i wish you well x x 

  • Hi

    Got my results and it is Stage 1 cancer so I'm going in on Wednesday for hysterectomy and oophectomy. Bit of a shock as I was convinced it was taking so long for results because they were ok!!

    There were a lot of cells that were still pre-cancerous so hopefully they won't find anything worse than stage 1 after it's removed. 

    Bit worried about the op as I have a high BMI and it's the first time I've had anesthetic or surgery so I don't know how my body will react. Trying to stay positive though, hopefully I won't be in hospital long and I'm sure once I'm back home I'll feel even better

    XxX 

  • Ohhhh my word I am so sorry

    im sure once you've had the hysterectomy things will be ok, they will remove it all and you'll be fine x

    Its scary isn't it , im having my hysterectomy on Tuesday ..

    are you having keyhole ? 
    Let me know how you get on x

    ill be thinking about you x

  • Yes, I'm having keyhole.  Are you having oophectomy too? Good luck for yours on Tuesday, I'll be thinking of you xx Please let me know how you get on too xx

  • Hey

    cant sleep x nothing new there at the moment x im such a worrier at times .

    yes im having oophectomy  too x

     

     

  • Hi

    Just wanted to wish you all the best for tomorrow.  

    I'll be thinking of you. 

    I'm sure you're in for a sleepless night tonight but tomorrow night it'll all be over. 

    J xx

  • Sooooooo

    i was admitted ... prepped for theatre ... at 10am ....

    waited all day nil by mouth

     4pm ... op cancelled , they ran out of borrowed theatre time...

    so I was sent home to Wait ...

     

    here I am waiting ... worrying...

    i hope you're ok and things are going to Plan x x