‘That’ waiting stage.

Hello Everyone,

I've recently had a second breast biopsy (the first was inconclusive).

I'm now at 'that' waiting stage for the second time.

Trying to keep calm but I feel stuck in limbo.

Family, friends and colleagues have all been great but it feels harder to talk with them.

  • Hi [@kiwirunner]‍ , there is a lot to think about. Be kind to yourself. Your diagnosis has probably only really just sunk in.

    I definitely think you should take the time out from work especially at the beginning of treatment. Then see how you feel. Take the pressure off.

    You are just as important as anyone else! Cancer will affect women in many different ways and the most important thing is that you thought something was wrong and you've caught it!

    Im still waiting for my result. I have a feeling it may be tomorrow. 
    Thinking of you xx

     

     


     

     

  • Hi [@Pinny79]‍ and [@Kelsi]‍ thanks so much for your kind words and advice. I think you're right and the radiographers today at my CT planning appointment said the same thing. They said be kind to yourself and if you can have time off then do - fatigue kicks in the week after. They said that fit and active people are usually better with the fatigue so that is likely for me. My sessions start on 29 March.

    Kelsi I hope you get your results tomorrow. Do let us know how you get on. Pinny79 I also hope you don't have too long to wait either. Deep breaths - it will be ok xx

  • Hi just a wee update, hospital called this morning and my results have come back clear, the lump was a pappiloma so I dont need any further action. I'd like to wish pinny and kiwirunner all the best and thank you so much for your kind words xx

  • Hooray - that is great news @Kelsi! So pleased for you. Likewise, thanks for your support too and I have fingers crossed now for good news as well  for [@Pinny79]‍.

    Take care xxx

  • [@kiwirunner]‍ and [@Kelsi]‍, I am pleased to say that the radial scar was totally benign. No further treatment. The hospital rang me at the end of the day on Wednesday. I've not been put forward for any further screening before the age of 47 (that's what she said on the phone) but I know not to hesitate if something doesn't feel right.

    Thank you for your kind words and understanding.

    I've found it so helpful being able to say how I feel.

    Take care and stay in touch xx
     

  • Hi [@Pinny79]‍ that is great news. Hoorah!! Thanks so much for the update and glad to know we could all be of help to each other during the difficult waiting time.
    Enjoy getting back to a sense of normality, knowing you've been given the green light.

    Take care xx

  • Hi that's great to hear, what a relief for you. Yes it has definitely been a great help talking to each other on these pages. All the best xxx

  • Hi @kiwirunner, how has everything been going? xx

  • Hi [@Pinny79]‍ nice to hear from you! I'm doing pretty well. I never got any of the radiotherapy fatigue and am now back running regularly with friends which feels fantastic to be doing something that the 'old me' liked to do before all of this. 

     I'm now six weeks into taking the Anastrozole for five years, and apart from an occasional hot flush I have been pretty good on the side effects. About a week ago I started to get some pain/stiffness in my knees and occasionally my ankles which is one of the side effects. I was really worried about getting those as I live a really active life but have found taking some Ibuprofen before I go for a run seems to be managing it OK so far. Fingers crossed! I have my DEXA bone density scan booked on 2 June to do the baseline measurement of how strong my bones are as this drug thins the bones :-( Hoping that years of weight bearing exercise and being mindful of my calcium intake over the years has put me in a good position but I guess I will find out.

    So, generally I am feeling really good but have to admit I have the whole "what if it comes back" always in the back of my mind. I guess I just need to push that to the back of my head and be comforted by the fact I have a yearly MRI for the next three years and yearly mammograms for next five years. I can always contact my breast care nurse if I have any worries.

    My husband and I are 400 miles into walking the 630 miles of the South West Coast Path (doing it over a few years) and we are off to do two more sections at the end of the week - I am stupidly excited about going away for two nights haha!

    Hope you are all good - was so pleased that yours all turned out to be fine :-) xx

  • Hi [@kiwirunner]‍, great to hear from you. Your message comes with positive and exciting news.

    That's amazing that you have got back to feeling like the old you :) I'd been thinking about how you'd been getting on.

    It's a good thing to have the bone density scans. Unfortunately, these medications don't come without their own issues. I'm sure the result will be good.

    That is a MASSIVE walk! Good on you and your husband. When do you think you'll have it completed?

    Well, I've been entered to do a 5k/13 obstacle Tough Mudder in October with my husband and a work colleague. Ha ha! I've taken up swimming to get stronger. I'm hoping my husband with carry me! Ha ha. I'm looking forward to it. A new challenge. Luckily it's not a race. It's going to take me all day!

    I'm finding myself back at the breast clinic also on 2nd June. I was discharged in early March.

    My right boob, armpit, and arm have been causing me issues since the VAE in Feb. I've given a good amount of time for healing but it's just not improving. 
    I decided to email the clinic last weekend and an appointment arrived yesterday! Very prompt. I wasn't expecting to be seen. I thought someone would either email back or they'd tell me to see GP for re-referral.

    I'm relieved for the appointment. I've been experiencing strange sensations on a daily basis. Dull aches, pinching, sharp and burning sensations and soreness. I'm always aware of my arm. My VAE site also has similar sensations. It all looks perfectly fine from the outside. Another thing that's started to happen is that my period has started to become a little irregular over the last two months. Arriving later than usual. Could be linked?

    Just have to see what they say.
    I hope you have a brilliant sunny weekend. I'll be in the garden (I'm a rubbish gardener though) but I enjoy it.

    Take care xx