Suspected head neck thyroid cancer

Hi everyone, I haven't really had anyone to talk to about all of this and I'm going crazy. 
 

about a year ago, I noticed my salivary glands were swollen, and I had small lump on the right lower neck. I was ill, I lost 4 stone in 6 months, I started getting fatigued and short of breath with dizziness and headaches, I went doctors told I had sinus infection and I got diagnosed with asthma. I had to be put on 4 sets of antibiotics and it still hasn't fully gone. Every since then, My physical health has gone down hill. I've noticed a lot more small lumps all over my neck in the past month, they're tiny but there. My throat hurts all the time, I went doctors on the 13th this month and decided to address the issue again. He felt my lumps, my neck at the bottom started to swell also. He said my asthma has got worse, medicated me, diagnosed me with indigestion and said I need to be referred to an ENT to see why my nodes are still swollen and sore. Not once did he mention cancer. I found out I have been reffered for SUSPECTED NECK AND HEAD CANCER/THRYOID. All I can say is I'm devastated, this is why I didn't tell them how I felt a year ago properly. I ignored it because I was scared. My body feels like it's falling apart, I can't walk long distances, I struggle to swallow, ear ringing with banging headaches daily. My bones hurt. I was reffered for urgent 2 week assessment, they didn't contact me within this time so the doctor has had to do another one. I'm *** off that I haven't been seen! I'm anxious and I'm scared. I don't really know how to cope with all of this. Has anyone else had an experience like this? If so what was your outcome? Everyone keeps telling me I'm fine, but they don't know that, they can't promise that. 

Parents
  • Hey Tifiny, 

    im really sorry to hear about what you've been going through. A referral via the cancer pathway doesn't mean necessarily that they think you have cancer - it's just a way to be seen quickly. Though I appreciate that hasn't happened in you case and if this hasn't been explained, it's a bit of a shock to read it on the referral form.

    I've got a lumpy neck too! I found a lump a year ago and the ultrasound shows 3 lumps on my thyroid: 3cm, 2.6cm and 1.6cm I think. I'm waiting for surgery to remove following a biopsy but with the pandemic it's on hold. People keep telling me that thyroid cancer, if that's even what it is, is the slowest growing and easiest to cure so I try to hold on to that. On my good days, it works. On my not so good days, I sit and have a cry because waiting is scary and frustrating.

    Fingers and toes crossed that the referral comes through for ENT soon. In my area, ENT aren't the fastest. It's good that your GP is on the ball and is chasing again.

    All the best,


     

     

Reply
  • Hey Tifiny, 

    im really sorry to hear about what you've been going through. A referral via the cancer pathway doesn't mean necessarily that they think you have cancer - it's just a way to be seen quickly. Though I appreciate that hasn't happened in you case and if this hasn't been explained, it's a bit of a shock to read it on the referral form.

    I've got a lumpy neck too! I found a lump a year ago and the ultrasound shows 3 lumps on my thyroid: 3cm, 2.6cm and 1.6cm I think. I'm waiting for surgery to remove following a biopsy but with the pandemic it's on hold. People keep telling me that thyroid cancer, if that's even what it is, is the slowest growing and easiest to cure so I try to hold on to that. On my good days, it works. On my not so good days, I sit and have a cry because waiting is scary and frustrating.

    Fingers and toes crossed that the referral comes through for ENT soon. In my area, ENT aren't the fastest. It's good that your GP is on the ball and is chasing again.

    All the best,


     

     

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