Suspected head neck thyroid cancer

Hi everyone, I haven't really had anyone to talk to about all of this and I'm going crazy. 
 

about a year ago, I noticed my salivary glands were swollen, and I had small lump on the right lower neck. I was ill, I lost 4 stone in 6 months, I started getting fatigued and short of breath with dizziness and headaches, I went doctors told I had sinus infection and I got diagnosed with asthma. I had to be put on 4 sets of antibiotics and it still hasn't fully gone. Every since then, My physical health has gone down hill. I've noticed a lot more small lumps all over my neck in the past month, they're tiny but there. My throat hurts all the time, I went doctors on the 13th this month and decided to address the issue again. He felt my lumps, my neck at the bottom started to swell also. He said my asthma has got worse, medicated me, diagnosed me with indigestion and said I need to be referred to an ENT to see why my nodes are still swollen and sore. Not once did he mention cancer. I found out I have been reffered for SUSPECTED NECK AND HEAD CANCER/THRYOID. All I can say is I'm devastated, this is why I didn't tell them how I felt a year ago properly. I ignored it because I was scared. My body feels like it's falling apart, I can't walk long distances, I struggle to swallow, ear ringing with banging headaches daily. My bones hurt. I was reffered for urgent 2 week assessment, they didn't contact me within this time so the doctor has had to do another one. I'm *** off that I haven't been seen! I'm anxious and I'm scared. I don't really know how to cope with all of this. Has anyone else had an experience like this? If so what was your outcome? Everyone keeps telling me I'm fine, but they don't know that, they can't promise that. 

  • Hey Tifiny, 

    im really sorry to hear about what you've been going through. A referral via the cancer pathway doesn't mean necessarily that they think you have cancer - it's just a way to be seen quickly. Though I appreciate that hasn't happened in you case and if this hasn't been explained, it's a bit of a shock to read it on the referral form.

    I've got a lumpy neck too! I found a lump a year ago and the ultrasound shows 3 lumps on my thyroid: 3cm, 2.6cm and 1.6cm I think. I'm waiting for surgery to remove following a biopsy but with the pandemic it's on hold. People keep telling me that thyroid cancer, if that's even what it is, is the slowest growing and easiest to cure so I try to hold on to that. On my good days, it works. On my not so good days, I sit and have a cry because waiting is scary and frustrating.

    Fingers and toes crossed that the referral comes through for ENT soon. In my area, ENT aren't the fastest. It's good that your GP is on the ball and is chasing again.

    All the best,


     

     

  • I'm going through the same thing with swollen lymphnodes under my jaws I keep falling I'll this was noticed when I went doctors my tonsils decided to swell up and I had a really bad cough for a whole week did a covid test which came back negative and I was given antibiotics but still it hasn't got better after multiple blood tests showing "out of range" nd my lumps not shrinking 4 weeks in my GP has sent through an emergency ENT referral for SUSPECTED HEAD AND NECK CANCER  I am truly scared as I am only 19 she has given me the heads up as it's suspected cancer i don't even know what's going to be happening in hospital when I go in I'm off work as I'm not mentally or physically well to go in I really don't know how to feel :( 

  • Just for a bit of reassurance, thyroid cancer isn't really what you might be imagining. Among younger people, the survival rate for thyroid cancer is close to 100% and they don't usually use chemotherapy or radiotherapy. It's really just a matter of removing your thyroid.

    I had thyroid cancer two years ago and I missed a month of work after the operation and then just got on with my life as normal.

    And being referred for "suspected cancer" does not even mean they think you have cancer. It just means they want to rule it out. I think something like 90% of those referred by cancer pathways do not have cancer. They aren't telling you they think it's cancer; they are just saying it should be investigated in case it is.

    I realise you are also dealing with the possibility of head and/or neck cancer and you are bound to think of the worst, but the reality is you probably don't have cancer and even if you do, it might well be thyroid cancer, which is relatively easy to treat and is very unlikely to shorten your life expectancy. So the odds of good options are way higher than the odds of really worrying ones.