Ovarian cyst and raised ca125

Hello

I have a history of ovarian cysts for over 10 years due to endometriosis. The last operation I had was in 2014 and since then I've been ok. Recently my periods have gone extremely painful so I asked if I could be checked for a cyst as I knew the signs. Ultrasound found a 5.5cm fluid filled cyst so I was sent for ca125 bloods which have come back slightly raised. Waiting for a 2 week referral now and worrying. I had a basal cell removed from my face 18 months ago and at 36 I was young to have that.

Does anyone have any experience of anything similar? I'm wondering what the next steps will be in terms of tests. I've had the blood test with previous cysts and they've always come back normal in the past.

Parents
  • Hi im in similar boat but they think it may actually be something nasty so they holding a meeting today to discuss what type of scan and tests to do next, my case is very complex as ive got very bad scarring from previous surgery and they said surgery would be too dangerous, however i would like to tell you something reassuring cysts do cause elevated ca 125 levels anyway and so does endometriosis  so try not to think the worst. I hope this helps but I know exactly what you are going through, I may hear tomorrow or friday whats going to happen with me. I hope you find out soon. 

  • Hi Chrissy

    Sorry to hear you are going through this too. I hope you find out quickly. Its the not knowing and waiting that is so hard.
    That's reassuring to know about the blood test. I've had huge benign cysts that I had to have drained in the past and my bloods were always normal so I'm just worrying this time. 

    Trying to keep busy while I wait and thinking positive.

     

     

  • Hi missuni, 

    Its horrible waiting for answers. I too have had very large cysts in past and never a word said  about cancer in the past. I really hope you hear something soon. Im just so glad theres forums like these and we can talk to people going through the same thing. I'll update my story as it unfolds and will follow your story. Sending positivity and light. 

Reply
  • Hi missuni, 

    Its horrible waiting for answers. I too have had very large cysts in past and never a word said  about cancer in the past. I really hope you hear something soon. Im just so glad theres forums like these and we can talk to people going through the same thing. I'll update my story as it unfolds and will follow your story. Sending positivity and light. 

Children
No Data