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Not sure what is going on :(

worriedbetty
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I am so low right now, I just need to talk to someone as I am at my wits end as to what is going on with my body. I have been to A&E so many times with no results. I managed to get a gynae referral only for it to be cancelled due to the new covid restrictions and my symptoms are getting worse.

I have written on the board before but now my situation has changed a little and I wonder if ovarian cancer could be likely, than cervical.

Early in the year, I noticed some very faint spotting especially after riding my bike and started having persistent abdominal pain under my left rib - I still have that to this day. I began to ignore it until I felt some bumps down below and took myself to the clinic. I was told I had warts and given a solution, the doctor told me my cervix looked okay but advised me to have a smear. 

I had the smear and the results came back high risk hpv with borderline cell changes. I was asked to do a colposcopy and during that session the nurse who did it told me my cervix looked fine but could not explain the bleeding I was having.

Since then the bleeding has gotten worse, yesterday in particular was like nothing I have ever seen so far - I was not spotting but bleeding. 

I make a note in my period app and I have noticed a pattern, I tend to start spotting during the days that I am ovulating, it's always 7/8 days after my period has finished that I will begin to spot. It's typically watery pink for a few days and then it will stop. If i ride my bike or wear tight trousers then I will spot with ease. I am not sexually active and haven't been for over a year now so I don't really know what is going on. Yesterday I rode my bike and I came back and was bleeding, a little clot came out, then it was a bit brown and now today its period red. I'm also having intense pelvic pain which I did not have before in addition to my left side pain. It's almost like I'm having a period. I have been in tears all day as I have not told anyone what I am going through or about the hpv. 

I feel like the doctors are not taking this seriously and so I mostly suffer in silence, but as this has been persisting every month now I am really worried. I do suffer from IBS so I wonder if it is actually ovarian cancer. One a&e doctor told me I may have fibroids but he did not really check and told me to go and speak with my GP but I really need to see a gynae :(

 

If anyone can relate or help me out with what they think is going on I would much appreciate it.

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    Hey. You need to ask for a referral for a pelvic ultrasound and a ca125 blood test. Monitor your symptoms and cross reference them with the NHS website for ovarian cancer. The doctor that refers you will probably go through a list of questions relating to your symptoms to see of you're eligible for the referral. Don't suffer in silence, you owe yourself more than that. Make sure you tell the doctor it's been months and something is clearly wrong. Just be as insistent as you can and hang in there! I know it's scary, having gone through a similar situation this year. You can do this!

    I had my initial tests done with the NHS and then ended up using private medical insurance for further tests, due to the long wait with the NHS. 

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    Hi Betty,

    I agree with Maripar, you need to push until you get the answers you need.  That is the only way you can move forward, either with with your life in general or with further tests and/or treatments. I say this because the symptoms you mention could be nothing or they could need further action but you have to know. You can't continue to worry because stress itself can make your body do crazy things!  I speak from my own perspective, not as a medical expert, because I am not one! So go get the ultrasound and the CA125 test, that's the next logical step, I think.  Keep us posted on how things go for you and feel free to message me if you want to!

    Laura xx

  • Offline in reply to LauraP

    Thank you both, I appreciate your kind words.

    I am still waiting for clarity as I am in extreme pelvic pain, I did end up having to to go to A&E twice as my abdomen has swollen up in size and the bleeding just won't stop. So I am hoping to have an emergency gynae appointment soon. I feel an intense pressure on my pelvis and I am forever running to the loo. I spend almost every day in bed, I sleep all day and wake up feeling even more exhausted. 

     

    Fingers crossed I will get an answer for all of this and will let you know.

    Thanks :( 

  • Offline in reply to worriedbetty

    Hey all, just thought I should update you on what has happened to me since my last post. As I frantically used to read old posts trying to gain guidance hopefully this could be useful to someone.

    Regarding my left side abdominal pain, I have since had a colonoscopy and that was all clear so no bowel or stomach cancer there. The pain has 90% subsided which is great.

    The deep pelvic pain persists and I am often running to the toilet to urinate. I finally got a gynae appointment for the end of June which is so ridiculous considering all that is happening. Over the weekend I was bowed over in extreme pain that I took myself to A&E AGAIN! The doctor looked at my swollen abdomen and arranged my emergency gynae appointment (which fell through in December). 

    I saw the gynae today. 

    My right ovary is fine.

    My left ovary looks like it has a cyst on it, but the doctor was not sure if it was my left ovary or my left fallopian tube being full of liquid so I have to return in a months time to check.

    Scar tissue of my uterus was found which she didn't really focus on, but when you pop that into google the first thing that comes up is infertility :O so she should really have discussed that further!

    My cervix was healthy despite the HPV.

    I may have endometriosis the doctor thinks but they need to investigate further to rule out anything else.

    So really I'm back to square 1 because I still do not know what causes the mid cycle bleeding and pain.

    My advice to anyone going through this is to continue pushing for answers! as I will continue to! It's been a long ordeal I tell you :(

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