Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • I do this too. I have also reported on the yellow card scheme as I do think more should be said about this as a potential side effect.

    I noticed a couple of years ago that one side of my collarbone sticks out more than the other and the side where I can feel the lymph node is the side that is pushed back more and I believe if the sides were equal than I migjt not even feel it. 
     

    I can still feel mine and it is moveable too.

    Best wishes to all x

  • Yeah mine is moveable. It's like it's on a string and you can move the line up and down slightly when you push the node like twanging a guitar string and you can almost move it along the string slightly, especially when it seems to be smaller.

    It's the most difficult thing ever to leave alone but I am definitely going to try that for a week or two.

  • Mines still there and moveable couldn't feel it much yesterday so was hoping! I've reported to yellow card scheme too. 

  • I know this thread is a little old but I was just wondering if your soreness has calmed down now?

    I had my moderna covid jab 8 days ago. On Thursday I noticed a small lump above my collarbone which I assume is an inflamed lymph node but yesterday the part where my shoulder joins my arm became incredibly tender and I too noticed a small bump underneath my collarbone area. Did yours go away? 

  • Hey, welcome to the club. I haven't seen a post on here yet where someone says their node has completely gone. We all seem do be ranging from a week to a couple of months.

    Personally mine has been just over two weeks and it seems to be shrinking very slowly overall. 

    Ours are all above collar bone as far as I can tell but there are lymph nodes all over your body. If you are at all concerned it might be worth speaking to your doctor for some reassurance.

  • I'm 3 weeks in & seeing VERY slow shrinkage. I could definietly see it 2 weeks back as a small bump in skin an inch above collarbone but can only feel it now.

    Definietly movable - feels like a very small butter bean. Feels different depending how I touch it, so staying clear of it.

    But 3 weeks in seems to be sinking into the flesh around it a bit more & just going on gut feel it is shrinking. I have a non urgent ultrasound on the way but god knows when that'll be & hopefully I won't need it.

    @ Mzee - Moderna here as well. Had a really stiff shoulder & only felt lump when I was massaging area.

  • Hello, I am same!

    I used to be able to see it in the mirror when moving my shoulders back but now I can't.  I am also having to sometimes search for it too which is a good sign.

    I also think that not touching it makes a real difference and I know it is hard to leave alone especially when you want to check and see if it has gone down but it is a vicious circle.

    I have an ultrasound booked for 01 June

    x

  • Sorry for the long post.

    Had GP appointment 1/4/21 because of a lump I found above my collar bone (after having 2nd pfizer vac). They said its a swollen right supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back that day for further examination with her and another gp. They did bloods, breast, tummy and rectal examination. They referred me for a chest xray and ultra sound scan. 

    Bloods came back clear apart from a folate deficiency for which I'm now taking folic acid. I had ultra sound which confirmed a lymph node, chest xray was clear. GP then referred me to ENT, had telephone consultation but he didn't feel the need for head and neck CT.

    My GP is concerned because of bone and muscle pain and 2 ½ stone weight loss in 12 months without trying. 

    GP has done further blood tests and has referred me to something called ACE pathway (The ACE pathway is in place for those who require urgent investigations of non-specific or vague symptoms because of the possibility of cancer or another serious illness. All the investigations are carried out as soon as possible without the need for admission to hospital) 

    I've seen my most recent blood tests online and can see that one test - Serum total 25-hydroxy vitamin D level is very low.  I have a follow up appointment with GP on Thursday so may start treatment for Vit D deficiency, then to await the ACE referral.

    I am still hopeful that it is a result of vaccine and the other things are just incidental findings but I have to say my GP has been excellent.

    P.S lump is still there but has definitely halved in size.

    Fingers crossed for everyone. 

  •  

    Hi, I had my first vaccine (Pfizer) in January and I noticed a swollen lymph node a day later which was slightly tender and very hard and big, it then started to go down slightly but never went away I went to my GP a few times who tired to reassure me but I was very anxious so they said they would send me for a US of my left armpit but the wait would be 8-10 weeks. I decided to pay privately to go to a breast clinic on 23rd Feb and was told it was 6x3mm and appeared normal and was told not to worry. I then had my second vaccine in March and again the lump became very hard, bigger and slightly tender after it then went down again but not fully. My nhs appointment came through which was 27th April and they said it was slightly enlarged just over 5mm but looked normal. It's still there now and it's been 17 weeks since my first vaccine and 8 weeks since my second! 
    i know it's terrible but still can't help but worry! 

  • Hello

    I can relate to this anxiety but take some comfort you've had it checked twice and both have said it looks normal and it is since you had your vaccine, both times.

    I am also wracking my mind wondering if it was there pre-vaccine but I am sure I would have noticed but I still wonder what if. It's very coincidental! 

    I have mine just above my collarbone, 4 weeks on Sunday since I had my first vaccine, I am curious to get the other vaccine in my other arm to see if it happens.

     I can totally relate but try not to stress, 

     

    x

Reply
  • Hello

    I can relate to this anxiety but take some comfort you've had it checked twice and both have said it looks normal and it is since you had your vaccine, both times.

    I am also wracking my mind wondering if it was there pre-vaccine but I am sure I would have noticed but I still wonder what if. It's very coincidental! 

    I have mine just above my collarbone, 4 weeks on Sunday since I had my first vaccine, I am curious to get the other vaccine in my other arm to see if it happens.

     I can totally relate but try not to stress, 

     

    x

Children
  • Agree. I can still feel mine quite easily but I reckon if I went to docs now I would have to direct them to it. It is def still there, def still palpable but it feels far more part of the tissue underneath it that it did.

    If I had the lump that I have now pre-vaccine I would never have felt it. Was purely because I had a sore neck that I felt the area & it was obvious.

    Thinking really logically about it, which I have tried to do...

    1. Most of us noticed lumps after vaccine.

    2. All (I think) are on same side.

    3. Most are collarbone I think with me a bit higher, but all areas are documented in vaccines.

    4. Most on here seem to see some sort of very slow resolution after 4 weeks (??) but everyone seems to be saying don't expect it to disappear one day.

    5. Some people seem to say they have had lumps for far longer with scans to say all ok.

    6. Some have said that it can feel different depending how you prod it.

    7. Some have given solid adcive of leave it well alone as docs have said that might keep it up & therefore be vicious circle.

     

    In total openness as a quite bad health anxiety sufferer...

    1. Vaccine Fri 23 Apr

    2. Felt lump following Tue

    3. Started googling it & saw all sorts of links to lymphoma etc.

    4. Left it about 10 days, rang docs & no concern whatsoever.

    5. Pushed to get it actually felt & doc noted odd location, said likely nothing but get bloods as felt like just >1cm. Referred to non urgent ultrasound.

    6. Bloods fine.

    7. Round about Fr 14th May def noticed it was sort of fading into the neck tissues a bit. You couldn't see it in mirror anymore.

    8. Today I can still feel it but need to poke a bit. Much flatter & seems to take shrunk in diameter maybe 1/3?

  • Very good post, summarising why we should all be calm!