Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

This sounds like the same thing that I and other people here have experienced. Bloods and ultrasound were OK for me and others, so try not to be worried, and think of other things as much as you can. I think it is becoming known as quite a common vaccine reaction

3 weeks in no change in lump for me. Still mobile, firmer than tissue round it & smooth. Its basically like a small butter bean. Not visible unless feel for it. Left lower neck.

Had bloods done & fine. Referred for ultrasound as routine as lump under 2cm.

Thinking about paying private if referral comes with silly wait time.

What would be useful is a big table of everyone that had this and how many weeks it lasted for each of them. Especially those who it has gone for now. 

Mine is definitely very slowly getting smaller. It was good to forget about it for a few days, otherwise you will constantly be touching it. It feels bigger when you put your neck in certain position... different if you touch it with your thumb or finger. 

If you can just leave it and only check for size in the same position every few days.

I see what you mean about the thumb and finger! Working from home gives me too much time to keep playing with it. I'm about 12 weeks past my first jab and the original node is still swollen. ( I noticed it 4 days after my AZ vaccination) I think it's very slowly decreasing but definitely not growing. Interestingly after my second vaccination a second swollen node appeared close to the first one but that seems to have gone down. There do seem to be more and more people reporting this side effect!

The ultrasound operator I saw said that lymph nodes can stay up for months or even a year, and so that reassured me a bit, although I might worry a little if everyone's goes down apart from mine!
xx

I think it might be wishful thinking that mine is going down. It's decreasing at a very slow rate if it is! That it can take that long is very reassuring though. 

So I've just spoken to GP again as he said to call if still up. I can only feel it in certain positions so he's hopeful that's a sign it's starting to go down. He said he's not concerned at the moment as thinks it's a reactive lymph node to the vaccine but to call next week if still there and he will take bloods. He said they normally are only concerned if there 2-3 weeks. I don't think he grasps the fact people are having these for 7-8. 

Try not to worry. Don't forget this is the biggest mass vaccination that's ever been done so all these side effects and how long they last are new for everyone... including doctors.

Hi.

Thank you for sharing. I thought I would google as I woke the next morning with a sore collar bone and felt the lump and I feel much better now reading there are a few of us that have had swollen lymph nodes after the covid vaccine. I will still call my doctors on Monday to get it checked out as I'm in remission from breast cancer. But do not feel so anxious now. So thank you to all for sharing.

Hi everyone hope you are all ok.

3 weeks on Tue since noticed node & it might just be starting to reduce. It seems flatter & more mobile that it originally was. Fingers crossed. I have an option of a private ultrasound appt if it doesn't go as my health anxiety hates this...

From some research (& trying myself to deal in fact vs anxiety...) this should become more well known. Couple of things I have seen.

Neck/Collarbone lumps known in other vaccines eg. HPV.

Few studies seeing them & one I saw from Spain showed resolution 1-6 weeks with one still resolving at 6 weeks...

USA saying avoid mammograms for 6 weeks cos of lumps & bumps.

Seems to be an opinion that having had COVID makes glands swell more. I haven't but who knows might have been asymptomatic.

RNA vaccines (moderna & pfizer) thought to be more immunogenic than AZ and less well documented.

Keeping fingers crossed you all lump free asap.

Hi everyone hope you are all ok.

3 weeks on Tue since noticed node & it might just be starting to reduce. It seems flatter & more mobile that it originally was. Fingers crossed. I have an option of a private ultrasound appt if it doesn't go as my health anxiety hates this...

From some research (& trying myself to deal in fact vs anxiety...) this should become more well known. Couple of things I have seen.

Neck/Collarbone lumps known in other vaccines eg. HPV.

Few studies seeing them & one I saw from Spain showed resolution 1-6 weeks with one still resolving at 6 weeks...

USA saying avoid mammograms for 6 weeks cos of lumps & bumps.

Seems to be an opinion that having had COVID makes glands swell more. I haven't but who knows might have been asymptomatic.

RNA vaccines (moderna & pfizer) thought to be more immunogenic than AZ and less well documented.

Keeping fingers crossed you all lump free asap.

Anyone else finds theirs goes up and down depending what you do? Do some exercise - back to how it was. 30 mins later you've been sitting down and you think it's gone right down.

It makes it hard to know if it's actually resolving or not. I have decided not to touch it at all for two weeks and see where I am after that.

Yep 100%. Couple of times thought it was on way out & then a while later nah still same.

I've taken advice & left it well alone.

Yes. Mine is exactly the same  - up and down! .(after 12 weeks). I thought it was getting smaller but not too sure now. The size definitely depends on which angle I approach it from.  I'm trying very hard just to forget about it for a while - not easy! I feel reassured that it doesn't  appear to be increasing in size from when I originally found it though and still very moveable. 

I flund myself looking for it this morning which probably says something. But I'm sure it'll still be palpable for ages.

I'm going to report it on yellow card scheme.

I do this too. I have also reported on the yellow card scheme as I do think more should be said about this as a potential side effect.

I noticed a couple of years ago that one side of my collarbone sticks out more than the other and the side where I can feel the lymph node is the side that is pushed back more and I believe if the sides were equal than I migjt not even feel it. 
 

I can still feel mine and it is moveable too.

Best wishes to all x

Yeah mine is moveable. It's like it's on a string and you can move the line up and down slightly when you push the node like twanging a guitar string and you can almost move it along the string slightly, especially when it seems to be smaller.

It's the most difficult thing ever to leave alone but I am definitely going to try that for a week or two.

Mines still there and moveable couldn't feel it much yesterday so was hoping! I've reported to yellow card scheme too. 

Hi, I had my first vaccine (Pfizer) in January and I noticed a swollen lymph node a day later which was slightly tender and very hard and big, it then started to go down slightly but never went away I went to my GP a few times who tired to reassure me but I was very anxious so they said they would send me for a US of my left armpit but the wait would be 8-10 weeks. I decided to pay privately to go to a breast clinic on 23rd Feb and was told it was 6x3mm and appeared normal and was told not to worry. I then had my second vaccine in March and again the lump became very hard, bigger and slightly tender after it then went down again but not fully. My nhs appointment came through which was 27th April and they said it was slightly enlarged just over 5mm but looked normal. It's still there now and it's been 17 weeks since my first vaccine and 8 weeks since my second! 
i know it's terrible but still can't help but worry! 

Hello

I can relate to this anxiety but take some comfort you've had it checked twice and both have said it looks normal and it is since you had your vaccine, both times.

I am also wracking my mind wondering if it was there pre-vaccine but I am sure I would have noticed but I still wonder what if. It's very coincidental! 

I have mine just above my collarbone, 4 weeks on Sunday since I had my first vaccine, I am curious to get the other vaccine in my other arm to see if it happens.

 I can totally relate but try not to stress, 

x

Agree. I can still feel mine quite easily but I reckon if I went to docs now I would have to direct them to it. It is def still there, def still palpable but it feels far more part of the tissue underneath it that it did.

If I had the lump that I have now pre-vaccine I would never have felt it. Was purely because I had a sore neck that I felt the area & it was obvious.

Thinking really logically about it, which I have tried to do...

1. Most of us noticed lumps after vaccine.

2. All (I think) are on same side.

3. Most are collarbone I think with me a bit higher, but all areas are documented in vaccines.

4. Most on here seem to see some sort of very slow resolution after 4 weeks (??) but everyone seems to be saying don't expect it to disappear one day.

5. Some people seem to say they have had lumps for far longer with scans to say all ok.

6. Some have said that it can feel different depending how you prod it.

7. Some have given solid adcive of leave it well alone as docs have said that might keep it up & therefore be vicious circle.

In total openness as a quite bad health anxiety sufferer...

1. Vaccine Fri 23 Apr

2. Felt lump following Tue

3. Started googling it & saw all sorts of links to lymphoma etc.

4. Left it about 10 days, rang docs & no concern whatsoever.

5. Pushed to get it actually felt & doc noted odd location, said likely nothing but get bloods as felt like just >1cm. Referred to non urgent ultrasound.

6. Bloods fine.

7. Round about Fr 14th May def noticed it was sort of fading into the neck tissues a bit. You couldn't see it in mirror anymore.

8. Today I can still feel it but need to poke a bit. Much flatter & seems to take shrunk in diameter maybe 1/3?