Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Hi,

    Hope you are all doing ok. I saw a doc yesterday who had a good feel. Paid for a private one as NHS only doing tele consults. Lump looks more like cervical lymph vs supra clavicular.

    Reassuring news is he rated it as 1-1.5cm & definitely soft/obviously mobile. I've felt no change since it appeared. Wording was "likely benign" but advised full blood count & ultrasound if not gone or reducing in 2 weeks. So I'm reassured by that but would just like to see it gone.

    Will be 2 weeks since I found it on Monday. Some of you are upwards of 4-5 weeks right?

    Nufc

  • Hello,

    I have an ultrasound booked for 01 June. I am 2 weeks post vaccine and I think today I have noticed it is shrinking? I am trying so hard not to keep touching it and I think that also helps?

    I was looking on Twitter and there are lots of people who have something like this believed to be vaccine related. Seems US are reporting on this quite a lot.

    But of course better to get checked out, when I found mine the GP said there was no point in him seeing me as he will just say I have a lump, I spoke to another who wanted to see me and thinks it is vaccine related.

    best wishes to all

     

    x

  • You know how I'd best describe mine? Like one of those air filled packaging things you can pop. Imagine one of those under skin on neck 2in above collar bone. Really wierd. It was the location that freaked me out.

    Hope your ultrasound goes ok. I'm sure it will. 

    Common opinion seems to be that touching it constantly won't help it. My GP yesterday alao said that if you check every 5 min it is tricky to assess if it is same or not. Mind playing tricks etc. He said hands off for at least a few days. 

  • That is a good comparison. Mine was like a baked bean or kidney bean and like it was attached to a string so it could move around with a limit! But today it has really gone down. I of course haven't pushed it too far.

    mine hangs over on to my collarbone, but as it is getting smaller it is moving more above it.

    I also think standing under the shower with the warm water has helped.

    I don't know whether to still have my scan if it decreases anymore? Part of me would still like it checked...

  • How long did it take after jab to go down? Mine is 2 weeks since jab now & 10d aince noticed lump.

  • I noticed it 2 days after my jab and it has been 2 weeks since my vaccine.

    I still have it but it has only just started getting smaller.

    I had a cousin who had her jab but didn't have the lymph node swelling until 2 weeks after.

  • Hi.

    I had my Oxford AZ jab just over 3 weeks ago. I noticed the lump sitting just above my collarbone 2 days later. Same side as my jab, left hand side. Dr has run blood tests. All ok. I have got to call him back if it has not gone by end of May and he will refer me to specialist.

     

    trying not to worry. This chat has really helped

     

    xxxx

  • This chat really helped me too. I was going out of my mind but it seems it is a common occurrence that coincides with the AZ vaccine.

     I have an ultrasound booked for 01 June but hoping it is gone by then! Xx

  • Glad this is helping as much as its helping me.

    Mine was Moderna so seems they all might do it...

    Fingers crossed couple of weeks down the line we're all immune & lump free

  • Hi all,

    i feel a bit better seeing this chat, it's helped me relax a little. 
    I had my first Pfizer jab about 10 week's ago and had no side effects at all apart from a dead arm for the day, but 3days later I noticed a lump in the middle of my collar bone (sternal notch) didn't worry to much about it as it just felt like a fatty deposit and gp advised to leave it a month. I didn't think much more about it until my second jab 2 weeks ago. lymph nodes up on my left side, the day after and still now today and is a hard pea size lump within the fatty deposit mentioned earlier in the sternal notch. I have been back to gp and am now waiting for a blood test next week. Has anyone else here had or got a lump in the sternal notch area?

     

     

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  • Hi all,

    i feel a bit better seeing this chat, it's helped me relax a little. 
    I had my first Pfizer jab about 10 week's ago and had no side effects at all apart from a dead arm for the day, but 3days later I noticed a lump in the middle of my collar bone (sternal notch) didn't worry to much about it as it just felt like a fatty deposit and gp advised to leave it a month. I didn't think much more about it until my second jab 2 weeks ago. lymph nodes up on my left side, the day after and still now today and is a hard pea size lump within the fatty deposit mentioned earlier in the sternal notch. I have been back to gp and am now waiting for a blood test next week. Has anyone else here had or got a lump in the sternal notch area?

     

     

Children
  • Glad this has helped a little.

    Mine is on neck 2 inches above collarbone. Most on here seem to be above or on collarbone.

    Did GP examine you? I managed to get hands on mine & was reassuring. Consistency, size & my lack of any red flags seemed to influence that. But bloods in couple of weeks if it doesn't go.

    There are people on here with lumps for weeks though.

    If it is sitting there small & not growing and on same side as vaccine then hopefully nothing will come of it.