Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Exactly the same here!

     

    I have just received a letter with my ultrasound date of  the afternoon of 10th May, clashing with both my optician's appointment and my mother's dental appointment I was going to drive her to, but never mind!

    The good news (I hope) is that ultrasound results are almost instantaneous. Do you have an ultrasound appointment yet? 

    All the best xx

     

  • Hi

     

    Glad you got your appointment, I haven't yet but wasn't referred til either late Friday after seeing the GP or Monday so not expecting it yet, I'm thinking of going for a private scan even if it's just reassurance but not sure 

    xx

  • Let me know how you get on .... 
    xx

  • Hi

    My scan has come through as a soft tissue ultrasound on 12th May, not sure whether to keep private one for Saturday now.

  • You won't need two ultrasound scans, but it depends how worried you are ... can you wait until 12th May? Some of us have had the swollen lymph nodes for quite a few weeks, with no problem coming up on blood tests. Hope it will all be fine, whichever scan you attend xx

  • Hi

    i think I would of been more relaxed if the second one on opposite side hadn't of come up 

     

  • Hi everyone. I've been following this post with interest/anxiety but up till now I've been too worried to post myself. I wanted to share my story in case it helps anyone else who's looking for answers now or in the future.
     

    I had my first Covid (AZ) vaccine on 22/1/21 and two months later at the end of March I noticed a smooth rubbery mass above my left collarbone (same side I had vaccine in). it's quite big, a few cms across and I have no idea how long it has been there. I went to GP immediately who didn't think it was a lymph node and thought it was a lipoma. He arranged an ultrasound which isn't till 10 May. In the meantime I booked via private GP (who was very concerned) to see a private specialist (a Haemato-Oncologist) who was also very concerned. He told me I had a 'conglomerate of rubbery lymph nodes that were abnormal' and required urgent ultrasound/biopsy. Said he suspected lymphoma (he seemed more convinced of this as my Dad died of leukemia aged 66 not too long ago and he thought it could be related). I had not been too concerned before this as I found out about the Covid vaccine link and the pictures from the Spanish study look exactly the same as my lump. However, he said this would be the very last differential diagnosis on his list although he did acknowledge it's a common side effect. (For what it's worth I since had my second vaccine on the other side just so I could differentiate symptoms. Nothing has appeared there). 

    I had the ultrasound today and the Dr who did it said it is definitely not lymph nodes and that she thinks it's a lipoma or some muscle. But nothing sinister and either way she was sure it was benign. Not lymphoma and not lymph nodes though. Sending me for MRI anyway so they can be sure what it is but not at all concerned. So I just wanted to reassure anyone that's worried that even if a specialist thinks it's worrying, a supraclavicular mass doesn't always have a bad outcome! I had some bloods done as well and haven't received results yet but did hear that the Dr would phone me if anything alarming came up. 
     

    In the end my lump was probably not linked to Covid vaccine but I will post again after MRI in case anyone wants to know the final outcome/what they decide it is. 

    I hope everyone gets good news soon and that the time passes quickly till your ultrasound scans. I know how worrying the waiting is.

    All the best.  

  • I posted a few weeks ago about my swollen collarbone lymph node which appeared 4 days after the AZ jab on the same side. I had the jab on the 25th of March and the node enlarged on the 29th. It was initially quite big but as the weeks went by it gradually got smaller. Monday last was exactly a month since it appeared and it had gone down significantly by then and today I can hardly feel it at all. I'm now convinced it was the jab.

    I went on a covid jab side effects group on fb from the states and alot of people are discussing this. It appears to be happening quite a bit as so many people are being vaccinated. It showed up in the trials too.

    I decided to monitor mine for a few weeks  which doctors were advising people to do in the States and if it didn't go away then go to the docs.

    My friend said it always happens to her after the flu jab and that it's her immune system kicking in strongly and thst it has happened when she's had the flu too.

    I had to stop myself prodding it as it could make it uncomfortable.

    I hope it doesn't happen with the next jab. I intend having it in my other arm and I'll see if it happens on the other side and also my arm muscle is still a tiny bit tender 5 weeks after having the jab. Has anyone else had that? Both a friend and a neighbour still have painful upper arm muscles. One had the jab in Feb!!

    Regards 

    Lxx

  • Hi

    so I went for the private ultrasound today and it was hard to find the lymph nodes when laying down but he went along both sides of the collarbone found 1 on one side was 6mm and the other side was 4mm

    he said they are normal reactive lymph nodes and should disappear in time and nothing worrying about them 

    so I am so relieved x 

  • Ah, that's such brilliant news. It has brightened my day!

Reply Children
  • Hi

     

    i hope your scan goes well today, please let us know what they say and hopefully then I you can relax 

    xx

  • Hey folks,

    Glad I found this forum. Thought I would chime in with my experience so far. 42 M.

    28/4/2021 - had first shot of Astrazeneca

    30/4/2021 - first noticed small lump above colar bone same same side as shot (left). When I noticed it I described it as like the pill Morpheus offers Keanu in the Matrix. But just like most people have described here.

    9/5/2021 - can't stop touching it just like everyone else. Seems to have started to reduce today. I had a very hot bath last night not sure if that may have helped. Hopefully it will keep getting smaller. I am gonna try not to touch it till Friday to see if the difference is more noticeable that way.

    It has been reassuring reading all your posts so far. Definitely seems like a fairly common side effect. I have not yellow card reported it yet, I imagine there are a lot of people who haven't so maybe it's under reported.

    Thanks

  • Hello

    I think same, I put warm water on it in the shower but I think me keep checking it doesn't help!

    I had my vaccine on 25 April and noticed it a couple of days after and I think mine might be reducing? 

    There is another post where someone is same and had her 2nd shot on the other arm to see if same reaction and it did!

     

    Sending best wishes to all

  • Aw, thank you. And I can relax! I was told that the lymph nodes are just a bit swollen (the right one in particular), but no further action is required. So nothing nasty found there, and I should only contact my GP and go back if lymph nodes start getting noticeably bigger and visible.

    He said that the same thing could happen again after the second jab and that lymph nodes can stay swollen for months or even a year! 

    I hope everyone else gets such a good result and feels reassured.

    xx

  • That's great news I'm so pleased do you but that's such a long time for the lymph nodes to stay up isn't it 

  • So glad to hear that - it must be a big relief! 
    Mine is slowly reducing so I am feeling more relaxed now. Thanks for keeping us updated

    Jx

  • I think the nodes go down much quicker with some people

  • Mine is definitely smaller now too.

    I thought it would flush in one go sort of thing but it seems that it's going to slowly go down.

  • I have been finding these posts really helpful and so I thought I would post my experience too. I had the AstraZeneca vaccine on the 1st April in my left arm. On the 9th April I discovered I had a swollen lymph node nestled next to my left collarbone. It was about 1.5cm, mobile and softish. I don’t know how I discovered it because it is not an area I thought I touched very much. I also don’t know how long it had been there for. I went to see my GP on the 26th April. The lump hadn’t changed in size at that point. She arranged a blood test and told me to wait another couple of weeks to see if it shrinks, before coming back. During that wait, the lump began to diminish in size but it is a very slow process. I saw the GP again on the 10 May and she was pleased that it had gone down in size by about half. The lump is still mobile and soft. My blood was all fine. She has told me to come back again if the lump doesn’t keep diminishing but seemed happy that it is more than likely due to the vaccine. I do feel relieved that it is getting smaller but it is taking a long time.

  • It does seem to take different amounts of time for different people. Mine is slowly getting smaller. Two weeks since it first appeared.