Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

I had to stop myself prodding my node as I was making it a bit sore and, when I turned my head I got a funny sensation like I'd trapped a muscle. It was definitely because I'd been prodding around too much like you do  

Once I stopped it got better. My node gradually reduced as time went on as I have been noticing people saying. I guess when they go up so big it is going to take a while for them to come down again. Mine was quite big initially and actually there seemed to be  two. Quite worrying at the time.

How are you getting on now? 

Best regards

Lx

So reassuring to chat with other people this is happening to.

Lx

Thanks for the replies!

Yes definitely reassuring, it does very much sound like an under reported side effect. I have to admit I can't leave the thing alone...

Mine is still there & whilst I wouldn't say its getting any smaller it seems to have "softened" a little.

I do suffer health anxiety & this just caught me at a bad time I think. 

I spent a few quid on an online doctor who dismissed it completely & said might take months but forget about it unless it gets larger. His point was that in some skinny folk (me) you can notice even the tiniest node.

Hopefully posts on here help anyone reading them.

Hello all, on Saturday 24th of April I had the AZ jab felt fine but on Monday I noticed I had swelling on the left side of collarbone, it was tender and was about half an inch in size I had my jab on my left so I thought it was because of that. I used a heat pad for a week and now I can hardly feel anything it has gone right down so I thought I would say my experience. 

Hi,

Thought best to consult doc today on this & no concern. Panicked myself a bit this morning as woke up in a right sweat. 

Doc not concerned at all re lump & thinks def vaccine related. She seemed less concerned when I said where it was (about 2 finger widths up from collarbone & almoat next to trapezium muscle). Mentioned sweat & her comment was unless it is regular, significant & waking you up it's not connected.

So a case of leave it 2-3 weeks & call back if no change and call earlier if grows. I'm sure it'll be fine & I just need to chill a bit. There are a few published articles on neck & collarbone lumps post vaccine that last for varied time & look odd even on ultrasound. Seems that RNA vaccines like Moderna or Pfizer are strong & can cause lumps. I think this is just unfortunate that it just looks so much like something sinister. 

Been a super stressful time recently for me & I think this just was something extra I didn't need hence fretting. Hope all your issues are sorting themselves out.

Hi,

Hope you are all doing ok. I saw a doc yesterday who had a good feel. Paid for a private one as NHS only doing tele consults. Lump looks more like cervical lymph vs supra clavicular.

Reassuring news is he rated it as 1-1.5cm & definitely soft/obviously mobile. I've felt no change since it appeared. Wording was "likely benign" but advised full blood count & ultrasound if not gone or reducing in 2 weeks. So I'm reassured by that but would just like to see it gone.

Will be 2 weeks since I found it on Monday. Some of you are upwards of 4-5 weeks right?

Nufc

Hello,

I have an ultrasound booked for 01 June. I am 2 weeks post vaccine and I think today I have noticed it is shrinking? I am trying so hard not to keep touching it and I think that also helps?

I was looking on Twitter and there are lots of people who have something like this believed to be vaccine related. Seems US are reporting on this quite a lot.

But of course better to get checked out, when I found mine the GP said there was no point in him seeing me as he will just say I have a lump, I spoke to another who wanted to see me and thinks it is vaccine related.

best wishes to all

x

You know how I'd best describe mine? Like one of those air filled packaging things you can pop. Imagine one of those under skin on neck 2in above collar bone. Really wierd. It was the location that freaked me out.

Hope your ultrasound goes ok. I'm sure it will. 

Common opinion seems to be that touching it constantly won't help it. My GP yesterday alao said that if you check every 5 min it is tricky to assess if it is same or not. Mind playing tricks etc. He said hands off for at least a few days. 

That is a good comparison. Mine was like a baked bean or kidney bean and like it was attached to a string so it could move around with a limit! But today it has really gone down. I of course haven't pushed it too far.

mine hangs over on to my collarbone, but as it is getting smaller it is moving more above it.

I also think standing under the shower with the warm water has helped.

I don't know whether to still have my scan if it decreases anymore? Part of me would still like it checked...

How long did it take after jab to go down? Mine is 2 weeks since jab now & 10d aince noticed lump.

How long did it take after jab to go down? Mine is 2 weeks since jab now & 10d aince noticed lump.

I noticed it 2 days after my jab and it has been 2 weeks since my vaccine.

I still have it but it has only just started getting smaller.

I had a cousin who had her jab but didn't have the lymph node swelling until 2 weeks after.

Hi.

I had my Oxford AZ jab just over 3 weeks ago. I noticed the lump sitting just above my collarbone 2 days later. Same side as my jab, left hand side. Dr has run blood tests. All ok. I have got to call him back if it has not gone by end of May and he will refer me to specialist.

trying not to worry. This chat has really helped

xxxx

This chat really helped me too. I was going out of my mind but it seems it is a common occurrence that coincides with the AZ vaccine.

 I have an ultrasound booked for 01 June but hoping it is gone by then! Xx

Glad this is helping as much as its helping me.

Mine was Moderna so seems they all might do it...

Fingers crossed couple of weeks down the line we're all immune & lump free

Hi all,

i feel a bit better seeing this chat, it's helped me relax a little. 
I had my first Pfizer jab about 10 week's ago and had no side effects at all apart from a dead arm for the day, but 3days later I noticed a lump in the middle of my collar bone (sternal notch) didn't worry to much about it as it just felt like a fatty deposit and gp advised to leave it a month. I didn't think much more about it until my second jab 2 weeks ago. lymph nodes up on my left side, the day after and still now today and is a hard pea size lump within the fatty deposit mentioned earlier in the sternal notch. I have been back to gp and am now waiting for a blood test next week. Has anyone else here had or got a lump in the sternal notch area?

Glad this has helped a little.

Mine is on neck 2 inches above collarbone. Most on here seem to be above or on collarbone.

Did GP examine you? I managed to get hands on mine & was reassuring. Consistency, size & my lack of any red flags seemed to influence that. But bloods in couple of weeks if it doesn't go.

There are people on here with lumps for weeks though.

If it is sitting there small & not growing and on same side as vaccine then hopefully nothing will come of it.

How did you get on at your ultra sound.

hope you are ok

xx

Hello

I had my first ultrasound on 24 May. They said all was ok, collarbone node was 4mm and there was one in my neck 7mm. They still said all was fine. I literally skipped out the room then a few days later received a letter from my GP asking me to call them about my results which I did and basically they said all was fine but they want to do a follow up, just for completeness.

I just can't understand why they said all was fine but then get a call back, I should feel grateful which I am but wish they would have said oh by the way see you in 6 weeks.

 I have also had a blood test that was absolutely fine and GP said all goes hand in hand, if my white blood cells were through the roof then more investigations were needed.

I have my next scan on 5 July so fingers crossed xx

I hope your scan on the 5th is all ok. 
 

I had an examination by an oncologist  who said in her experience my lump is nothing to worry about and she would review again in October. I have since had a letter from the same hospital with my ultrasound appointment for 30th and a follow up appointment for 8th July. I called them to question why I am being seen so quickly and they just said that they had space so have bumped me up the queue. It definitely worries you when your consultation seems to contradict your correspondence xxx

Hello, 

It is really stressful isn't it. I feel like starting a campaign as a support group as I have had a lot of people from UK and USA message me about it panicking.

If it is vaccine related and there was enough said about it, I would not be worrying as I am now.

Ah you saw an oncologist? Xx