Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

Hi - I also have this.

Moderna vaccine 8 days ago,2-3 days after that found a small lump 2-3cm above collarbone that I'd describe like a small kidney bean under skin. It moves a little. Same side. Arm itself was really sore for a week. I had chills & a sore chest for about 48hrs after the vaccine,sort of like onset of a chest cold that never happened.

What is the consensus on here about how long to leave this before going to docs? I looked online & seems to say 2-3 weeks, but there are people on here at 5 weeks. I did an online consult with a Doc who wasn't concerned in the slightest & said leave for a couple of months!!

Hello

I called the docs the day I found it as I didn't even think it could be vaccine related. I was always under the impression that any lump should be checked but my GP didn't even want to see and said he would only look after a few weeks but I was so upset as I didn't know what it could be.

I am going for an ultrasound but that is on 01 June. The doctor said it is for peace of mind.

I get the feeling that the more well documented this probable vaccine reaction becomes, the less concern there is from the GPs. A blood test can be done really quickly and easily though, for some initial reassurance.

It can take two or three weeks for the ultrasound appointment to come through, after being told to wait for x number of weeks to see if the lump goes down on its own. Mine will be: one week from the vaccination before I saw a GP (I was really scared when I found it, having had breast cancer), 3 weeks waiting (with instructions not to keep prodding it!) before the second appointment, then another 3 weeks until the ultrasound in just over a week from now so 7 weeks in total. Scrolling through, it looks as if those on this chat who have had the ultrasound have been given the 'benign' verdict, which is so good to hear.

I had my second AZ jab last Sunday and another node popped up a few days later next to the original one on my collarbone . The first one is still palpable but much smaller now so I'm waiting to see what happens with this one! I'm sort of reassured that it appeared after my second vaccination - and convinced that they must be connected. I have had clear blood tests so am giving the second one time to resolve - seems they take a lot longer than the medical profession expected and I'm sure we are just a small sample of the people who have had this side effect. I did mention it to the nurse who vaccinated me and she said not to worry as it's a fairly common occurrence. Hopefully it will work out well for everyone but definitely scary at the time. 

Jx
 

That's interesting. I can definitely feel one on each collarbone now, same place, 6 weeks after the first jab. Thankfully my blood test was clear, too. We'll all be interested to find out what happens after jab no. 2. Thanks for being the pioneer and also the first person to reassure me a lot via this chat.

Ro x

Thank you - I always find your posts so positive too. It's just good to know that you are not alone with your worries. I'm still having problems not leaving the nodes alone though!! Hopefully it will be a positive outcome for everyone who has posted here.

Jx

Hi NUFC

I had my node come up on my right arm side where I had the jab 4 days later. I was alarmed at first bit then did some reading and joined this forum. From all the reading I did and experiences I read about the swellings seemed to last between a few days and up to six weeks.

I decided to watch and wait for a few weeks to see what happened and basically my node was initially quite large, and it even felt like there were several but by last Monday which was four weeks since it came up it felt tiny and now, exactly 5 weeks after it came up I can not feel it. 

I read that in the U. S quite a few people are getting these collarbone  and armpit nodes coming up quite a bit following the Moderna jab (I had the Oxford AZ here in the UK) and women are being advised to go for routine breast screening before the jab or to wait around 6 weeks before they go for it as the vaccines are causing the swollen nodes thst are, showing up on mammograms and causing alarm.

Always worth consulting a doctor if you are worried though. It's up to the individual.

I am thinking of having my second jab in the other arm and I'll see if it happens again on that side this time. I'm not keen on having it in my right arm again as I still have some stiffness in the upper arm muscle five weeks later!! My neighbour and a friend have the same.

Another friend of mine who us a nurse had painful lymph nodes come up under her arm  whiclastrd about a week so it does seem to be a fairly common reaction. The body's immune system kicking in. Doesn't happen in every person but obviously quite a few due to mass vaccination. Another friend told me she has this collarbone reaction after every annual flu shot.

Keep us posted how you get on. 

Best regards

Lx

I had to stop myself prodding my node as I was making it a bit sore and, when I turned my head I got a funny sensation like I'd trapped a muscle. It was definitely because I'd been prodding around too much like you do  

Once I stopped it got better. My node gradually reduced as time went on as I have been noticing people saying. I guess when they go up so big it is going to take a while for them to come down again. Mine was quite big initially and actually there seemed to be  two. Quite worrying at the time.

How are you getting on now? 

Best regards

Lx

So reassuring to chat with other people this is happening to.

Lx

Thanks for the replies!

Yes definitely reassuring, it does very much sound like an under reported side effect. I have to admit I can't leave the thing alone...

Mine is still there & whilst I wouldn't say its getting any smaller it seems to have "softened" a little.

I do suffer health anxiety & this just caught me at a bad time I think. 

I spent a few quid on an online doctor who dismissed it completely & said might take months but forget about it unless it gets larger. His point was that in some skinny folk (me) you can notice even the tiniest node.

Hopefully posts on here help anyone reading them.

Thanks for the replies!

Yes definitely reassuring, it does very much sound like an under reported side effect. I have to admit I can't leave the thing alone...

Mine is still there & whilst I wouldn't say its getting any smaller it seems to have "softened" a little.

I do suffer health anxiety & this just caught me at a bad time I think. 

I spent a few quid on an online doctor who dismissed it completely & said might take months but forget about it unless it gets larger. His point was that in some skinny folk (me) you can notice even the tiniest node.

Hopefully posts on here help anyone reading them.

Hello all, on Saturday 24th of April I had the AZ jab felt fine but on Monday I noticed I had swelling on the left side of collarbone, it was tender and was about half an inch in size I had my jab on my left so I thought it was because of that. I used a heat pad for a week and now I can hardly feel anything it has gone right down so I thought I would say my experience. 

Hi,

Thought best to consult doc today on this & no concern. Panicked myself a bit this morning as woke up in a right sweat. 

Doc not concerned at all re lump & thinks def vaccine related. She seemed less concerned when I said where it was (about 2 finger widths up from collarbone & almoat next to trapezium muscle). Mentioned sweat & her comment was unless it is regular, significant & waking you up it's not connected.

So a case of leave it 2-3 weeks & call back if no change and call earlier if grows. I'm sure it'll be fine & I just need to chill a bit. There are a few published articles on neck & collarbone lumps post vaccine that last for varied time & look odd even on ultrasound. Seems that RNA vaccines like Moderna or Pfizer are strong & can cause lumps. I think this is just unfortunate that it just looks so much like something sinister. 

Been a super stressful time recently for me & I think this just was something extra I didn't need hence fretting. Hope all your issues are sorting themselves out.

Hi,

Hope you are all doing ok. I saw a doc yesterday who had a good feel. Paid for a private one as NHS only doing tele consults. Lump looks more like cervical lymph vs supra clavicular.

Reassuring news is he rated it as 1-1.5cm & definitely soft/obviously mobile. I've felt no change since it appeared. Wording was "likely benign" but advised full blood count & ultrasound if not gone or reducing in 2 weeks. So I'm reassured by that but would just like to see it gone.

Will be 2 weeks since I found it on Monday. Some of you are upwards of 4-5 weeks right?

Nufc

Hello,

I have an ultrasound booked for 01 June. I am 2 weeks post vaccine and I think today I have noticed it is shrinking? I am trying so hard not to keep touching it and I think that also helps?

I was looking on Twitter and there are lots of people who have something like this believed to be vaccine related. Seems US are reporting on this quite a lot.

But of course better to get checked out, when I found mine the GP said there was no point in him seeing me as he will just say I have a lump, I spoke to another who wanted to see me and thinks it is vaccine related.

best wishes to all

x

You know how I'd best describe mine? Like one of those air filled packaging things you can pop. Imagine one of those under skin on neck 2in above collar bone. Really wierd. It was the location that freaked me out.

Hope your ultrasound goes ok. I'm sure it will. 

Common opinion seems to be that touching it constantly won't help it. My GP yesterday alao said that if you check every 5 min it is tricky to assess if it is same or not. Mind playing tricks etc. He said hands off for at least a few days. 

That is a good comparison. Mine was like a baked bean or kidney bean and like it was attached to a string so it could move around with a limit! But today it has really gone down. I of course haven't pushed it too far.

mine hangs over on to my collarbone, but as it is getting smaller it is moving more above it.

I also think standing under the shower with the warm water has helped.

I don't know whether to still have my scan if it decreases anymore? Part of me would still like it checked...

How long did it take after jab to go down? Mine is 2 weeks since jab now & 10d aince noticed lump.

I noticed it 2 days after my jab and it has been 2 weeks since my vaccine.

I still have it but it has only just started getting smaller.

I had a cousin who had her jab but didn't have the lymph node swelling until 2 weeks after.

Hi.

I had my Oxford AZ jab just over 3 weeks ago. I noticed the lump sitting just above my collarbone 2 days later. Same side as my jab, left hand side. Dr has run blood tests. All ok. I have got to call him back if it has not gone by end of May and he will refer me to specialist.

trying not to worry. This chat has really helped

xxxx

This chat really helped me too. I was going out of my mind but it seems it is a common occurrence that coincides with the AZ vaccine.

 I have an ultrasound booked for 01 June but hoping it is gone by then! Xx