Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Yes, I've found that too. It feels different if I prod it when lying down to when sitting up. It does seem to vary in size according to how you approach it like you say.  

    How many Lymph nodes are there in that area above the collar bone I wonder? My husband has said that his glands have felt a bit swollen since he had the jab last Thursday too. 

    I must report it to the yellow card scheme tomorrow.  

    I hope it resolves itself soon for us all. 

    Regards 

    L

     

     

     

     

  • This is so reassuring! 12 days after my vaccine now...I realised the point of my shoulder was tender almost like it was bruised after poking around I then realised a small pea sized lump on the outer part of my collar bone but underneath. 
     

    I read about lymph nodes too but my lump wasn't near them so I was so confused and started to worry! So glad I've seen this post! 

  •  

    Your experience is very similar to mine. I had my vaccine on the 25th March and 4 days later I felt a tenderness near my collarbone on the same side as the jab. It was then that I noticed an enlarged lymph node above the collarbone. That was exactly a week ago that I discovered  it. I can still feel it but it has definitely reduced in size quite a bit over the course of a week.  Several articles said it can last for several weeks.

    From what I've read online quite a few people have been experiencing this on their collarbones and in the armpit area (as a friend of mine did) on the same side as the covid jab. There has been a lot of reporting of it in the U.S.

    I also am still getting the odd twinge at the jab site too although not as bad as when I first had the vaccine. 

    I plan to report it to the Yellow Card scheme for any side effects.

     

  • Same situation here. It was exactly 6 years since I was diagnosed with oestrogen-positive, HER2-positive breast cancer that had spread to lymph nodes, and had to undergo a lot of different treatments for over a year, starting with chemotherapy before surgeryto halt it in its tracks.
    I noticed a hard movable swollen node just behind my right collarbone (the side I had the Oxford AstraZeneca jab) six days after vaccination, and it's still there 3 weeks later. Not sure if it was there before or not, as it was so hidden and I found it by chance when sitting with my arm propped up on a chair arm, which revealed the little lump. This morning I found a tiny, grit-sized movable hard lymph node under the other collarbone (on the left), too. Nine days ago I was so worried, having read the same online articles as the rest of you, including some medical journal ones, that I was really panicking and making myself feel ill and thinking the worst, so I saw a GP and she said the node feels smooth (a good sign of being benign, she said) and to wait 3 weeks to see if it goes down.
    It's been so reassuring to read all these posts and feel I am not alone, and it might all be OK. Thank you to everyone. I have not reported this to the yellow card scheme so far, but maybe I should, or might the GP do so?

  • Hi

    Yes it's so hard not to assume the worst when you have been through so much in the past. I find I have days when I assume it's all ok and too much of a coincidence to be cancer related, and other days when I feel really panicky!! 
    I also discovered my node when I had my arm propped up on a chair - my partner is convinced that I would have discovered it earlier had it been there before the AZ jab. 
    It's just over seven weeks since I first felt it - it definitely hasn't increased in size - although some days I convince myself it has!! It's smooth ( which I'm now relieved about) and very moveable. I think if it hasn't reduced in size after the second jab I must see my gp though. The thought of more scans and waiting for results terrifies me, but I know at some stage it should be investigated. It's seven years since I had my breast cancer treatment and I normally manage to put it to the back of my mind - until something like this happens!!

    It does make you wonder if this is a more common side effect than they expected. Did your gp mention any other similar cases?

    I would think that your gp would have reported it to the Yellow card scheme but might be worth asking.

    I agree it is reassuring to know others are going through the same experience - do let us know how you get on and hope it all works out ok.

     

  • I feel just the same as you. Waiting for results is the worst. I recently had a problem with unexplained abdominal pains so I was fast-tracked because of my cancer history and had an ultrasound, which seemed to show a swelling on my kidney, then kidney X-ray with dye, then CT, then nuclear medicine, and there was no cancer in my abdomen and less swelling than the earlier scans seemed to show. I feel basically very fit, and am waiting to hear whether anything needs doing or not, but feeling reassured by the scan reports. Don;t want to be fast-tracked again, and don't want to seem like the 'worried well' finding ongoing reasons to be scanned unnecessarily.
    The very same evening that I saw the reassuring kidney CT scan letter, I found that hard, movable lymph node behind the collar bone, so no chance to celebrate. It's like waves of worry coming into shore while you're wading in the sea. You see them coming in and sort of ride up the worry wave, then it crashes over you when you feel utterly desperate, then it subsides and you're still there, in a lull getting on with the rest of life before the next wave comes. There have been long periods of calm, but those worry waves are potentially still out there waiting for a reason to roll in!

  • Hi

    I'm so sorry to hear what you have been through recently and hope it all works out for you. The results you had do sound reassuring. I can wholeheartedly relate to "worry waves" - you describe it so well. I have been feeling fine since my treatment 7 years ago but it doesn't take much to send me back there! I had a complete panic attack when I discovered the node - and unable to focus on anything else for a while. I've even started Couch to 5k at the age of 66 just to prove to myself that I can do it!! 
    I have been taking Anastrozole since treatment - I'm never sure if the aches and joint pains are side effects or something more serious. Another thing to worry about. The running ( if you can call it that!!) does seem to get me moving better. 
    Take care - and keep us posted 

    Jx

     

  • Hello, have you made a GP appointment yet? I've had an enlarged lymph node by my left collar bone for about 5 weeks. Having googled it a few weeks ago I read if a lymph node is still enlarged after 3 to 4 weeks then to make a GP appointment. I remembered yesterday and did an online consultation and the GP phoned and invited me in and has now referred me for an ultrasound. I didn't know it might be linked to the covid vaccine, but now I I hoping that is all it is. I had my first dose at the end of January and my second dose a week ago. I have had cancer before though, so now the GP has referred me on I am really panicking. The GP asked lots of questions which my googling tells me relate to symptoms of lymphoma or abdominal cancers. I have no other symptoms at all so it was a no to all the questions. The GP said it is most likely enlarged due to an underlying infection that I've had no symptoms of. 

  • Hi

    I haven't made an appointment yet - over the past few days my node seems to be reducing in size. I shouldn't really put it off any longer though, especially after reading your post. Was your swollen node on the same side as the vaccination?  I do hope your ultrasound goes ok and you don't have to wait too long - waiting is always the scariest part. I have routine blood tests coming up soon so that will be a good chance to discuss with my gp if it hasn't resolved by then. Do let us know how you get on. 

  • Yes it is on my left side and I had my left arm jabbed both times. Fingers crossed this is all it is. It is horrible to think I might be back in the same place I was in 13 years ago. Please get yours checked out, it reducing in size sounds good though x

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