Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

Hi!

I work for NHS and have exact same symptoms. Had blood result which were normal (or satisfactory anyway). GP not concerned but as it has been there 6 weeks I have an ultrasound scan, which is actually tomorrow to check. 

Its above my right collarbone (had jab on right) and is pea sized and movable ish. I suppose rubbery is the texture. There is a second slightly deeper lump but this is only size of pin head. No pain except I keep poking it. 

I have been very stressed about it (not helped by moving house and job soon). It is keeping me awake at night and then I get hot and sweaty which makes me more paranoid of course. Not fun. Feeling a bit alone with it all. 

Somewhat reassuring to hear you have a similar experience so far. How long has yours been there (if it is still there)? Was it the PFiza ? Swollen lymph nodes are being reported more in America than UK but mostly auxiliary. 

Hi

I had my Covid vaccine (Astra Zeneca) two weeks ago. Two days later I felt an enlarged and slightly sore lymph node just above my collarbone on the right. After initially panicking ( I was diagnosed with breast cancer 7 years ago and am now in remission ) I put it down to  the vaccine which I had in my right arm. Two weeks later it is stil8 l there though, not changed in size - at least I don't think so!! - but no longer  painful. It seems to change size depending on how I feel it if that makes sense!! It's moveable  and slightly rubbery and apart from that I have no other symptoms and feel really well. I'm now feeling so worried though ( having foolishly googled superclavicular node!) and spend most of the day prodding it and imagining the very worst outcome. I have also read quite a few reports from the US about swollen lymph nodes post vaccine so am hoping that this is the case. I've now convinced myself that maybe it was there all along but seems a coincidence that I noticed it just after the jab. I plan to contact my go if it doesn't go down in a week - it's just the thought of re living what I went through 7 years ago that terrifies me and I've found myself in tears a lot today. It's sort of reassuring to hear that others have had the same experience - just hope we all have a good outcome. It's the not knowing that's so scary!! 

Hi

I had my Covid vaccine (Astra Zeneca) two weeks ago. Two days later I felt an enlarged and slightly sore lymph node just above my collarbone on the right. After initially panicking ( I was diagnosed with breast cancer 7 years ago and am now in remission ) I put it down to  the vaccine which I had in my right arm. Two weeks later it is stil8 l there though, not changed in size - at least I don't think so!! - but no longer  painful. It seems to change size depending on how I feel it if that makes sense!! It's moveable  and slightly rubbery and apart from that I have no other symptoms and feel really well. I'm now feeling so worried though ( having foolishly googled superclavicular node!) and spend most of the day prodding it and imagining the very worst outcome. I have also read quite a few reports from the US about swollen lymph nodes post vaccine so am hoping that this is the case. I've now convinced myself that maybe it was there all along but seems a coincidence that I noticed it just after the jab. I plan to contact my go if it doesn't go down in a week - it's just the thought of re living what I went through 7 years ago that terrifies me and I've found myself in tears a lot today. It's sort of reassuring to hear that others have had the same experience - just hope we all have a good outcome. It's the not knowing that's so scary!! 

It sounds like yours is very similar to mine (I agree it seems to depend on how I feel/ time of day or position I am in). It is really scary isn't it finding any kind of lump and must be very worrying when you have been through breast cancer before. I am also doing a lot of worrying and Googling and poking! I have also gone through times of convincing myself maybe it was always there and I didn't notice but wishful thinking I think. My dad had lymphoma 2 years ago and so I think that's why it has made me so anxious. 

I have also read american reports and I saw a new article last week of case studies of patients who had ultrasound and/ or biopsies of their lymph nodes and had had benign results that were linked to their covid vaccine. Really wish there was more information in this country. 

Not sure what tomorrow's ultrasound scan will bring? Sleep might be lacking tonight. 

X 

Will be thinking of you tomorrow. I think we have probably been reading all the same articles! I do wonder if there are lots of similar cases out there which just haven't been reported? It does seem such a coincidence that we noticed the lump within days of having the vaccine - well that"s what I keep telling myself! It makes it so hard to concentrate on anything else doesn't it. 

Do hope you manage to get some sleep. x

Hi!

So wanted to make sure I shared reassuring news. The two lymph nodes in my neck just above my collarbone were assessed as normal today. They are both about 5mm (even though touch one feels nearer to a cm and the other feels smaller). They have normal features. The sonographer and the consultant said they probably enlarged up due to the vaccine enough for me to feel them. I saw them on he screen looking normal. Now to try and settle my anxiety that I've been living with for 6 weeks! Hope this is reassuring. 

That's great news and thank you so much for sharing it with us. Interesting that they confirmed that the vaccine can have that effect - I bet we are not the only ones panicking. I wondered if it is worth reporting it on The Coronavirus Yellow Card scheme? - they ask you to register any side effects to the vaccines. Hope you feel more relaxed now and are able to enjoy the rest of the day! I will get my node checked if it doesn't go down in a few weeks but definitely feel better about it after hearing your news. x

Hi,

Yeah the sonographer said he had the same side effect too. I reported it to the yellow card scheme when it happened but might report that they are still enlarged 6 weeks plus. X 

That's great they turned out to be ok.

My gp called so my bloods show low b12 so I've to discuss with her tomorrow. Not sure if that would cause enlarged lymph nodes.

Take care

Ruby

Same situation here. It was exactly 6 years since I was diagnosed with oestrogen-positive, HER2-positive breast cancer that had spread to lymph nodes, and had to undergo a lot of different treatments for over a year, starting with chemotherapy before surgeryto halt it in its tracks.
I noticed a hard movable swollen node just behind my right collarbone (the side I had the Oxford AstraZeneca jab) six days after vaccination, and it's still there 3 weeks later. Not sure if it was there before or not, as it was so hidden and I found it by chance when sitting with my arm propped up on a chair arm, which revealed the little lump. This morning I found a tiny, grit-sized movable hard lymph node under the other collarbone (on the left), too. Nine days ago I was so worried, having read the same online articles as the rest of you, including some medical journal ones, that I was really panicking and making myself feel ill and thinking the worst, so I saw a GP and she said the node feels smooth (a good sign of being benign, she said) and to wait 3 weeks to see if it goes down.
It's been so reassuring to read all these posts and feel I am not alone, and it might all be OK. Thank you to everyone. I have not reported this to the yellow card scheme so far, but maybe I should, or might the GP do so?

Hi

Yes it's so hard not to assume the worst when you have been through so much in the past. I find I have days when I assume it's all ok and too much of a coincidence to be cancer related, and other days when I feel really panicky!! 
I also discovered my node when I had my arm propped up on a chair - my partner is convinced that I would have discovered it earlier had it been there before the AZ jab. 
It's just over seven weeks since I first felt it - it definitely hasn't increased in size - although some days I convince myself it has!! It's smooth ( which I'm now relieved about) and very moveable. I think if it hasn't reduced in size after the second jab I must see my gp though. The thought of more scans and waiting for results terrifies me, but I know at some stage it should be investigated. It's seven years since I had my breast cancer treatment and I normally manage to put it to the back of my mind - until something like this happens!!

It does make you wonder if this is a more common side effect than they expected. Did your gp mention any other similar cases?

I would think that your gp would have reported it to the Yellow card scheme but might be worth asking.

I agree it is reassuring to know others are going through the same experience - do let us know how you get on and hope it all works out ok.

I feel just the same as you. Waiting for results is the worst. I recently had a problem with unexplained abdominal pains so I was fast-tracked because of my cancer history and had an ultrasound, which seemed to show a swelling on my kidney, then kidney X-ray with dye, then CT, then nuclear medicine, and there was no cancer in my abdomen and less swelling than the earlier scans seemed to show. I feel basically very fit, and am waiting to hear whether anything needs doing or not, but feeling reassured by the scan reports. Don;t want to be fast-tracked again, and don't want to seem like the 'worried well' finding ongoing reasons to be scanned unnecessarily.
The very same evening that I saw the reassuring kidney CT scan letter, I found that hard, movable lymph node behind the collar bone, so no chance to celebrate. It's like waves of worry coming into shore while you're wading in the sea. You see them coming in and sort of ride up the worry wave, then it crashes over you when you feel utterly desperate, then it subsides and you're still there, in a lull getting on with the rest of life before the next wave comes. There have been long periods of calm, but those worry waves are potentially still out there waiting for a reason to roll in!

Hi

I'm so sorry to hear what you have been through recently and hope it all works out for you. The results you had do sound reassuring. I can wholeheartedly relate to "worry waves" - you describe it so well. I have been feeling fine since my treatment 7 years ago but it doesn't take much to send me back there! I had a complete panic attack when I discovered the node - and unable to focus on anything else for a while. I've even started Couch to 5k at the age of 66 just to prove to myself that I can do it!! 
I have been taking Anastrozole since treatment - I'm never sure if the aches and joint pains are side effects or something more serious. Another thing to worry about. The running ( if you can call it that!!) does seem to get me moving better. 
Take care - and keep us posted 

Jx