Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • It sounds like yours is very similar to mine (I agree it seems to depend on how I feel/ time of day or position I am in). It is really scary isn't it finding any kind of lump and must be very worrying when you have been through breast cancer before. I am also doing a lot of worrying and Googling and poking! I have also gone through times of convincing myself maybe it was always there and I didn't notice but wishful thinking I think. My dad had lymphoma 2 years ago and so I think that's why it has made me so anxious. 

    I have also read american reports and I saw a new article last week of case studies of patients who had ultrasound and/ or biopsies of their lymph nodes and had had benign results that were linked to their covid vaccine. Really wish there was more information in this country. 

    Not sure what tomorrow's ultrasound scan will bring? Sleep might be lacking tonight. 

    X 

     

     

     

     

  • Will be thinking of you tomorrow. I think we have probably been reading all the same articles! I do wonder if there are lots of similar cases out there which just haven't been reported? It does seem such a coincidence that we noticed the lump within days of having the vaccine - well that"s what I keep telling myself! It makes it so hard to concentrate on anything else doesn't it. 

    Do hope you manage to get some sleep. x

     

  • Hi all, I too have a lump on collarbone and  my collarbone has been sore since  I noticed this lump in November. I'm awaiting blood test results  so will see how that goes. I've two lumps in my neck but also have  ear infection so that's  clearing up with antibiotics. Best of luck for tomorrow x

  • Hi!

    So wanted to make sure I shared reassuring news. The two lymph nodes in my neck just above my collarbone were assessed as normal today. They are both about 5mm (even though touch one feels nearer to a cm and the other feels smaller). They have normal features. The sonographer and the consultant said they probably enlarged up due to the vaccine enough for me to feel them. I saw them on he screen looking normal. Now to try and settle my anxiety that I've been living with for 6 weeks! Hope this is reassuring. 

  • That's great news and thank you so much for sharing it with us. Interesting that they confirmed that the vaccine can have that effect - I bet we are not the only ones panicking. I wondered if it is worth reporting it on The Coronavirus Yellow Card scheme? - they ask you to register any side effects to the vaccines. Hope you feel more relaxed now and are able to enjoy the rest of the day! I will get my node checked if it doesn't go down in a few weeks but definitely feel better about it after hearing your news. x

  • Hi,

    Yeah the sonographer said he had the same side effect too. I reported it to the yellow card scheme when it happened but might report that they are still enlarged 6 weeks plus. X 

  • That's great they turned out to be ok.

    My gp called so my bloods show low b12 so I've to discuss with her tomorrow. Not sure if that would cause enlarged lymph nodes.

     

    Take care

    Ruby

  • Hi Over_thinker,

    You and everyone in this thread has put my mind at ease slightly, I had my C-19 vaccine (Pfizer) a week and a half ago and now have a swollen supraclavicular lymph node (left side, same as the shot).

    I hadn't put two and two together so went to my GP, I have a blood test today and urgent referral in the next 2 weeks - they seemed genuinely worried. I'm trying to rationalise things as I know left collarbone lymph nodes are not good places for swelling. 

     

    Fingers crossed to all in this thread! Will keep an eye on updates and will update myself!

  • Hi

    Yes - scary times! I'm feeling a bit less anxious than I was too, realising I'm not alone - I also read a report from the US yesterday that specifically mentioned collar bone lymph nodes swelling as a result of the vaccine as well as axillary nodes. I think we will all become experts on supraclavicular nodes at this rate - I didn't realise they existed before now!! Do hope your blood tests are ok - and keep us posted! Did your gp consider a link to the vaccine?

    Best of luck to all

     

  • Thank you everyone, its reaasuring that others have experienced this after having the vaccine. 

    Mine is right sided same as my jab. I have been trying to forget about it as the dr wasnt concerned, but it has been about 5/6 weeks now, so might call them again. I have started with a lot pain in my right shoulder too, but dont know if its just because I am poking around so much . Hopefully its just a strange side effect from the jab! 

    Xxx 

Reply
  • Thank you everyone, its reaasuring that others have experienced this after having the vaccine. 

    Mine is right sided same as my jab. I have been trying to forget about it as the dr wasnt concerned, but it has been about 5/6 weeks now, so might call them again. I have started with a lot pain in my right shoulder too, but dont know if its just because I am poking around so much . Hopefully its just a strange side effect from the jab! 

    Xxx 

Children
  • Hi

    Thats good that your doctor doesn't seem too concerned - I know exactly what you mean by constantly poking the lump though and making it sore. It's the first thing I do when I wake up hoping it has miraculously disappeared !! From what I've read some lymph nodes do take ages to return to normal size - do keep us posted and hopefully for all of us it's just a reaction to the jab!! 

  • Thank you for all posting your findings.

    I found a lump above left collarbone yesterday which was 4 days after Oxford COVID vaccine.

    it's weird how you just all of a sudden find this little lump that wasn't there before when you least expect it.

    I've read the leaflet that said it can enlarge lymph nodes and googled all about arm pit lymph nodes getting enlarged, but no so much about collar bone ones.

    It makes sense that they are on the same side as injection site . 
     

    let's hope they all go down soon and we can stop worrying,

     

    thank you all for putting my mind at ease x

     

    all the best to you all xxxx

     

     

     

     

     

  • Hi

    I agree - It is reassuring that we have had the same side effect - mine was identical to yours. I had the Oxford jab on a Wednesday and noticed a lump above my collarbone the following Saturday on the same side as the injection. Of course then you start wondering whether it was there before and you just didn't notice it!! 
    I'm finding collar bone lymph node swelling mentioned on quite a few websites now as a side effect. Maybe it's more prevalent than they expected it to be?

    My node is still swollen 4 weeks on but from what I have read they sometimes take a while to go down. I've decided to give it a couple more weeks before I get it checked. Hopefully yours will go down quickly. 

    Hope things work out well  for everyone xx
     

     

     

     

     

     

     

  • Thank you for your reply 

    keep us posted on how you get on.

    Hope it goes down soon too

     

    All the best

     

     

     

  • Thank you - and you too x

  • Interesting to read this chat and glad I've found it.

    I had the AZ covid vaccine on Thursday 25th March - 4 days ago in my right arm. I've had a sore arm for a few days and today I noticed a tenderspot above my collarbone on the same side as the injection. There is what I take to be a swollen lymph node.

    I googled it as I realised it might be connected to the vaccine and found lots of articles about this being a side effect of the various covid vaccines.

    I will monitor it and ring the doctor if it doesn't go away. I certainly hadn't noticed it before the vaccine.

    Best regards 

    L

  • Hi

    As with all of us who have had the vaccine it's sounds likely that's what it is. My lymph node is still palpable after 6 weeks but definitely smaller. Just wondering if the second dose will cause a similar side effect? 
     

    Kind regards

    J

  • Hi J

    My husband found a study that appeared to show  that it can also happen after the second dose of a covid vaccine too. It was a Spanish study of pfizer reactions . Quite a few had the collarbone node swellings a few days after the second jab and some after the first and some had nodes disappear after 9 days, and others it was beyond a month so it varies from person to person quite alot.

    I discovered mine yesterday and it was a bit tender and swelled even bigger a few hours later. I can still feel it today but its gone down a bit again but is still there.

    My friend had her lymph nodes swell in her armpits on the same side as the vaccine and they were quite swollen and painful for a week.

    It does seem to be quite common. It says 1 in 100 on the AZ leaflet. I've noticed it being reported quite a bit in the U.S after the pfizer and Moderna jabs.. I think it can happen after the flu vaccines too. The bodies natural reaction to a virus I guess.

    Its still worrying when you find a swollen node but reassuring to chat with other people it's happening to as well. L

  • Hi L

    I think we have probably been reading the same reports!! Yes, I saw the Spanish study too. It does seem to be more prevalent than they were expecting , as you say especially in the US. It's just a bit scary when you google collar bone lymph nodes so reassuring that it seems to be happening to quite a few of us.

    Mine stopped being painful after a few days - I'm trying to stop playing with it now as I'm sure that doesn't help!

    I hope yours resolves quickly - do keep us posted

    J

  • I keep prodding mine too I am trying to stop myself. 

    It is worrying when you find a lump or swelling  in that area and initially I was quite worried and then I remembered I'd just had the covid jab and that there could be a connection which is when I started to research it. It isn't always good to google too much as you can end up worrying yourself alot. But in this case it did reaffirm that this does seem to be a side affect that is appearing quite a bit given the number of articles and studies on it online.

    It takes a few, weeks to get fully protected from the vaccine so I suppose it's no surprise that in some people the nodes are also swollen for a few weeks too. I will report it to the Yellow Card Scheme for side, effects. Did you do that? 

    I will keep you posted about it as I will be monitoring it and if you could do the same that would be great. When do you have your second vaccination? Mine is scheduled for mid June. 

    Best regards 

    Linda