Convinced I have a brain tumour

Hi

I have had a headache for nearly 4 weeks now which came on quite suddenly one evening. I am also experiencing quite a lot of nausea but haven't actually been sick. The pain in my head is a constant dull ache on my right side, my eye socket also hurts. I've been to the opticians who say eyes look fine. 
I am absolutely convinced I have a tumour. I have a CT scan booked but it's 3 weeks away which seems forever. Anyone have any similar stories?x

  • Hi goo

    I'll start by saying I'm not medically trained so cannot diagnose.

    I suffer from severe health anxiety which I am now  medicated for and it has helped massively. Before I was in medication I had convinced myself I had neck cancer so I paid and went private for a mri, that came back clear and within a few weeks I started having headaches daily,  my head hurt when I bent down, I had tender points on my scalp, metallic taste in my mouth, my Headaches were all on 1 side, nausea  I was getting flickering in my eye, tingles in my face. I was utterly convinced I had a brain tumour, I went to the gp who bless her probably knows me better than her some of her family lol and she looked at my eyes and told me I didn't have a tumour, still that wasent enough to convince me even though she had been right about the list of illnesses I had convinced myself I had in the last few months so she referred to me neurology but I couldn't wait that long so again I paid and went private and head a brain mri (may I add that my husband does not no about all these scans I've paid for lol he would think I'm crazy). I had to wait a few days for the results, during that time all my symptoms went away, I swear I had not even 1, not surprisingly my scan came back fine. Anxiety is a bloody horrible thing, all the times I think I've got a serious illness I believe I have it as I think surely anxiety can't cause symptoms like this, but the brain is a powerful tool and I was utterly convinced I had a tumour so my brain was responding by giving me those symptoms. I'm not saying you have anxiety this is just my story and I wanted to cheer you up abit and let you no you shouldn't worry .have you been to the gp? My gp told me even daily headaches aren't a sign of a tumour on there own, vision is alot to do with it aswell. It sounds to me like you maybe have migraines which I've suffered with for years. Try not to worry love, I'm sure its nothing to worry about and I hope my story made you smile lol 

  • Hi!!

    Thanks so much for your reply!

    Can I ask what medication you have for your health anxiety? I honestly think I suffer from this too. 
    A few years back I paid for a private mammogram as I'd convinced myself I had breast cancer. If I could afford it now, I would be booking a private scan!

    since lockdown, I have been to the doctors for a lump in my breast that the doctor couldn't find. Then I had horrendous stomach pains and decided I had pancreatic cancer as that runs in the family. I have had blood tests that detect pancreatic cancer and ovarian cancer. I have also had an ambulance to the house (I called 111 and they sent it) as I thought I was having a heart attack. I realise now that what I thought were heart attacks are probably panick attacks.

    but this time I have physical pain in my head, neck, eye socket and round my ear. I have this sensation of something trickling but inside?!

    If after this scan, it comes back clear, I really need to admit I have a problem. As it is though, I cannot stop thinking about it and have become obsessed with the fact this must be something serious.

    youve made me feel loads better so thank you for taking the time to leave a message x

  • I'm on mirtazapine, amatriptyline, and valium. The mirtazapine is for anxiety and depression in the long term, the valium is to just calm me down when I get myself all worked up which I do on a regular basis. In the last 6 months alone I've been to a and e 4 times, had a chest, neck and brain mri, chest and knee xray, one of them heart trace things that they do for 24hrs, multiple blood tests. I've been to my drs more times than I can count, I'm on first name terms with the reception staff lol I've convinced myself in the last 6months I had lung cancer, ovarian cancer, a heart attack, a brain tumour, neck cancer, mouth cancer,  I'm missing a few illnesses as I'm starting to forget all the things I thought I had. My mum bless her lol I ring her pretty much everyday convinced I have a new terminal illness, she rolls her eyes at me and talks me down, she is actually a nurse and she's like 'Emma you do not have a brain tumour/neck cancer' whatever is wrong with me that day. I went to a and e convinced I had ovarian cancer and the next time a brain tumour. I darenet go to my a and e department anymore for quite awhile there gonna think I'm batshit crazy if I rock up there one more time convinced I'm dying. Currently I'm on a 2 week referral for the breast clinic due to pain in my armpit, I have a large build up of fluid behind my c section scar going up into my womb (I had my 6th baby, 6months ago) and I think maybe its messing with my hormones as my periods are all over the place and I think the pain maybe due to that but my dr just wants to check it out to be sure. One thing I've always been told is cancer is normally painless, it grows getting bigger and stronger quietly. I honestly have never been to see my gp more than I have these last few months, I've heard them feeling for lumps in my neck, looking in my eyes for brain tumours, doing abdominal ultrasounds, and they've always been fantastic, they always refer me even when they no its nothing. I read that a good gp will refer for further investigations, do further blood work etc just to put a patients mind at rest even if they no its anxiety, and my gps have been amazing I couldn't be at a better surgery. Maybe you should call yours and talk about getting some medication for your anxiety, honestly it's the best thing I've done. I would spend hours on Google looking up every little symptom I had, spend hours worrying, paying for scans, it was taking over my whole life, now I've started getting my life back. I also have cancer running in my family my mum has currently got bowel cancer, her sister my aunt had breast cancer, my grandad had lung cancer and died, so it does play on my mind like it does yours but we never no whats around the corner do we? I'm the same as you my mind wont be put at rest until I've had the scan and got the all clear so get your brain scan and then talk to your dr about help for anxiety, I'm always here if you need to talk about anything x

  • You both sound exactly like me!

    I have just convinced myself I have a brain tumour. I have had headaches for years but about a month ago I got the worst one of my life and my right eyelid started to twitch.

    the headache faded and never really went away, I was left with a constant dull ache. The. It came back again and I vomited for a whole day. I keep getting muscle twitches all over my body and this pressure/pain in my head won't go away.

     

    I have had my eyes tested and they are fine. Been to the GP who says it's all anxiety. I'm so scared I have spent the last few days in tears as I think no one believes me and I'm just going to be left like this until something awful happens to me.

  • Hi, id try the following

    Check for high blood pressure i had a constant headache with that.

    Get your ears and back teeth looked at...inner ear infection or wisdom tooth impaction both cause bad headache eye socket and sinus pain .

    I dont take any anxiety meds but have had health anxiety for 20 yrs. My default sadly is when im totally convinced im dying of something, have 2 or 3 large apricot brandys, if the symptoms/ pain and feelings of unease all disappear after that, ive normally proved to myself im just getting myself into a state, real tumours/heart attacks dont just disappear cos youre half sloshed. X take care

     

  • Hello. I know this is an old post and I have been reading everyone's replies. I am the same, I have been having symptoms of what I think is something serious. I have been getting a twitch in my left eye, right eye throbbing pain that comes and goes, I wake up and I swear my eyes move back and fourth then it goes. I don't know if it's anxiety or they are actual symptoms of something. I am going to ring the doctors again, I feel I'm always ringing there. I have been to the breast clinic three times in the past 8 months as I've been having issue with my breast. I'm also having problems with my shoulder too. I am having CBT for health anxiety. It's all started since having my baby I feel like I've wasted precious maternity leave on constant worry. It's comforting to know I am not alone but hate knowing others are feeling this way too. 
    Hope you've managed to find some inner peace. 

    Katie x

  • Hi I ,know this is old post as Katie said however since last November I tripped out really bad and start having bad panic attacks everyday for long peroid of time I started to feel like I wasn't here on the earth and that I wasn't who I am (depersonalisation ) however I went on hoikday in the new year and started to get face pain , headaches and noselbleeds this sent me to go see the doctor he said it was a sinus infection and gave me a course of antibiotics months have passed and I was still getting these pressure type of pain in my head so I go back to my gp and tell him he says they're tension headaches the nose bleeds have stopped and my sinus are kind of clearing however even though deep down I know I'm fine I've been convincing myself I had a brain tumour is they something wrong with me