Bleeding after urinating and Cystoscopy.. please help

hello everyone,

I have had two episodes of bleeding after urinating on the same day with burning as well.

I thought the reason was on that day I urinated to an empty bottle while I was in the car as there was no way to stop in the middle of traffic. It was not a comfortable position and I felt pain when I urinated.

After two hours when I went to the toilet I had blood after urinating two times and thats it.

I thought i could have injured myself but when I called the gp they said I need to do urine test but the test came back negative and I do not have infections.  gp referred me for an urgent appointment for further tests.

At that point I started to worry, blood tests and ct scan came back clear and normal.

Dr said I have to do cystoscopy to check for bladder cancer!

I am still waiting for the appointment as I requested general sedation.

I am so worried now, I am 46 year old male and have young children. Can't stop thinking what would happen if it was cancer!

And if not cancer, what would be the reason for the bleeding? They said ct scan is normal, but did the ct scan was to check the kidneys and bladder? Or just the kidney?

I am so confused and panicking

Any advise is appreciated  

Thanks 

  • Hi Klqoo9.

     

    It sounds like everybody is being ultra-cautious.  If you have an episode of visible blood in your urine then the standard protocol is a CT scan, prostate check (if appropriate) and a cystoscopy.

     

    The cystoscopy is required because small bladder cancers don't show up very clearly (or at all) on a CT or ultrasound.

     

    I know all this because I had a similar event just before Easter 2019 and went through this process.  The consultant also told me that in 8 out of 10 of cases they never find a reason for the bleeding, so there's a good chance that your cystoscopy will be clear.

     

    In my case, it did find a very tiny cancer. This was removed in an operation called a TURBT and my follow up cystoscopy was clear.  I have another cystoscopy in a few weeks, and one more 12 months down the line.  I'm hoping they'll all be clear, too!  If not, then they can repeat the operation several times before getting on to more serious forms of treatment. 

     

    I didn't find any need for sedation for the cystoscopy itself.  It's over in a couple of minutes and while it's a little painful as the tube goes in, a dental injection is a lot worse.  However, afterwards it can be sore when you pee, so I use soluble co-codamol for about a day.  After that, the pain has gone. 

     

  • Thanks for your reply, its very reassuring.

    I have had cystoscopy 8 years ago for another reason (not bleeding) and it was very very painful, i can not imagine going through the procedure again that's why I requested sedation.

    I hope your next cystoscopy will be clear.

     

    Thanks

  • Thanks.

     

    I hope yours is clear, too.