Hi GemLou42,

I can really relate. I am 31 and I have had really bad bloating, pressure and needing to pee very often. It was suggested IBS and  I've had blood works with the CA125 coming back as high at 95 (normal range is 0-35) I was told I would be reffered for scans, I googled everything thinking I had OC. I was supposed to hava an urgent scan within two weeks which is today but hadn't heard anything so called the hospital myself yesterday telling them how anxious I was. I was offered an ultrasound yesterday afternoon and a CT today. After that scan I have been told I have a thick lining and a large cyst on my left ovary which could twist and would become a medical emergency so if I feel sick or have a fever to go straight to A&E.  I have been reffered to a gynacologist and will go back today for CT. I asked if it looked like Cancer and was told no and that the gynacologist will took me through next best steps which I am assuming is surgery as it is so large. 
 

I wouldn't worry too much because nurse told me although mine was 95 it isn't that high and it's likely due to inflammation because of the cyst. Think positive and don't worry yourself unnecessarily. I was making myseld sick with worry. If you don't hear anything call the hospital and try and move things forward. I was told because I needed both scans I wouldn't have been able to be seen until November because of delays due to Covid-19 so I opted to go on two seperate days and this is a large hospital in East London. 
 

Anyone sorry to write such a long post but it is easy for us to convince ourselves it is much worst that what it actually is. Lots of positive thoughts and wellwishes x  

Hi JamieCK

Thank you for your reply. The only symptoms I have really had were the needing to pee more. I have had gut problems in the past and was told it could be ibs. But no one has ever confirmed this. It's no hard not to Google things and I have obviously been worrying myself sick thinking I have got ovarian cancer. I am glad you have managed to have your scan and at least know some of the problem. I wasn't sure if they would be telling me anything at the scan or whether you then have to wait for the doctor to get in touch with you about results. I am having my scan this Sunday so I am just keeping my fingers crossed and hoping for the best. 

Love and best wishes to you too ️. Xx

Hello everyone, just wondered if anyone has had any horrible news with their ca125? Mine came back as 42, and 24 hours later I was fast tracked for an abdominal, pelvic and vaginal ultrasound. My head, and emotions has been a roller coaster, thinking the worst. But from what I am reading online, 42 can be nothing. The sonogropher told me not to be surprised if the do for sends me for further tests... that just adds to the worry 'has she seen something?' 

Doctor is ringing me this week with the results. 

Morning Elize! 
bless you, I remember what a worrying time this was for me. From memory, mine was 46, then it dropped to 43, then it dropped to 30 which was within the normal range. I never got an explanation which makes me a little uneasy but my scan was absolutely fine. From what I researched, it can be down to your period, ovulating, minor cysts on ovaries, endometriosis etc. I think the lower levels are generally cycle related but obvs I'm no medical professional and just going by my own experience. I still struggle a lot with tummy issues and more recently back pain. I have noticed my symptoms improved when I started the mini pill so I do wonder if I have endometriosis but once hubby has had the snip I'll see how I go as I'll be coming off the pill then. Good luck! Let us know how you get on. X

Hello, thank you for your message. 

What a nightmare this has been. The GP said they have seen fluid sacs and thinning of the skin on my c section scar tissue, which could be the cause of the rise in blood test. He seemed a little shocked that my last c section was 14 years ago, so referring me to gynecologist to see what they think. So as the GP said, nothing to worry about for now. X 

Hi I'm a bit late to these posts but if your still active on here have you had a blood tests for your hormones to determine whether you are premenstrual?

Thanks

Sam

Hi

Yes I have back pain I've always had back pain but the past month its been every day. My C125 is 39 and my symptom is spotting in between my periods and after sex. Does anyone know if the bloods could be high if its possible cervical cancer or abnormal cells at least??

Thanks

Sam

Hi.

I had a blood test earlier this year to see if I was perimenapausal. My results all came back fine. 

Thanks 

Gemma

Hi,

Mine came back normal but I've been told they but doesn't mean its not the start

I don't think doctors understand the menapause expecially premenopause 

Sam

To be fair. I have had more and more symptoms of the peri menopause as the months have gone on this year. So may go back and speak to the doctor again. 

Gemma

Hi,

Its worrying how many times us women are fobbed off by our GPs, I have a private scan booked for an ultra sound on Monday. I can't wait for the NHS  not this close to Christmas. I'm a worrier and it will be make me ill

Hopefully you will get some help

Sam

Yeah totally agree. I wish I could afford a private scan but for now just have to hang on. I am a worrier also.

Hope it goes well on monday. Let us know how you get on.

Wishing you all the best.

Gemma

Yeah totally agree. I wish I could afford a private scan but for now just have to hang on. I am a worrier also.

Hope it goes well on monday. Let us know how you get on.

Wishing you all the best.

Gemma