Hi I just wanted to drop a message in to say I'm going through a similar thing! I had lose stools extreme high calprotectin levels then I randomly went back to normal now I can't go toilet I have bleeding and mucus and im reliant on laxatives. I haven't been seen yet my Dr put my referral through as a non urgent due to theothe calprotectin levels dropping alot but said he couldn't ignore the fact the level was still high ( first one 1500 second one a few weeks later 654 and Jan this year was 145) due to Covid still waiting and my anxiety is through the roof and I'm fearing the worst as I've had these problems for 18 months on and off!

I hope you get answers and that it's not anything too serious

Hi Frankii

Please try not to worry although I know it's much easier to say that. I also have high anxiety and know how scary all this must be for you. I'm glad to hear you are being monitored a lot and they are doing stool samples to check your calprotectin levels. I was told by my GP that there was no point for a stool sample at the moment because they won't test it due to the risk of COVID in the stools. I am also undergoing some scary symptoms and like you have suffered for a while. On and off I've had rectal bleeding for the past two years. I was told I hàd external piles over two years ago when my DD was born because the pain from them put me in hospital not my labour pains. since lockdown my piles have gotten worse and are not responding to treatments. The Dr has done two lots of blood tests and I've had two examinations since March this year. They can still feel ànd see them . My worries come from losing weight back in March without trying to and that has completely freaked me out. I have also had a change in bowel habits and my stools have gotten thinner and looser this past week. I've had a lower abdomen scan which came back clear because I also suffered with pain in my abdomen and had high liver levels showing on my blood tests. I was convinced I had ovarian cancer or something wrong with my liver then but it was fine. I guess what I'm trying to say is please don't fear the worst. Often our minds can jump to the worst case scenario. I'm trying CBT to help my anxieties but I also know that until I get some answers about my current symptoms I too will worry about everything. 

I bet you can’t wait to get it over and one with. Yes I’m pregnant which makes things a little harder for me I guessing regarding a camera test. I’ve had these symptoms well before I got pregnant which worries me more. I Already know the fit test is going to be positive/high I could see the dark blood. 

What are your symptoms if you don’t mind me asking?

Of course not,

I've had bright red bleeding on and off since my DD was born . Recently it's gotten worse. I do have an external pile and skin tag so Dr thinks bleeding is down to this. I have lost weight though without trying and had a change in bowel habits. Lots of loose stools and going more often. My hair is falling out but not sure if that's stress or related. Dr has run blood tests ... All clear and done stool sample checking for IBD I think ... Also clear. Sharp stabbing pain in abdomen on my left hand side...no lumps can be felt upon tummy examination.  Lower back pain. Had a referral to a gastroenterologist who wants to rule anything suspicious out so colonoscopy booked in for just over a weeks time.

I'm so sorry to hear that! But also remember it can be some thing not as scary like IBD or even polyps which don't always turn into anything sinister. I know myself it's so much easier said than done but try not to let your mind go to the bad place it could make you so poorly going down that road.

Always here to talk xx

[@Lil_C]‍ Let us know how you get on, hoping it’s nothing but an irritated hemorrhoid, as they cause the bright blood. It’s a good thing that your stool sample was fine too. Positive thoughts! 

[@Frankii]‍ I’m hoping it’s nothing but a bad hemorrhoid but I guess what worries me Ian that the blood is really dark. I hate thinking about going to the loo something I thought would never happen

hi

sorry its been a crazy few weeks so havent been in touch. how are you any news??

i've finally had a appointment date from the hospital a telephone consultation for next week thank god! Also my GP has finally agreed i need a FIT test so waiting for that through the post.

[@Frankii]‍ Hi hope you’re well, at work you still getting blood in your stools? Have your symptoms calmed down a little since last time?

Hi [@Sabr]‍ 

How are you?

Still the same still need medication to go toilet but the dose is varying a little more. The blood had stopped but its come back this week and my stomachs gone haywire.... But I'm trying to stay positive now i have my hospital appt finally..... Nervous as hell though. 

Hi [@Sabr]‍ 

How are you?

Just an update had my telephone consultation.... I have an appt for colonoscopy on the 3rd of December... He said because of my age he isn't thinking colon cancer but who knows?

Got some more bloods to be taken on the 30th including a calcium blood test the hospital requested. My GP also requested a FIT test to be done finally however i cant do it as ive seen blood myself and the consultant said not to as ill get a positive regardless.

So basically still no answers. 

Hi [@Frankii]‍ so glad you finally managed to get Colonoscopy. The blood you see is sometimes right? And only on top of the stool? Hoping it’s just hemorrhoids. 

Im still stuck in limbo and nothing can be done till February as im due end of December and then I need to heal from birth before they do anything.

Hi [@Sabr]‍

The blood was sometimes yes although the past week or so it's been everyday :cry: it's on the outside and in the toilet bowl and when i wipe now.... I'm praying it's just a reopened anal tear or hemorrhoids like you suggested. I've come off my movicol as it was just making me rush to the toilet 10x a day so that may be why?

Is there nothing they can do for you before February? I completely understand you need to heal but surely they can do something for you to put your mind at ease? 

Hi [@Sabr]‍

The blood was sometimes yes although the past week or so it's been everyday :cry: it's on the outside and in the toilet bowl and when i wipe now.... I'm praying it's just a reopened anal tear or hemorrhoids like you suggested. I've come off my movicol as it was just making me rush to the toilet 10x a day so that may be why?

Is there nothing they can do for you before February? I completely understand you need to heal but surely they can do something for you to put your mind at ease?