Hi jacqo

i experienced exactly the same thing 4 days ago, im

also waiting on a CT scan I presume to see if anything has spread

i like you have read and fear the worst and am bloody terrified but in amongst all I've read there is also a lot of positivity 

I too went for a lump check, at first they thought it was a cyst but ultrasound showed different and lymph looked affected aswell

consuktant and Macmillan nurse said to expect the worse

am having telephone consultation Friday with biopsy results, it's easier by phone for me and my partner as we have 3 young children

sending you lots of hugs and positive thoughts

alison xx

Hi Alison, so sorry to hear this is what you are going through too. It feels life can change in just a few minutes. I am trying to live in the moment but when you start to read google it's very frightening. As soon a I heard lymph I knew it was serious.

i am getting a call before I go back on 25th, I will fight this with everything I can throw at it. I'm 60 in 8 weeks and am too young with too many things to do to do otherwise.

you have your kids to give you all the determination to deal with this and we will get better.

Fingers crossed and let's keep in touch.

jacquie

Jacqo

I had simular experience  to you on the 20th May.3 mamagrams , an ultrasound which showed up a solid hard  mass and swollen lympth nodes.  I then had 5 biopsies taken, 3 from my  right breast and 2 from under my arm.

I then had a metal coil marker clip inserted into my breast as well. I was told by my consultant there and then  with a cancer nurse present that i had breast cancer, i asked her  "are you sure " , she said " yes ".

On the 26th May i had the telephone call to confirm that It was cancer and it had soread to my lympth nodes.  On the 27th, the nxt.dsy   i got a call from the hospital to go for a bone scan , as thet had a cancellation and my consultant had asked the hospital to call me. On the 28th after another call on the 27th when i got home from the bone  scan, i was asked to.go for a ct scan. 

I am waiting on those results still. I was told the grade of the cancer is grade 1, and its ER+PR+ HR2Negative, but its yet to be staged hence the scans. 

So i know exactly how you were and are feeling , its such a shock. I also have my son who was diognosed with testicular cancer just before Christmas  so its a double blow for the famiy. 

My son has had chemotherapy and is hopefuly  going to get some good news , after having a scan in the 10th june , and seeing his consultant in London  hospital on the 25th june.

Trying to stay positive , much love and hugs  and positive vibes are being sent your way  too.xxx

Hello, thanks for sharing this, it's great to hear and talk with other people at the same stage and so we can share our experience.

im getting better with the shock but coming back from all of that on Friday was surreal and if I'm really honest I was still thinking once biopsy is back that they might say they made a mistake!

i am so sorry to hear you have all this plus your son, so when will your full results be in and when will you start treatment?

please keep in touch, I couldn't see your name but I really hope you know we can fight this and own this and with support we can return back to our happier selves.

Please let me know how you get in.

sending love 

Jaqo

Hi my name is Jasmin

Im not sure about anything really, just i was told  its grade 1 ER+PR+HR2Negarive. Ive read the cancer booklet i was given and realise its a ductual cancer, grade 1 means its a slow growing cancer. Er+PR+HR2Negative means it is a hormone  related cancer ie..it feeds of the hormones Estrogen.  The HR2Negative is good i think its worse if irs HR2Positive. Im new to this and only just grasping and making sense of it all.

I guess i wont know untill scan results  are all  bsck.As that us how they stage the cancer, they look.to see if its gone anywhere else other than in my lymth nodes , which they already know its sprrad there. I realy thought the grade was the same as the stage , untill my son pointed  it out to me.just because the grade is low, it really depends  how long its been in our body's  as to where uts gone , and what stage it is.i didnt realise that at first.

I was told  it would be  an operation  in the telephone call confirming it was cancer on the 26th May, i was told it would  be a lumpectomy and all lympth  nodes would be  removed from under my right arm by wide incision.  

So i think.umtill i get my results back i wont know .The lady that did the bone scan said " results usually take up.to 2 weeks". So should hesr sometime by this week. Its strange feeling because you want to know, but dont want to know all at the same time, but the longer its  left  you just want it out of your body  too, its a Crazy and scary feeling that i wouldnt wish on anyone, it really messes with your mind at tines. But been  putting my positive head on. 

Yes agree with you on talking to people at the same stage  as you it helps you keep sane,   and you  realise  that all the feelings your feeling are normal . 

Sending you much love  xxx

Speak soon Jasmin, sending love and light.xx

Jaqo Thankyou. 

Right back  at you xxxxxx

How are you at the moment Jasmin?

I am less anxious today and been going on long walks, eating loads of blackberries and blueberries and drinking green tea like there is no tomorrow as they contain anticancer properties...ha ha!

I'm a yoga teacher so calling on all that experience of staying calm and breathing to help me stay on the present and not let myself go too far into the future.

Much love

Jaqco

Hi jaqco, thanks for asking. Im feeling bit calmer to .i had a call from hospital today and spoke to my consultant. Good news is it hasnt gone anywhere else, apart from my lymph nodes.  So was really pleased as i now know the pains i am experiencing  in my bones must definitely be  vitamin D3 deficiency  as its excactly how i felt when it got low before . I am to have my operation nxt week,  either on Tuesday or Wednesday ( they will let me know) its going to be a lumpectomy and all lymph nodes removed from under my right arm.ive been told they will take away a margin of breast tissue around the tumour , when they cut the tumour out. This will.be x rayed and sent off  to check the tissue, if cancer cells are present i may have to go back in 4 weeks time to have more  breast tissue removed. Im praying  this wont be the case. 

Ive been told i have a risk of gettimg lymphedema, which is a swelling in the arm 25% of women get it. Ive also bern told ill never be able to lift anyghing heavy with my right arm ever again.  And that i  will  always  have to be extra carefull  in future if i get a scratch or cut as  ill be susceptible to getting infections, and if i do get a cut ir scratch ill have to go to  my doctors to get antibiotics.  I will also have to have radiotherapy at a later date and it will be for five days (everyday  ) from a Monday to Friday, and because if covid 19... it will be for  double  the normal amount of time. Ive been told sometimes it can make the breast smaller, sometimes it can make it bigger. Ill also be put on hormone drugs letrazole ( i think that is how you soell it) ive read that that can cause bone pain, so that concerned me as im allready exoeriencing that from vitamun D3 deficiency.  I was told that i could disscuss this  at at a later date with my oncologist. I will have to go for a pre. opp assessment, so that should be soon. 

So a heck of a lot to.take in. But im calm for now. Dont  know about nxt week lol, but i just want to get on with it all now i know.

But im really really hapoy and thankful, that its not gone anywhere else.  Just want some good news for my  son now , on the 25th June.

Hope you are ok, keep staying positive . Have you got any more news on whats happening with you..ie operations, treatment plans etc. I do hppe so, its weird  scary, but its good to know.  Sending much positivity  and love your way   xxxx

Jaqco

Ps is your name Jackie , or Jacqueline. Xxx