Pamela

this is obviously a worrying time for you and the not knowing and testing process can sometimes be unbearable.

the body produces lumps and bumps for no apparent reason sometime and although I am now cancer free, underneath I am still a normal person who still gets lumps and bumps.

just watch Dr Pimple Popper.....amazing but slightly disturbing woman!

however, you are now on a treatment path, but it a tad difficult in these conditions.

my advice is just to keep yourself busy and I guess being a single mum, there is not a time when you are not.

keep chatting on here, we have all been through testing and beyond, although we are not medically trained, so can't satisfy your desire for an answer, but we can help you get there.

hang in there, there is a brilliant process working in the background, even in these different times.

so how are you doing today?

vatch

Thanks for replying Vatch, Im turned into a cleaning demon, as its easier to distract myself with practical things, so one advantage will be a cleaner house.

Daytime is not so bad, the worse is during the night, I tend to have a couple of hours sleep then Im awake with my thoughts going round and round, tend to fall asleep again round about 5 then my daughter comes in and bounces on the bed around 6.30 lol.  Im desperately trying not to be such a grump with the kids, some days are better than others.

I guess I was disheartened by the GP saying he needed to do the referral but it likely couldnt be done, if I hear nothing by Monday I may ring the hospital directly to ask if this is truly the case.

Thanks again

Pamela

Same here ladies! I have an almost blister looking bubble on my tonsil and then holes and stones in the other! My doctors tried to tell me it was puss but the ent consultant saw a picture and thinks it is a cyst. I am having an mri next week as lymph nodes been swollen since December! 
 

in terms of ultrasounds two week has still been very efficient for me in south east and my mri was ordered yesterday and booked in for next week on 2ww so hopefully answers will be got soon x 

Sounds like a cyst but obviously not seen it, fingers crossed it is, do you have node swelling too?  Ive had sweats a few times but not soaked, just felt hot, but it has been hot lately so trying not to worry. Also have a heavy feeling in my chest which could also be stress related, radiologist suggested they will need to do a CT to check so Ive no doubt they will discuss on Thursday.  My lump is a little less defined unfortunately, its kind of lumpy and getting bigger.  The hospital I'm at seem very good, the consultant sounded really sincere which made me feel more confident.  Best of luck for Wednesday x

Hi Becks Fingers crossed it is a cyst too, the ultrasound was really simple, they done a core biopsy with mine as she said the fine needle is sometimes inconclusive and she didnt want me to have to repeat it, but not painful at all.  Best of luck with yours too, please keep us posted x

Hi Winnie

Hope your appointment didnt get cancelled today and it all went well, thinking of you x

Pamela

Hi Pamela ... it's been a bit of a week . I got myself into such a state last Friday that I took myself off to A&E . Thankfully there were some ENT drs on call and I was seen by them . They took a look at the back of my throat and they think that the lump on the back wall of my throat looks like a mucous retention cyst. They don't seem concerned about it. They felt my neck and couldn't feel anything suspicious. They then put the camera up through my nose and took a look but said all looked ok . Bloods came back ok too . I've got an MRI scan booked this coming Saturday with contrast to further rule anything out. I asked the dr about one if my tonsils being quite a bit bigger than the other but he said it looks and feels ok. Again the mri will check . He said some people just have one bigger. I've still got earache , neck pain and pain under my arm pit all on the side of the big tonsil . I can still also feel the sensation of something being stuck in my tonsil , like in the bottom of it near the tongue base. I'm still really worked up not knowing what going on . The dr did mention maybe it's a tonsil stone in the gland or deep in the tonsil . 
im hoping that due to them not really finding anything of concern last Friday it's a positive sign . Petrified of this mri scan too! My health anxiety is off the scale . 
how are you doing? Thanks for asking xxx 

How are you doing becks? X

That sounds like really good news, the ENT guys see this all the time so I would trust their judgement.  MRI will obviously tell if there is anything deeper that they cant see, but if your lymph nodes are normal that is a really good sign.  MRI is ok, this was the 5th one ive had, I have neuro problems too, normally I fall asleep but his time I had just had the news from radiology so was a bit jumpy, but the procedure itself is fine, little bit claustrphobic but just pick some good music then let the tic tocs do their thing.

I ended up in A&E yesterrday or coronary care unit, I called my GP to ask for something to help me sleep and told her I had terrible heartburn which was coming in waves for 3 days, they had already prescribed me omeprazole which I hadnt taken, I wanted to ask if it was ok to take, she ended up sending an ambulance, saying I could be having a heart attack, if I wasnt panicking before, I certainly was after that, paramedics said I was fine but said my GP had insisted on me going to hospital, the cardiologist spoke to me for 5 mins ran an ecg and immediately sent me home, saying im not surprised you are stressed and the sweating is associated with the lymph node, he was furious that the GP had sent me, so I still have nothing to help me sleep. Im now majorly worried, appointment tomorrow to hopefully find out results and where we go from here.  Im absolutely convinced it has spread and just want to get started before its too late, sorry I know that sounds dramatic, but yesterday was just the tipping point.

Let me know how the MRI goes x

I'm sorry you had to go through all of that yesterday ... have they given you any indication of what might be wrong? My ent dr told me that there's a lot of reasons lymph nodes enlarge ...and also as I was sweating a lot too he said that would be anxiety . Wishing you all the best and more for tomorrow , let us know how you get on , always here for a chat if you need it xxx

They said most likely tonsil cancer due to the mutant thing but at the moment couldnt rule out lymphoma, so need to wait for the histology results.  They could tell from the ultrasound of the lymph node that it was sinister, so then need to find the source, fingers crossed for tomorrow x

I have to say it was radiology that told me this, ENT havent commented as yet, as they wouldnt till histology back. (I got the impression they were not too happy about them telling me this)

I have to say it was radiology that told me this, ENT havent commented as yet, as they wouldnt till histology back. (I got the impression they were not too happy about them telling me this)

Gosh I didn't even think that they were allowed to tell you anything until a consultant had looked at the report . Was that straight after you had had it done? No wonder you have felt so anxious . Will keep everything crossed for you tomorrow and hope for some positive news xxx

It was the radiology consultant, she would have been the one reporting on it, but ENT were not happy, but at least Im prepared and its not going to be a complete shock.  And if it turns out to be something benign, even happier x