Hi Mermaid, sending you positive vibes and hoping that you get some information soon, defo the right thing to act "as if" you should self isolate, and like you say, we mottly crew are here, and the mods, and the nurse advisors too I hope unless they get pulled onto the front line. Waiting sucks, I get that, been there etc.here Im bugged that my follow up appts with consultant have been postponed until further notice. but thats all we can do. On a positive note, just went into the garden, and saw first ladybird of the season, just a little something, but sure we can support each other in these uncertain times.x

Heard from hospital and they're sorting scan said they'd ring with 24hrs notice. It's now 2ww since GP visit X-ray and bloods

I requested a call from my gp today to ask about X-ray and blood results as only spoken to receptionist. I asked if the risk of travel for scan was more than risk of cancer etc She went through results for me
 

As mine is a suspected Sarcoma which is apparently very aggressive and rare she advised me to go. My lungs show nothing on X-ray thank goodness so it's the leg they want to scan. 

Just really want to know what's what now. Waiting sucks 

Hi Mermaid, sounds so difficult, \i wonder if there might be a volunteer scheme in your area, or even a patient transport system/hospital volunteer drivers who could be asked to support you with this,  I have another disease (perhaps) on top of cancer, its had me on steroids and disease modifying anti rheumatic drugs for 17 years, one of those is used to treat leukaemia. My specilsit clinic couldnt see me for follow up in December due to my surgery, it disputes local hospital diagonosis, and as local hospital hasnt had a permanent consultant in rheumatology since my original retired 5 years ago, and has has sequence of short term locums who know *** all about Behcets disease, I lost confidence, they also filled my notes with stuff which wasnt about me, or was plain wrong, which I only discovered when I got referred to the specialist in birmingham who wanted copy of medical records.   anyway, they were brilliant, offered appt mid March, rang to ask if I am ill, if Ive had symptoms, and if I wanted to be seen. There was just me and woman from Bristol there, outnumbered by staff despite out partners.Both lots of us had gone in our own vehicles -  we all social distanced, everything including us was washed with antibac, and I got everything checked over, including detailed eye exams - if a hospital can offer you that, and treat you with kid gloves, ensure you are kept distant from other patients, and maybe help with transport, you need to decide what risk you want to take, Im not medically trained, but have heard of sarcoma. Its a hell of a choice you face, maybe if you can ring the hospital if  the local one can see you you can check what their views are.  I wish you well with this, and please let us know how it goes, all best x

Hello, and thank you for reply. So many going through so much. ️
 

Just to let you know I finally have an appointment - for an Ultrasound - next Thursday. So 4 weeks to the day I had referred 2ww. They've made it at a hospital closer to me but still a journey. Just glad things are finally moving really.

Watching a lot of box sets to pass time and doing hour out a day. 
 

take care xx

pleased to hear they have offerred you an appointment, if you'd like to have a break from box sets, I can recommend the facebook silent  city site, every day you get people posting pictures of places without the usual people and traffic, makes a reminder of what a huge and varied world we live in.

Hello and happy Easter weekend hope all ok for you

Went for ultrasound yesterday - finally. A 7.5 hour round trip but had the train part of journey to myself! Not sure of diagnosis he did say when I asked  he thought it was not Sarcoma but a something beginning with M? and was writing to my GP as I left room to inform them. .  I was a bit overwhelmed after being in lockdown for weeks so didn't really take it in. So now got to wait for GP and as it's Easter not expecting a call till Tuesday 

At least the suns shining

and a happy easter and sunshine for you Mermaid, hoping that it will be ok when you hear back, and pleased that at least that stage of it is out of the way, all best wishes x

Had call from hospital today have an appointment for MRI on knee don't know why - but means another journey next week.

GP will have ultrasound  result by Thursday as Easter delays so will maybe find out more then

you couldn't make it up

Hope all ok with you xx

well at least thats a quick turnaround, hope your journey goes smoothly and that the results are good 

Thanks x

to be honest am expecting the worst now, but at least am ready mentally for that. 

Thanks x

to be honest am expecting the worst now, but at least am ready mentally for that.