borderline cell changes and HPV positive: freaking out

Dear all, 

I am 26 and a half and I have done my PAP test again after several years (I don't even remember how many years ago I did the last one). My results came back and it was a shock: HPV positive,  borderline cell changes and a referall for a colposcopy. I am very very anxious because I have read about girls that had borderline changes identified with the smear teast but then they found them to have cancer at the colposcopy appointment. I find it very difficult to think about anything else, it's a nightmare.   I am here looking for reassurance and I hope you can help me going through the waiting... 

Thank you a lot!!!!  

Parents
  • Hi

    i have had the same results through the post a few days ago from my smear in early December and I too can't think of anything else. I'm worried sick I keep googling things and keep crying at the prospect of having cancer and not being able to watch my little girl grow up and leaving her without her mummy! I hope you are ok and got good results! With COVID it's saying my appointment for xoposcopy should arrive within 8 weeks and I'm freaking out at having to worry about this for so long!  I had to reply because it's like everyone keeps saying you will be fine done worry it's common and I feel like the high risk Hpv is making it so much more frightening for me

    xx

  • You're me! It's spooky. Except with a young son. Same thing, early Dec had a smear, just got letter today to say HPV positive and "changes" I called my dr who told me they were "borderline"... which is better I guess? But I don't know and don't want to Google TOO much. It also said 8 weeks for colposcopy on my letter, which seems forever - BUT my doctor said it hadn't been put through as an emergency in that case - so I guess that's a good thing for us? I hope anyway. Xx

  • That's very much spooky! Thank you for replying to me because I felt very alone in this. I haven't called my gp but I'm going to tomorrow morning now to see if I can get any further information. Yeah I guess that if they don't see it as emergency it can only be a good thing for us  At least we are not alone in this. Can't believe how much we take health for granted until something like this, what a reality check it's given me !! xx

  • I had to reply because I felt the same, your wee post made me feel a bit less alone! My GP definitely made me feel a bit better, especially because he said it was "borederline" (I assume thats on the lower end of the scale and not like "borderline bad!" - but now I'm questioning myself!) my letter didn't say it was borderline, did yours? He sounded very much like "ah you're fine" which helped, but I'm hoping he's right! 
    call them tomorrow, you might find out a bit more, and they might be able to offer you a bit more advice too! 

    definitely, it's pretty scary :( Xx

Reply
  • I had to reply because I felt the same, your wee post made me feel a bit less alone! My GP definitely made me feel a bit better, especially because he said it was "borederline" (I assume thats on the lower end of the scale and not like "borderline bad!" - but now I'm questioning myself!) my letter didn't say it was borderline, did yours? He sounded very much like "ah you're fine" which helped, but I'm hoping he's right! 
    call them tomorrow, you might find out a bit more, and they might be able to offer you a bit more advice too! 

    definitely, it's pretty scary :( Xx

Children
  • Hi just seen both of your posts. Just wanted to reassure you an try put your mind at rest. I also had a HPV positive  result from my first smear in 2019 followed by annual smears for 2 years beginning of Jan I had a HPV positive and borderline cell changes result. Had my colposcopy this morning and was told everything looks fine so was discharged for smears every 3 years now. Try not to worry or google I done exactly the same and you just think of the worst. Hope you both get your appointments through soon and get the same result. Good luck sending you love x

  • Hi Alex! Thank you so much for that, that definitely does help, I didn't realise they would know there and then (as they were doing the colposcopy) that everything was fine. Presumably if not they'd send a sample away or something? So glad all is fine with you! Fingers crossed it's exactly the same with us ️

  • Hi sorry for the late reply. Yeah so they basically checked with the microscope had a look at the cervix then sprayed an iodine solution onto the cervix (think that should show any cell changes) and at this point they would either see if they were happy with everything or if they wanted to take a biopsy they probably would have at this point. As she was happy with mine there was no need for a biopsy and she just explained that I would be discharged to my GP and would get another smear in 3 years. Hope you are doing well and get your app through soon :) xx

  • i had my results back today from smear.

    hpv and borderline changes. 

    i feel ill. ive been crying and shaking all night.

    being sent for a colposcopy.

    im terried 

  • Hi I got a letter Saturday and my appointment came through today. Freaking out as never had an abnormal result and had hysterectomy years ago. Trying to be positive but as a pessimist it's a challenge x

  • Hi there. Glad to hear all went well at your recent colposcopy. I have had three smears all HPV postive. Most recent said cells were normal, but the one before had boarderline cell changes. At my colposcopy they said all looked fine, so like you have been discharged and told to have a smear in 3 years. They didn't even take a biopsy - did they with you? So glad all seems to look okay but I'm just wondering whether I should still be having annual smears as I still have the HPV? Thanks so much <3 

     

    ps. Love to all and thanks for this wonderful forum, reading through these stories has made me feel much less alone and has put my mind at ease. two years ago when was told HPV positive, and then the cell changes, mind was in a real spin. I think it's great all the awareness of the virus etc. but the negative is it's seen a bit like THE CANCER VIRUS now, whereas actually it's very common, often goes away on its own, and just needs careful monitoring to be safe and make sure it doesn't progress (hence me wondering about annual smears...)

  • I've received a letter today but doesn't say anything other than my cervical screening has shown abnormal result which needs further investigation. This is my second year of abnormal results and second year of having my smear taken both abnormal. Had a biopsy first year (last year) and came back CIN1, dreading another biopsy as it hurt so much last time and I have so many problems down there as it is :( could someone help me put my mind at ease please x

  • I'm going through this high risk hpv and abnormal cells I've just had really heavy bleeding n lower back pain even though on pill I'm terrified got coloscopy 10th feb scared to death 

  • Hi, I've had exactly the same result and symptoms last year I was diagnosed in May 2021, luckily, I had private medical insurance cover because of work so I saw a private gynaecologist (she is a consultant in the NHS too). The result was high risk HPV positive and low grade dyskarosis, and also mature and immature changed to squamous cells in the cervix, it all showed up on a cervical biopsy. I'm worried because I'm only 22. This year in May I'm supposed to have another colposcopy and maybe another cervical biopsy if the cervix still looks abnormal, I got a feeling nothing has changed and it has gone worse because of the pain I get down below. I suffer from a condition down below called lichen sclerosus and also polycystic ovary syndrome. So I am worried in the same boat as you, hope everyone is going to be okay and get a good result 

  • I had my colposcopy on Monday, hated everything minute of it. He has taken biopsy and I will know my results in 4 weeks, he said it didn't look cancerous but you never know. So didn't really make me feel any better. Waiting this four weeks is going to a nightmare as I suffer with really bad anxiety anyway. Just hope it's all ok.