High grade dyskaryosis

Hi, Bennie here. 

I don't know if anyone has felt like this. I recently had a coloscopy and a LLETZ treatment for abnormal cells. My smear showed I was positive for HPV and the cells were deemed abnormal and it said I had high grade dyskaryosis. Although my consultant didn't seem overly concerned, the LLETZ procedure was ok and not too uncomfortable, since then I have felt an absolute state of panic. I am convinced my results will show I have cancer and I will need more treatment. I also feel dirty that I am positive for HPV and it is a STI. I am in a relatively new relationship and although my man has been incredibly supportive, I am the one who feels dirty and ashamed. I can't seem to shift this feeling. 

I lost both breasts in 2001 to DCIS which technically is pre-cancerous changes. This has totally freaked me out and I want to be positive but finding it hard. 

Is this normal??

Bennie

  • Oh bless you! It's awful isn't it? I do really feel for you. I was very lucky in that I got my letter, and I managed to get an appointment for colposcopy the next day. I got a cancellation. Couldn't work or function as too terrified!! I've already lost my breasts to pre cancerous cells so this sent me into a tailspin. 

    I think because I had a polyp removed from my cervix last summer, I thought all must be ok down there. I had a coloscopy for that and I assumed if there was anything suspicious, the consultant would have seen it. So to get a letter after my routine smear saying high grade dyskaryosis and positive for HPV shocked me.

    What did your letter say exactly? And when are you booked for? It's the waiting that does you in. How old are you too? 

    I think also for me, I was unprepared for how emotional it's made me. I'm 51 and just started a new relationship, and it's been wonderful. I feel I'm spoiling it as I've been a total state about things! He has been great, but I know he doesn't understand. How can he? 

    Anyway. Very lovely of you to reply. Let's stay in touch? 

    Bennie xx

  • Hello Bennie 

    I've been reading threads on this subject tonight after my colposcopy today. My initial smear showed high grade abnormal cells and I received the treatment for it at the same time as the colposcopy.
    I had breast cancer 5 years ago and have already had surgery, chemo and rads for that so I think I know how you just feel about this uncertainty. 
    My smear was postponed 10 months ago due to lockdown and the Dr has sent off my results as urgent and says he will phone if it's not good news. I'm trying to not get sucked into the feeling that it will be bad news cause it was last time. 
    I wondered if you are still waiting for your results then I realised your post was a year old. I hope it was ok for you.
    fiona