Hi everyone.
not sure whether I should even be posting this here, so I’ll start off saying Merry Christmas!
I fell poorly in Sept 2015 with glandular fever and I’ve never been right since. I started feeling a bit worse in February this year and I had uncontrollable itching and rashes. Bloods came back WBC majorly abnormally high. Anyways I’ve been getting a lot worse the last 3/4 months. I’ve a massive widespread uncontrollable itching accompanied by a huge rash, I’m extremely tired, I can be asleep for 12-14 hours at night, I’ll fall asleep at work, I used to be able to walk my dogs 5-10 miles a day on the moors and go to the gym and I’m now lucky enough to walk them 30 minutes a day). I feel extremely weak, my legs are always shaking. I’ve lost 2 stone in 3 weeks, I’ve had a massive loss of appetite, I’m always visibly shivering/cold but I have massive night sweats (almost a salty smell??) I feel sick pretty much all the tkme. ’ve had a swollen node behind my head for about 6-7 months, I’ve four run my groin for about 4 months, one under both armpits, one between my breast and armpit and one above my collar bone, all rock hard and painless. I also commonly have headaches and dizziness, most recently having abdo pain and vision problems but I’m assuming vision is because I’m tired. My blood results keep on coming back abnormal (4 weeks ago I had one, HB is low. White bloods high. Platelets high. Haematocrit low. Monocyte high and eosinophils highb Previously just my WBC & eosnophils have been raised but because my WBCs are lowering (still abnormal) the doctors didn’t want to do anything. I’m also getting joint pain and sometimes struggling to walk (combined with my weakness/shaky legs)
But anyways I then saw another doctor last Friday who saw my blood results, took one look at me, examined me and said she can feel more swollen nodes & apparently my spleen is massively enlarged so she fast tracked me to Haematology. She also sent me for more bloods and they again came back abnormal. WBC high, neutrophils high, eosinophils high, albumin high and Haemoglobin low. I’ve also been to dermatology and they prescribed me antihistamines but they’re useless and no cream will settle my skin (right now it’s literally peeling off).
I am feeling a bit worried recently. I am a healthcare assistant in my local hospital and I’m majorly struggling to the point I’m having to find another job. All the doctors consultants nurses etc I work with have all said they’re worried about me too and something isn’t right. I just don’t know what to do or think any more.
If anyone has any ideas what it can potentially be I’d appreciate it.