Does he or doesn’t he?

Hi,

Hopefully somebody can help make things a little clearer. I'm going to talk in bullet points because otherwise it will go on for ever.

- dad was having troubles with his stomach, went to doctors who referred him for a check for bowel cancer.

- has stool sample checked and blood was found, send him for the thing (forgot the word but the camera up back passage) and all comes back clear. Somehow along the way they found out he had a shadow on his lung of some sort.

- has CT scan and they think he may have asbestosis.

- another CT scan 4 months later shows whatever it is has worsened to they start thinking it may be Mesothelioma.

- PET scan is recommended, once that's done it comes back and the consultant takes them into a room and says he does infact have Mesothelioma and has 12-18m to live. Orders a biopsy to confirm.

- has biopsy done, 3 samples taken and all come back clear.

doctor now claims they're doing a sit and wait approach till the next scan in January.

I don't know what to think anymore. It's dragged on for so long I don't know if I'm going to loose my dad and we will have less time together because of all this and all of us being unsure.

They have put it down to, for now, pleural thickening of the lung due to asbestos with pleural effusion on one of the lungs or something along those lines.

Any advice (except wait it out till January because the waiting and me not knowing much about all this is killing me)

Thanks x

  • Hi Qwerty2019

    What a dreadful roller-coaster ride you're on.  

    This highlights the problems with all our imaging systems. They are undoubtably miraculous and doctors from 100 years ago would envy doctors of today.  But no imaging system is perfect.  

    It happened to a friend of mine that she was tentatively diagnosed with lung cancer due to a very suspicious finding on a image.  But later tests revealed that it wasn't serious, much to everyone's relief. Sorry, I don't know enough of the details to be more specific. 

    In the circumstances, I think a wait and see approach is the best option.  Monitor the situation and see how it develops.  Of course, it's an agonising wait for the patient and family, but we're stuck with it until we can get perfect imaging systems (which we never will).

    Meanwhile our fingers are crossed that this doesn't turn out to be cancer and that your dad's condition is treatable and not debilitating in the long-term.  

    On a side note - we often get asked questions from people who've had a one-off accidental exposure to asbestos and they're worried for their health.  It would help us improve our answers if you wouldn't mind sharing how much asbestos exposure your dad received.  Of course, it's entirely up to you (and quite understandable) if you prefer to keep this confidential.