7 week wait

Hi, I discovered a lump in my breast back in July this year. I am 59. A GP at my surgery wasn't concerned about it. Last Friday I noticed it had grown and I had puckering to my breast. I went back to my surgery a week ago and another GP was concerned and told me she was referring me to be seen within two weeks. Unfortunately here in Wales the two week urgent referral system doesn't apply, and I have to wait 7 weeks before I can be seen by a Consultant.  So I'm terrified that a lump that I was concerned about 6 months ago is now a concern but not with NHS Wales. My GP is going to write to BCU to ask if I can be seen quicker than 7 weeks but is not guaranteed that I will be seen. It's going to be the longest 7 weeks of my life. 

  • Hi, it's the same in Scotland. The 2 week rule is only a guideline here. I had to wait 5 weeks in Glasgow. My actual appointment date would have been 7 weeks but I was advised to ring appointment management each day to ask if there were any cancellations. On the 2nd time of trying I was lucky and was seen the next day. This was back in October and unfortunately although I've had scans and x-rays which have shown "changes" I'm no nearer a diagnosis as have to wait so long to see the consultant. (Appointment 23/01/19) So all in all I will have been waiting over 16 weeks. I would advise you to do the same. Ring the hospital and ask for appointments. Let them know you're willing to take the next available appointment of there's a cancellation. Keep trying. Sending you prayers for a good outcome. X

  • Sorry, just read the rest of the posts. Thank God you've been seen and are now in your way to treatment. X

  • Hi,

    been reading your posts, I'm so sorry it's cancer, and I'm so angry at your first doctor and the long wait!!! Good luck with it all, I'm out the other side now, it's a bumpy ride alright but you can do this....xxx

  • Thanks for replies. I feel fine. I've decided there's no use moping and feeling sorry for myself. There are lots of people going through it, and some people with worse conditions. I actually feel quite strong and ready to get through whatever happens and whatever treatment I need. Maybe it's just a reaction to the initial shock of consultant telling me it is cancer. I decided I'm going to keep smiling, laughing and enjoying life as much as I can. I wish everyone else on this forum, going through diagnosis and treatment strength and hope. I find humour helps. My husband is my rock and he keeps me laughing x

  • Had appointment with consultant yesterday. My biopsy results hadn't come through so although he confirmed it was cancer that has spread to lymph node/s they don't know what stage or type it is yet. I have to have a CT scan. I've had a very slight hearing loss and tinnitus for past couple of months. I'm still in limbo as to what stage and type of cancer it is, and wish they'd not called me in yesterday without my having my biopsy results as basically didn't tell me any different than what the first consultant I seen told me on New Years Eve. I don't even know when I'm due to have ct scan as they just told me they'd call me next week with a possible date. I've been feeling angry past couple of days. Keep thinking if my GP had sent me for check 6 months ago when I first noticed the lump, instead of giving me assurance it was nothing to be concerned about I wouldn't be in this position now, and it may not have  spread to my lymph node as it appears to have done looking at my ultra sound. My last mammogram was three years ago, and I was due to have next one later this month. So it would have picked it up anyway. Feeling anxious, and in limbo and just want my treatment to start asap. My consultant did tell me yesterday that I wouldn't need mastectomy. Just lump removal and lymph node/s removal. But couldn't tell me when and what type of treatment I need until further test results are received. This waiting is the worse :/ 

  • Your in the worse bit now love. Your life is totally on hold until you know what's what. At least you can hold on to the fact it will be a lumpectomy. I'm also angry at your original GP , and would be inclined ( when up to it) to write a complaint, they simply can't be doing this to another patient, ALL lumps need investigating....end of.  Do they have X-ray fingers and vision??

    But now you need a clear head for the road ahead. What I will say is once a treatment plan is in place you will be whizzed along with your tailcoats flapping....you'll get those treatments ticked off before you know it...

    let us know what happens? Xx

  • My breast cancer nurse has managed to get me appointments for bone scan tomorrow and CT scan on Sunday. My next appointment with consultant is on 22nd Jan to discuss results and treatment plan. Thanks for positive replies ladies :) 

  • Well, I'm due appointment on Oncology ward next Tuesday to discuss my chemo procedure. My treatment will be chemo for about 5 months to hopefully shrink my 6cm breast tumour. Then surgery, then maybe more chemo, and radiation. At the moment I'm more worried about an ongoing dental problem with a new dental bridge I had fitted a year ago. I've had to have two root canal treatments for teeth under the bridge since, and yesterday. I've felt an ache in one of the treated teeth. I'm going to call my dentist today. I'm worried the root canal treatment has failed and won't be able to get it fixed before my chemo starts which I think will be week after next. 

  • Yourchemo will be prompt. But the dental issues are a nuisance for sure. Be sure you tell the dentist about chemo, you need to get in sooner rather than later..

     

    good luck with it all....let us know how it goes..xx

  • I called my dentist on Friday morning. Told him my situation and booked appointment for Monday afternoon. The pain has suddenly got worse yesterday, and I'm going to try to see emergency dentist at 7am this morning. I'm hoping the queue isn't long as they only see 10 emergencies. I've no idea when my chemo is starting. I'm assuming my appointment with Oncologist on Tuesday is to go through procedure and maybe I'll know then. I've a feeling my root canal I had done last year has failed. I've had to take Cocodamol. If it has I'm going to have to have it sorted, but if it's not salvageable they may have to pull the tooth. I'm worried that it will delay my chemo. Bad timing :/