Lump in my neck

My name is Amanda, I'm a 53year old woman of two young adults.

Yesterday I found a considerably large mass in my neck. It is above the hollow of the neck (near the collar bone) it is on the left side and a little to the front. It is totally painless, though very firm and smooth it is pressing on my windpipe. I cannot believe that I have only just noticed it, given the size. It is quite low down the neck and that's an area I have overlooked when doing my bodily checks.

I saw a GP within an hour of discovery and have been fasttracked to the head and neck clinic for investigation.

I'm terrified out of my mind of what it could be and what is in store for me in general.

I've eaten nothing since yesterday, and my appetite has nose dived since the discovery.  

I feel totally alone, even though I am not alone, and it literally feels like my life has come to a standstill while whole world is carrying on without a care in the world...

 

Amanda_friend

  • Hey dear! CT was after A&E they said keeping me there would have pushed me FURTHER back in the que, madness! So no results so far. Broke down in the doctors last week and not been keeping very well mentally, currently gutting the house to keep myself busy. Praying for news soon and hoping the biopsy won't hurt - how was your needle? My lump is really solid which is terrifying me.

     

    so glad you're getting closer to a result, and the sound of the cyst texture sounds like a great thing. Fingers crossed for you ️ 
    a x 

  • Hey, I'm not surprised you broke down... My head's been all over the place, the nightmares have been awful along with the night sweats... Not sure if that is related to the problem or menopause..

    My lump felt solid, and I was taken aback when she suggested it was presenting more like a cyst.

    I have still to have a scan and I'm told that is to measure it, and to ensure it is not masking something else.. which is causing me no end of stress.

    I can feel it pressing on my throat and it's very uncomfortable.

    The waiting is terrifying and seems cruel... I thought there'd be more urgency but that appears to be the case. However all the people I know who had something more sinister were not left waiting.. their feet didn't touch the floor....

    I'm back in work today trying to distract myself but to be honest, it's not working, my house has been neglected since before Christmas and I don't have motivation to resume normality.. I guess that will come once I know I am okay.. (hopefully that will be the case)

    I hope you get some headway soon and you get the all clear... Obviously lumps are a result of something so we just need to know the cause.... and get the right treatment.

    Life is still on hold and I am sure it is for us all on here... I hope we can all smile together in the coming months.

    Be nice to keep in touch... Think we are stronger together.

    Amanda

  • Hey! 
     

    you don't understand how much help you've been. My lump sounds very like yours! Praying we both get some results soon. Totally agree about keeping in touch. Please feel free to PM me whenever, you're 100% right, we're stronger togeather and will get through this no matter what! Although praying for cysts! 

  • I've got a ultrasound on the 20th for lump left had side neck about 2 inch up from collar bone. It is causing constant pain like aching. I went on 2nd December and such a long wait till ultrasound. 

  • Sounds like same place as mine... thyroid. That's a long time to wait, by the time I have my scan it will be almost 4 weeks since I was referred.

    I'm hoping they would have moved quicker if it had looked more suspicious.

    I've had a lot of support from friends and family as well as this group. 

    You always think you're alone but you're not, apparently 90% of neck lumps are innocent...or at least not sinister.

    Hope you feel comforted by this message...

    We are all praying for a good outcome for us all. 

    Best wishes

  • We have helped each other, I was single minded till I saw the consultant and I am still a little worried to be honest but no where near like I was.

    I don't care how they remove it so long as they get rid of it... Apart from the discomfort it's unsightly.

    It never leaves my mind.... for instance, I ought to be sleeping right now but I am wide awake.

    Happy New Year to all of us hoping we can move forward with peace of mind x

  • Hey Amanda, happy new year! Thought I'd send an update. 
     

    Up until now they seemed to think that the lump on my neck was a solid mass. I had an appointment for a biopsy and ultrasound on New Year's Eve and upon the ultrasound they realised it is a fluid filled lump. The lump is large and they said that it had a thick cystic wall whatever that means and they drew 18 mL of fluid from it. I'm going to be honest I found it really fascinating seeing the inside of the lump they also took two biopsies of the cystic wall. I'm not sure if it's better or worse that it was a fluid filled bump but it sounds like we're going through the same thing. 
     

    I've been playing Dr Google to try and find out if things like Lynn lymphoma Would be more likely to have a solid mass or fluid filled lump but I'm not getting very far. I hope the wait for the results isn't too long. Did you have a good New Year? 
     

    Thinking of you, abbey x 

  • Hey Abbey,

    That certainly sounds better than a solid mass. I guess they will be looking at, what it is, what caused it, how to treat it.... I've stopped looking on Google because I don't understand half of what I read. 

    Most importantly the general feedback is fluid filled is a cyst.....now you have had your scan and biospy you should have resolution soon I should think.

    Things sound more promising than those scary thoughts we were consumed by... 

    Keep me posted... XX

  • Hello! How are you? Always thinking of you. 
     

    Called my registrars secretary today on the off chance the results would be back early and the registrar called me back as she knew how anxious I have been. Results are back and there's no sign of the big C. It seems to be an infected cyst, despite not showing in my blood and although it has a thick wall they aren't concerned it's anything nasty. They said they think I will need it removed and I have a follow up appointment on Thursday to discuss next steps, but the relief is unreal. I cried in work of sheer happiness and gratitude. 
     

    i hope this gives you reassurance that it is likely the same for you. 
     

    Abbey x x

  • Hey that's amazing and I know just what you mean about crying with relief.

    We definitely have been going through the same thing together.

    18ml is a considerable amount, that must've been one big lump!

    I have the all clear from bloods and biopsy, and scan too! 

    They did say that I had 3, 2 large nodules one the left and a small one to the right. The consultant radiographer and his registrar both agreed that based on the scan they had no worries and this was backed up by the biopsy result. They quickly ruled out the big C too.... 

    Next steps, back with the consultant to discuss removal.

    One thing the radiographer did say was that  70% of all 50 year old people will have thyroid nodules, and almost all people aged 90 will have problems and nodules. 

    I started taking Saw Palmetto 1500mg 2 year ago to stop my hair falling out and I am wondering if there's a connection given that they say there's a thyroid disfunction but I am wondering if I have caused it! 

    I'll ask next time I am back. 

    Enjoy your new lease of life... All the things I put so much importance on before I found the lump seemed so meaningless and pointless when I was wondering what it was.... I now no I wasted too much time and energy on many things in my life, and have a very different outlook now.

    XX Amanda. 

    Be lovely to put a face to you.