Hey Amanda, I'm in the same boat! Found a golf ball size lump just under my ear and couldn't believe I'd missed it. Went to the docs and had bloods done and everything came back clear, then booked in to see ENT. Saw them yesterday and nothing abnormal in my EN or T so on an urgent list for a CT and biopsy, although have been warned I could be waiting a little bit due to the time of year. It's been two weeks since the original doctors appointment and I've made myself ill with worry. I

youre not alone, and I'm just as scared but all we can do is wait and pray ️

Thank you for your reply. 

We are in a scary time together.... The limbo is torturous though our own thoughts are probably running wild and not helping. 

Please let me know if you get your appointment and how you get on. 

My mind is all over the place, as is yours... 

Yesterday morning my life was wonderful,  by tea time it had turned into a nightmare that I can neither wake or escape from.

Amanda_friend

My hubby and I were in the same boat, but have already had all the tests and now waiting for the biopsy results. We're pretty accepting of the fact that it's likely to be serious. And we feel strong positive and confident that everything will be fine. We'll get treatment and this nightmare will be over, just a few difficult months and then we'll go back to our lovely life as newlyweds:))) 

Funny how life changes so quickly. Makes you appreciate it so much more. 

Try not to worry too much, you'll find enough strength in you to deal with it whatever it turns out to be. Guaranteed! 

Take care and all the best

Hi Amanda,

I found a lump in my breast on the 8th December and went straight to my GP the following morning. She expressed serious concern as she also felt that the tissue in right breast was very lumpy and uneven. I was urgently referred for a triple assessment but was told it would still be a week before my apt. It was the most difficult week of waiting as I was constantly in the fear of the unknown and imagining the worst. I have 2 young kids (8&9) and they were al I could think about as I imagined the worst. Like you, I couldn't eat and appetite was non existent.

I had my apt yesterday and thankfully both mammogram and ultrasound came back clear. Consultant confirmed I have a few cysts but nothing or concern. To say I felt relieved was an understatement. 

I'm not going to tell you try not to worry as I know exactly what you are feeling right now and it's impossible not to worry. The only advice I would give is try to keep yourself busy and somewhat distracted. I spent the first 2 days at home thinking and talking about it non stop with my husband. This actually made me more stressed as i focused on nothing but the fear of the unknown. I found that when I was in the company of people that didn't know what was going on that it made me forget about it if even for a little while. 

Really hope everything turns out ok and please know you're not alone x

Thank you for sharing your experience with me. I do feel like running around telling everyone but it has crossed my mind that I'm keeping the thoughts active by doing so.

I normally go to the gym and already I have lost motivation, I'm struggling to concentrate on other things I normally enjoy and it's enhancing the isolation I feel.

Your post is uplifting and while I don't know what mine is yet it does highlights that it is an open field.

Thank you for your well wishes, I'm pleased you got a great result. 

Xx

It certainly does make you appreciate it more.... Already all the things I have always placed so much importance on now seem meaningless and unimportant. 

I hope you receive good news. You both sound very strong and positive. 

It's certainly a test of as strength and will.... 

I wish you well as I do us all.

Xx

Hey [@Friend_amanda]‍ how have you been? Have you heard any more? I've been getting eye twitches, headaches and pain in the lump which my doctor ended up sending me to A&E for, thought it was some kind of pressure in my head but have been released since, they think whatever it is may be resting on a nerve. Had my CT last week and have a biopsy booked for NYE but no further in terms of results. Thinking of you x 

Hi there 10190809

My hospital appointment was scheduled for NYE at the ENT consultant based clinic. I didn't eat or sleep very well from the initial GP appointment 16/12/19 and by 20/12/19 I was in total turmoil. 

A work colleague advised that I contact the ENT dept and ask if a cancellation was available. I did and was seen 23/12/19. 

I was a nervous wreck and went in crying...the consultant asked a series of questions to which the answer was no to all, she then looked into my nasal passages using a camera, then went further down my throat. She said it all looked fine.

She felt the lump and said it felt consistent with a cyst and it was likely I was producing too much thyroxin and had likely had the cyst a while. At some point I must have strained myself and blood had been dripping into it.

She drew fluid from it using a fine needle and that was sent for testing, along with my bloods.  I have a follow up on 06/01/19 which I presume is the outcome of the tests. I  have an ultrasound scan booked on 09/01/20... I thought they would have done it the other way around.

My head is still a blur and I am still worried, but not as much as I was.

What are your next steps? It makes sense that pressure upon a nerve would cause referred pain.

I don't have pain but I can feel pressure.

I'm confused as to why I am going back on the 06th and my scan is 09th... and I am worrying... Even though she said she was confident it was a cyst given that fluid was easily drawn 

Hope you are not too worried...I was torturing myself.

Do let me know what they say and how you get on.

Amanda. 

Just realised, you had CT... That's probably because of the pain in your head... but sounds like the CT was clear in terms of them saying it sounds like something resting on a nerve, so it does sound like your CT was clear... 

If anything grows big enough it is bound to cause pressure... I feel pressure on my throat and feels like I have something stuck in there... I guess there's not a lot of room in a neck and wouldn't take long before it becomes uncomfortable.

I have to put my trust in their knowledge, they see far more than I do and have more knowledge. She did say that 90% of neck lumps turn out to be harmless and not sinister.

I hope you have some comfort in that knowledge. 

Xx

Keep focused on the 90% ...

Hope 2020 is a better outlook for us all.