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Urachal Remnant/Bladder Cancer?

Parkie85
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Im new here - In september i was rushed to A&E with a suspected ovarian cyst rupture, turned out the pain wasnt that - after an ultra sound they found a shadow on my bladder.

Since then i have had MRI's and cystoscopies, i have been told i have had urachal remnant which is quite uncommon.  I had a biopsy taken Friday 15 November and today recieved a call from the hospial asking me to go back to urology this Friday.

 

I am freaking out that it is something nasty - wouldnth they just send a letter if evrything was OK?  I dont know ive never been in this position before.  As much as i am trying to stay positive i am starting to freak out and i am so distracted.  I dont really have anyone i can talk with, my family would be freaking out even more than me if i told them as we recently lost my dad to brain and lung cancer so cant really talk to them.

 

I hope this is ok to post in here.  has anyone had this before?

  • Hi Parkie85,

    Welcome to Cancer Chat. I'm sorry to read about your worries at the moment. It's quite usual to discuss results in person, but it's best not to assume anything one way or the other.

    Try to think of any questions you may have and make sure you ask them at your appointment - and make notes if helpful.

    It's good to talk to others if you can, so if you don't feel you can speak to your family then please use this forum as much as you'd like - it's a very understanding community of people.

    I'm glad it's now not too much longer for you to wait for your apointment.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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    Hi

    I would be interested to know how your diagnosis and treatment went?

    I am 49 and was diagnosed with urachal remnant adenocarcinoma in April 20.

    I had a successful partial cystectomy and have just been given the all clear. 

    However I'm aware that this cancer is very rare and aggressive, and not much information on UK case studies. 

    Kindest regards

    Kara

     

  • Offline in reply to KStanley72

    Hi, sorry to hear you have been through something similar. I had my surgery in January and was given the all clear in feb so now just on a monitoring programme with CT scans and cystoscopies. 

  • Offline in reply to Parkie85

    That's great news, so pleased to hear you are recovering well. 

    Same for me cystoscopy and MRI/CT to monitor.

    Take care

  • Offline in reply to KStanley72

    Hi

    I'd be interested to know the success rate of this treatment in others?

    I'm 2.5 years post partial cystectomy my cancer had already spread to my lymph nodes. I was diagnosed with stage 4 incurable cancer in January 23 as the nodes did not show any change in check up scans.

    Thanks

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