Calcification in Right Breast

Dear all,

I'm 51 and at 50 my GP sent me for a mammogram because I was experiencing tenderness around both nipples and armpits. I was convinced it was hormonal and as I expected, the mammogram  was clear. I have since felt twinges in my right breast but ignored it as I thought it was more of the same - the gift of the menopause that keeps on giving! A few weeks ago I received a routine mammogram appointment for ladies over 50. I went to it and immediately got a sixth sense that something wasn't right. My right breast seemed to constantly feel tender. After 10 days, I got the letter saying more tests were needed. So, yesterday I went. I was expecting a chat with someone first but instead I went straight for a mammogram where the radiographer said she was instructed to take 2 images of the right breast. She advised that I would also have an ultrasound and would be given the diagnosis at the end. I then saw a consultant who felt my breasts;  said calcification had been found on the mammogram but, after doing the ultrasound she couldn't see the calcification and the arm pit was clear. She then left! The ultrasound took a while though, with lots of pressing. I'm sure images were taken and the nurse wrote something in a notebook. I was then called for another mammogram and told that vacuum biopsies would be taken. It took an hour whereby 12 biopsies were taken and a marker was left. I asked if I would be given the results and was told I'd have to wait a week. But, they agreed to show me an image on the screen and explained that my breast had a cyst and random calcifications that didn't concern them. However, they then showed me an area of white tissue of around 6mm which contained a cluster of 3 or 4 tiny calcifications. They told me that they had looked at the biopsies under the microscope and believed they had got enough to test. But, they advised that if not, another biopsy would be needed. I was told that an appointment had been made for next week and was given a leaflet which said that my appointment would be to discuss treatment. I feel bruised and battered both physically and mentally. I also feel completely dumbfounded that nobody sat me down and explained the scenarios. I know that, until the results of the biopsies are in, no one can be certain - but a discussion would have been nice. I'm just hoping to connect with others as so far, I'm  keeping this to myself and Dr Google isn't much comfort. Forwarned is forearmed in my book so any shared /similar experiences would be appreciated. Many thanks x

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    Hi CazStu,

    You may have a lot of questions, but they are are all ones that you will want answered. Chances are that your consultant will tell you most of these things anyway, so you'll just have to check your list to ensure that you've covered them all. It usually takes a little longer to see whether you are HER2 positive or negative and any genetic tests are done separately.

    No question is foolish. If it worries you, it is worth asking. You really do need to know everything if you are going to be able to take charge of this and, move on in a positive manner.

    I shall be thinking of you tomorrow and hope that you get some good results.

    Kind regards,

    Jolamine xx

  • Hi

    Thank you for your well wishes. You're right as my list is way too long but, I'm hoping most will be answered without me asking them. Or, at least I have a reminder of my concerns for if I speak to a nurse at a later date. 

    I'm feeling calmer and just need to know. 

     

    Thanks again for your support

     

    Caz

  • Hi!

    Thank you so much for your support. I've just had some good news from someone who had posted that she was waiting for biopsy results, in that, she's been given the all clear. 

    I've got everything crossed for tomorrow but just wanted to say that I have appreciated your guidance over the last few days. What will be will be! X

  •  

    Hi CazStu,

    It's always fantastic when someone on this site gets good news - it just doesn't happen often enough!

    I'm afraid that I've not been able to do much for you in the last few days, but I hope that once you get your results tomorrow that you will be able to move forward once you know what you are dealing with.

    I have everything crossed for you for tomorrow.

    Kind regards,

    Jolamine xx

  • So,

    I have an area of around 2cm dcis with 14mm idc which is hormone ER+. The good news is it's grade 1 and has been found very early. Phew!

    20th December has been booked in for surgery. Now I just need to decide what to go for.

    Telling my teenage daughters was hard but at least now we know. Let the battle commence x

  • I'm sorry you have this news but you are very lucky that is been caught early thank heavens for that mammogram 

    in some ways it's easier once you know 

    hope your daughters are ok best to be honest as it's the unknown that makes people scared 

    hold on to the fact that this is treatable and you will be fine 

    any advise plase ask 

    as soon as i knew I was having surgery I started taking vitamin C and zinc tablets both really good for healing 

    I only told a few people because I wasn't up for pity plus people say stupid things 

    I'm sure you will deal with it well 

    I can't explain why but I have been constantly thinking about you keep you chin up you will be fine 

    Joan x

     

  • Hi CazStu

    Really sorry to hear your diagnosis.  Can I ask what options you have to decide between please?  Do you have another appointment in the near future to discuss this or do you just have your pre-ops and discuss you decision when you go in?

    I do hope you don't mind me asking these questions.

    Do you feel more relaxed now you know what you are dealing with?  I know once I got my diagnosis I became very clear cut about it all, very matter of fact and totally unemotional about the situation.  Very strange, my Husband is struggling with my lack of emotion strangely enough.

    Rosie

  • Thank you.

    I'm definitely in a very practical mood today and feeling up beat. In telling everyone it's grade 1, caught early and slow growing and have found that the more I say it the more I believe it. Onwards and upwards x

  • Hi Rosie,

    Thank you for your message. Yes I'm feeling better now that I know and have just gone in to fight / survival mode. I too am being very matter of fact and have showed little emotion. 

    I was given the diagnosis yesterday and offered wide incision and radiotherapy followed by hormone therapy. However, I immediately said that I don't think my small breasts could cope with 2cm+ lumpectomy And that I would worry too much about it coming back. Plus I was aware that some women have the lumpectomy; find it has spread to nodes and then have to have a mastectomy. So, I've already said I want the full mastectomy of my right breast. The nurse then gave me options regards reconstruction and a follow up appointment for Tuesday to discuss and make a decision. However, I've already decided that I'd like the DIEP procedure. I've phoned and told them this morning as I know that guidelines suggest surgery should be performed within 31 days. I've also read that we can ask for treatment to be at a hospital of our choosing, and we can request a consultant. I am lucky enough to have one of the top, peer reviewed oncologists at my local hospital so I have also said that whilst I had nothing against the consultant I was assigned, who was frankly quite lovely and personable, I want the top one and I further want him, not his team, to do the surgery. It may not happen but at least I've asked. 

    I have a further appointment for Thursday to discuss my chosen reconstruction and set a date with the consultant - though that may not happen given I've been a bit picky!

    I don't know if this helps you at the moment as I am totally new to all this and full of wishful thinking. The reality could be very different! 

  •  

    Hi CazStu,

    If you have to get cancer, grade one is the best you can have, especially when it is slow growing and HER 2-. Did they tell you what type of breast cancer you have?

    I may be biassed, but I'm glad that you have opted for a mastectomy and DIEP reconstruction. I initially had a lumpectomy, but needed a double mastectomy the following year. I would certainly have been much happier to just have the one operation. I found the mastectomy easier to deal with than the lumpectomy. My wounds healed much quicker and my chest wasn't as sore post-surgery.

    I can imagine that it was difficult to tell your teenage daughters.How have they taken the news? Are you going to have the BRCA gene test to see if there is any genetic association for your daughters? It is so much easier to tell everyone when you are only grade 1 and, you can remain positive about surgery and treatment. The more positive you are in yourself the better the outcome tends to be.

    I note that you say that you are going to have hormone therapy. Are you sure that you are HER2+? I thought that only those who are HER2- respond to hormone therapy. I sincerely hpe that you get the surgeon you want to carry out your operation. It makes all the difference in the world to have a surgeon who you have faith in. Here's hioping that you get him and not one of his team.

    I hope that your discussions about surgery and reconstruction on Tuesday and Thursday goes well. This would be an opportunity to clarify whether you are HER2 positive or negative.

    Kind regards,

    Jolamine xx