Has anyone had an enlarged lymph node for six/seven years?

Hi everyone, I'm new here.

I've been trying to find examples online of chronically enlarged nodes which people have had for maybe six years or more. Not much has come up; I suppose often people might get them looked at a bit sooner than that.

I have had one in the top of my thigh for roughly that long. I found it either just before or just after my last child was born, I can't remember - it felt hard-ish and lentil-sized, and I made a note but it didn't do anything, so I just kept monitoring it. After a year or two it was probably the size of a baked bean, and then a couple of years later more like a small kidney bean I suppose. It was mobile, and smooth and seemed to fluctuate a bit - I assumed because of hormones, or whatever was causing it to be enlarged in the first place. So it got a bit bigger, then smaller again.

At that point I went to the GP about it, but she wasn't able to feel it and just said watch and wait. Anyway a month or two ago it started to feel a bit uncomfortable, like it might be pressing on a nerve I suppose, and although it wasn't really noticeably larger it was bothering me; I've been able to see it through the skin for a couple of years, in certain positions, and I don't like it being there. So I went back and she could feel it this time, and said she would send me for an ultrasound. And I had blood tests which have come back more or less fine, so I'm just waiting for an appt and freaking out a bit.

Having searched it up, it seems as though it would fit the profile for Follicular Lymphoma quite well. I can't feel any other lumps anywhere, and I haven't had any B symptoms.

I suppose I'm trying to find a differential diagnosis for it other than FL, but I can't seem to come up with much - everything seems to be either about reactive nodes, which are softer and go away after a while, or malignant ones - it doesn't feel hard like I imagine a metastatic node would, and it isn't fixed. So if it isn't an indolent form of lymphoma then I'm not sure what else it could be.

If anyone else has got, or had, a weird solitary (I hope) node like this, for years and years, I'd be really interested to hear from you - even if it was malignant. Just going a bit mad I suppose.

Thanks for reading if you got this far : )

 

Parents Reply Children
  • I've been to the doctors years ago but they said they don't know what it is 

  • I first noticed these lymph nodes under my jaw when I was about 14ish but just disregarded them cos I didn't think anything of it. Year or 2 later and I noticed them in my groin neck and armpits. Never really looked into it again or bothered seeing a doctor though as it doesn't bother me and I don't experience any other symptoms whatsoever. I'm now 18 and the nodes haven't grown or anything either. I've noticed the odd one in my abdomen recently (past few months) but never get round to looking into it. Probably worth seeing a doctor tbf