I’m really good! Pretty much all healed up now so just waiting to go for my oncology appointment for chemo. My armpit still tender but the swelling has all but gone now thankfully 

wonder how moomin is getting on.

janey honestly if you need to cry then do it. I’vve cried maybe twice through this whole thing but most of the time I try to not let it get to me.

at least you found it and now it can be treated. Hopefully a not bad case for you like mine xxx

God I had an awful night .. still not cried but keep feeling all sorts of pains and and shortness of breath and convinced it’s spread . Worried about dieing .. well more so about not being here for my family and things I will miss . I hate myself for thinkinking like this.. I’ve got no appetite at all .. didn’t eat yesterday . 

Sorry to be such a misery

x x x

Must be hard for you with your partner being away and young kids x x xMy kids are 18 20 and 23.. my 20 year old is disabled and also deaf .. we haven’t told him anything as he just wouldn’t understand .. don’t know if that’s right or wrong in our part. 

I am feeling physically sick .. need to speak to my boss to inform him but I also have a team of people I manage and don’t know how to tell them . I just told them I was off this week so they are expecting me back next week ( I’m not going!!)

Hello ladies,

sorry for jumping in on the conversation, I just wondered if you could give me some idea on your results process so far?

i started my journey on 23rd September at the GP. Had my scans and biopsy on 8th October which is just over the 2 week guideline. I was then called back on Wednesday 16th to inform me I had invasive breast cancer, 8cm mass with Calcifications with 2 lumps growing on it, showing no sign of spread to my lymph nodes. I was awaiting the full results of biopsy but they told me to pencil in around the 15th November for a massectomy and then I'd expect to receive treatment afterwards. So I went back Friday 18th October to speak to the Macmillan nurse about my reconstruction which was to take place at the same time as my massectomy and we realised my tumours were both different results, one being protein positive and her2 borderline, the other was protein positive and her2 negative. So I have had to get my results sent back off for retesting. Had a call yesterday and my results now say her2 positive for both tumours and positive for the hormones, which the nurse didn't think was right so she has gone back to recheck these for me. She also told me she now thinks I'll have to have chemo first.

feel like I'm getting more worried now as surely I should have my full results by now and know where I stand in terms of my op and what treatment I need? I just feel like I need to know so I can plan. The longer I wait the cancer could spread, or so I feel.
 

were anyone's else's biopsy results so long to come back? I don't understand why they are taking so long to diagnose it.

I think sometimes it’s better to give a watered down version in situations like that. I’ve told my kids I had a nasty lump and the doctors are trying hard to take it away. Mummy won’t be very well for a while when she’s getting the medicine she needs and might lose all her hair. They think it’s brilliant I’ll be bald like daddy haha.

talk to your boss and if you don’t feel comfortable explaining to anyone else then you don’t have to! I’m a residential care assistant so as soon as one person knew - the whole place did.

Youre anxious and that’s perfectly normal. Once the ball gets rolling I promise you’ll feel a lot more confident xxx

Hiya!

i can’t help I’m afraid all of my results so far have been when expected.

i personally would phone the breast nurse and ask her everything you’ve just said. They’ll be needing to make sure they’ve got all the proper accurate results so they know how to treat you accordingly but it’s not rightor fair having to wait all the extra time xxx

She advised me that the doctors are having a meeting about me on 29th which she is attending so she will call me to fill me in afterwards, as my next appointment with the doctor is not until 6th November.

so right now I just feel lost. I felt positive at first as from what they told me it seemed straight forwards and I felt relief when told it's not thought to be in my lymph nodes, Even though the mass is big and I have two tumours I thought it would be easily removed. but now for my results to be so inconclusive and delayed I feel like this is surely a sign of bad news to come, it just doesn't seem right.

Yeah they have their meetings so they discuss all cases together to make a decision. I know it’s worrying but they’ll just be double checking. 

It depends on what type and how big, sometimes you might need chemo first so I’m sure they’re just trying to find the best route to go down.

if you’ve got any questions at all feel free to ask! I had a lumpectomy and lymph node removal. Was meant to have radiotherapy after but it was found in my first lymph node so having chemo first then radiotherapy alongside hormone treatment (tamoxifen).

still healing from surgery so don’t see the oncologist for another 2 weeks yet xxx

I think a few of us are at similar stages.  Have you had your biopsy results Moomin?

I had my biopsy reults last Weds. Grade 2, Hormone receptor positive, Her2 negative. Apparently that's a reasonably good thing, as far as this thing goes!  They think my tumour is aound 33mm, and didn't see any signs of spread to my nodes on the ultrasound, however I'm going back for a microbubble thing and a contrast mammogram so they can get more information.  The doc said it would be this week, but i haven't been given an appointment yet and i can't get through to the clinic by phone!

Apparently i will have surgery first - the doc said a lumpectomy rather than mastectomy - and then radio or chemo. She said a couple of times that chemo might be the better treatment for me due to my age (39) - I'm not sure what that means but I'm assuming it's because I'm comparatively young? (It's not often i feel young!)

Work has been really supportive so far.  Family are a bit shellshocked, I'm finding that quite difficult and am ashamed to say I've been avoiding them a little.  It's easier for me to cope that way. 

I'm grateful for this community, no one else really knows what it's like to go through this.