7 year old with lymphoma symptoms

Hi, I'm new to this,  not sure what to say but I'm really concerned about my 7 year old daughter.

The doctor isn't taking me seriously about all the symptoms, saying I'm reading off google. Yes I have read symptoms off google which I didnt realise were relevant until I did read about them. Which is why I took my daughter to the doctors. He agrees that her lynphnodes are swollen in the back of her neck

She had swollen glands in the back of her neck..  pea sized lumps for over 4 months. She often has night sweats where her sheets are drenched in the morning, she has severe itching that causes her to cry and frantically itch, she is particularly tired for a child of her age, would happily sit on the sofa snuggling rather than play with a friend and she has always felt cold even in a heatwave she will be having a breakdown about needing a coat on.

In all honesty I have been made to feel like I am worrying over nothing, which I can handle but I am concerned that there is more to this. She is my middle child of 3 and my other 2 are absolutely nothing like this so I just wanted to hear personal experiences of lymphoma and your personal experiences / symptoms.

I'm sorry if I have posted this in the wrong forum. Km going out of my mind with worry 

Thank you x

Parents
  • Hi. I'm having the exact same problems with my daughter who's 4. I honestly don't know where to turn. She is my youngest of 3 children. Back and forth to the doctors in over 18 months. Last Dec they said asthma but can't diagnose her because of her age. She has lumps in her neck, armpits and groin and last night I found one in her shoulder. She has a persistent cough, bloods showed up slight anemia, she has very bad night sweats, pale with flushed cheeks, tired a lot of the time when having 12-14 hrs sleep a night, she's now struggling to swallow at times and for over a year been waking up saying her throat is hurting. Her tonsils are huge too. The night sweats wake her up and so does the coughing. She also gets belly pains. She is under the hospital so has had bloods done, a chest X-ray and an ultrasound which showed small lymph nodes In her belly. She has also started itching and has a small rash that comes and goes on her face. My gut is honestly aching that something is wrong. I am currently waiting for a call back from the gp as I phoned telling them about the new lump in her shoulder. 
     

    much love from one worried mum to another x

  • I could of wrote that' exact same. My daughter is 2 and going through the exact same! Just been refered to a pediatric oncologist. I'm having a breakdown. Have u got any news yet. I pray for u. My heart is breaking and I bet yours is. How do we stay strong :'( xxxxxxxx

  • I am so sorry you are going through this. My daughter turned out to be absolutely fine. She's 6 now and healthy apart from asthma which has got so much better. How odd that I should find myself back on here though, I was at the hospital with my 14 year old son today due to him getting referred urgently by the dentist last week. Cut a long story short he's got to have a biopsy 'urgently' to check for skin cancer. It's just never ending with worry being a parent. I hope your little one is ok and you get some answers to put your mind at rest xxx

  • I'm so so glad for you but I'm so sorry about your son and I hope he is fine to. It's just me and my daughter so im trying to stay strong. I've read so much about slow growing etc and I've worried myself sick. 
     

    she has severe night sweats when she falls asleep and has to sleep with just a nappy and she isn't hot!

    ahe has a few lymph nodes in her groin that are just under 1cm but never disappeared.

    she doesn't like to walk far she wants to be carried

    she wakes up tired no matter how long she sleeps and is tired all day

    shes pale white with red cheeks

    she gets a cold and then turns into chest infections

    She doesn't eat much 

     

    my heart is breaking but I'm being made out to be crazy because I said I don't agree I know somethings wrong :'( she's had an ultra sound but that's all. 
     

    did they do some tests with ur daughter, I've read it can't be diagnosed unless they have a biopsy' and they said they can't biopsy Dolcies as it's to small but how do they know she doesn't have others :'( xxxxxxxx Thankyou so much for ur reply it means a lot I'm currently in bed sobbing next to her :'( xx

  • Hi there ...

    Sorry another mum is going through such worry ... I'd just say if your instincts are saying somethings wrong then push for total blood tests and cell counts and you can ask for a copy ..

    We sadly had my granddaughter symptoms being put down to low iron before 10 months later her dad took her to A and E one night worried sick, and she was rushed up to London who was then diagnosed .. if only we'd pushed her Dr...

    Yea hopefully like the other mum your daughter will be fine to ... there can be lots of different things but untill she has full blood count and platelets and clotting factor.... then you will know for sure ... good luck .. go with your gut gently but firmly ... let us know how you go ... Chrissie x

  • Thankyou so much I believe she had lymphoma from everything she is experiencing but no one is listening :( I may ask for a second opinion in London x

  • Hi ... just stay focused ... we hold our kids hands while they grow ... and yes thankfully they are normally o.k .. but only after being listened to ... does she get unexplained bruising ????

    Write down every thing she's going through no matter even if trivial ... it's like a jig saw all the pieces may point to getting them tested for everything .... gentle but firm ... stick to saying something is not right ... good luck ... fingers crossed .. but don't let them beat you down ... you got this ... Chrissie....

  • She has

     

    severe night sweats

    constantly fatigues and tired 

    frequesnt chest throat infections

    swollen lymph nodes in her groin - had ultrasound told they were below 1cm so they are not worried she's had them for about 7 months now

     

    went to see an oncologist who said it's unlikely she has lymphoma but he's keeping it open incase I need to come back.

    j don't agree I know there's something because my motherly instincts are telling me. How can I argue with a professional :'(

    my heart is breaking I'm terified she's my world and it's killing me xx

Reply
  • She has

     

    severe night sweats

    constantly fatigues and tired 

    frequesnt chest throat infections

    swollen lymph nodes in her groin - had ultrasound told they were below 1cm so they are not worried she's had them for about 7 months now

     

    went to see an oncologist who said it's unlikely she has lymphoma but he's keeping it open incase I need to come back.

    j don't agree I know there's something because my motherly instincts are telling me. How can I argue with a professional :'(

    my heart is breaking I'm terified she's my world and it's killing me xx

Children