Hi. I know the reply is a little late, but i was wondering if you got anywhere with your daughter?

My 6 year old boy has been back and for hospital for 4 years. Has had pneumonia 3 times recurrent infections frequently and was diagnosed with splenomegaly in 2016. His spleen is abnormally enlarged. 

I noticed he had enlarged lymph nodes when he was 4. He had a full body scan and blue dye in his veins to check nodes. They were all big.

Anyway i was told they were enlarged due to an infection somewhere. He has undergone numerous tests for leaukemia blood cancers and cycstic fibrosis and many more. He has had 2 bone marrow biopsies just recently and scans on his lymphnodes and his results has been sent to specialists. We went to see his specialist this week and his lymph node is 6.5cm he has now been made an appt for emergengy removal of his lymph node to be tested for cancer. 

I am worried sick now but we have to also wait to be admitted as chemo patients are priority. (Fully understandable) 

My son also has been having really bad night sweats. He drenches his bed. 

He gets tummy pain even after not eating a lot. (Could be down to his spleen being so enlarged)

He has also been getting achey after walking the dog and he normally had loads of energy 

Thanks any help appreciated 

Hi. I know the reply is a little late, but i was wondering if you got anywhere with your daughter?

My 6 year old boy has been back and for hospital for 4 years. Has had pneumonia 3 times recurrent infections frequently and was diagnosed with splenomegaly in 2016. His spleen is abnormally enlarged. 

I noticed he had enlarged lymph nodes when he was 4. He had a full body scan and blue dye in his veins to check nodes. They were all big.

Anyway i was told they were enlarged due to an infection somewhere. He has undergone numerous tests for leaukemia blood cancers and cycstic fibrosis and many more. He has had 2 bone marrow biopsies just recently and scans on his lymphnodes and his results has been sent to specialists. We went to see his specialist this week and his lymph node is 6.5cm he has now been made an appt for emergengy removal of his lymph node to be tested for cancer. 

I am worried sick now but we have to also wait to be admitted as chemo patients are priority. (Fully understandable) 

My son also has been having really bad night sweats. He drenches his bed. 

He gets tummy pain even after not eating a lot. (Could be down to his spleen being so enlarged)

He has also been getting achey after walking the dog and he normally had loads of energy 

Thanks any help appreciated 

Yaxe13, how have you and your son been since you wrote here?